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nettiebeads

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by nettiebeads

  1. nettiebeads
    It sounds like your body is healing! Definitely a step in the right direction
  2. nettiebeads
    Excellent idea!!! I don't know how to do it, but I have several favorites that can be made with mostly OTC foods (regular grocery foods that you don't have to go to a health food store for and pay an arm and a leg).
  3. nettiebeads
    glutinous means sticky. It's the gluten in wheat, rye, barley and maybe oats that holds together (sticks together) to make bread products. The gluten in other grains is different and digestable for celiacs.
  4. nettiebeads
    I thoroughly agree with nini. You have one positive test, biopsies can be inconclusive and give false negatives. Go with the gluten-free diet, (what have you got to lose?) and see what happens in three weeks. If you do see a lessening of symptoms, then you are on the right track. Although I sure don't envy you going gluten-free while experiencing the...
  5. nettiebeads
    Oh my word!!!! I didn't think it was that far along even. Hope the trials go as planned.
  6. nettiebeads
    It's been 9 years so I'm having a hard time remembering but what I do miss is: 1) Alex'x Pizza (local restaurant that is a tradition with the university here) 2) MY apple pie (my hubby thinks it's the best) 3) King's Hawaiian bread, rolls, whatever
  7. nettiebeads
    Definitly sounds like celiac disease to me. Especially if your D was pale, foamy, floated and really really stinky. That's from the malabsorption caused by celiac disease. I don't know if the D is any different for wheat intolerance or not, since I haven't had that. Let your husband know that YOU WISH THIS WAS IN YOUR HEAD!! then you wouldn't be so sick...
  8. nettiebeads
    Congrats!! Fruits are a good way to counteract the c. I use dried apricots, raisins, canned fruit cocktail, and a really tried and true one for me is canned pears. Apple juice should help too. Or sometimes I resort to citruscel. That was recommended to me by my GI.
  9. nettiebeads
    It is usually made up of gypsum, a mineral so it is safe.
  10. nettiebeads
    I am in the very very small minority in that I had been sick 6 WEEKS (!) before going to my dr. re: my D. He took me off of gluten immediately, and I improved w/in a week. He told me it was indeed celiac, not wheat sensitivity or anything. I mentioned this to my current gp as my former has since retired. He wasn't surprised because he knew my former dr...
  11. nettiebeads
    Very glad to hear that! But I would try to leave some questions for your GI; if she's a good dr. she would understand your concerns and worries and address them w/o waiting for your next appt by having her nurse call you back or leave a written recommendation with the receiptionist for you to pick up later.
  12. nettiebeads
    I agree it is great to find a forum where everyone can say "Been there, I totally understand" And to know that you could have started healing a whole lot sooner (two months) but didn't because someone didn't have a simple human courtesy to say you have a sever autoimmune disorder is criminal, in my mind. Hello, they are in the HEALTH profession!!!!! Anyhow...
  13. nettiebeads
    I agree also. By the way, why is everyone so hung up with a test for dx? Remember, these tests are relatively new to medicine, Celiac has been around for much much longer than the medical tests. The diet challenge is a proven diagnostic tool and you have what is termed a positive diet challenge. That was how I was diagnosed 9 years ago. I know I could...
  14. nettiebeads
    I'm sure you can call your GI and leave a message with her nurse with all of these questions. It does take time to heal, youth is on his side. Just make sure his calories are high protein/high iron to help his anemia, with vita C to help his body absorb the iron. And because of his malabsorption, you may want to ask about a multi vitamin/multi MINERAL...
  15. nettiebeads
    This thread makes me laugh at all the times I've had to educate people about what has flour/gluten in it. My office is right off of the kitchen. Several ladies will go next door to the grocery store (we're in a strip mall) and come back with lots of goodies (?) Like cookie dough ice cream AND cookies! They'll offer me one, and I'll say no I can't have...
  16. nettiebeads
    Good one!!!
  17. nettiebeads
    I do know that when I've been glutened my perceptions are radically skewed. My only saving grace is that I'm already on zoloft and I know that the new depression is temporary.
  18. nettiebeads
    Why put him through a procedure when he's already responding to the gluten-free diet. It's considered a positive diet challenge.
  19. nettiebeads
    It does take a long time to heal. There are many variables as to length of time to heal. How much total damage was done to your villi? What is phsiological makeup? Do you normally heal slowly or fast? Remember, when you slip-up, you are redamaging your villi so it's a step backwards (or three). But 6 weeks into the gluten-free diet and you feel improvements...
  20. nettiebeads
    I used to bake a lot before celiac disease. Now I have fun experimenting with different flours and binders and such. Soy flour makes a very tender bread product. I use some rice as an extender - it's much cheaper than some of the others. Potato flour is very dry. Since most experiments are edible, write down what you do as you go along so if it's a success...
  21. nettiebeads
    No one else in my immediate family has celiac disease, but my mother's brother was definitly schizophrenic and one of her aunts was "sent away" (Remember, way back when mental illness was hushed up". I suspect my celiac disease came from my mother's side. No conclusive evidence, other than she's 100% Swedish.
  22. nettiebeads
    I'm not Spanish and I have celiac disease. I believe most of the medical community thinks it's those with NORTHERN European heritage that have the problem. Like Swedes (me - 50% swedish). A (good) dr. should never laugh at a patient's desire to see a specialist. I don't understand your dr at all. There is no logic in his thinking - okay, celiac disease...
  23. nettiebeads
    I think Nini's advice is very good. If you have had some success with the gluten-free diet, then I strongly suspect celiac disease. But there may be someother problems probably caused by celiac disease that have to be addressed. Off the subject, my 3rd ex was a huge rush fan, now I can't listen to them.
  24. nettiebeads
    I vaguely remember studying the immune system in biology 101 and found it was a most interesting topic. Advanced medicine and research still can't figure out why people get allergic reactions to some things, but not others, and allergies do run in families, but the different members will have different allergies. My instructor said that if the why of allergic...
  25. nettiebeads
    No, you don't have to have any extreme symptoms for it to be celiac disease. Some people can be asymptomatic and still have celiac disease. There are about 200 symptoms and all of them can appear at different levels - very mild to severe. I think you are blessed to have a dr. who went straight to the not-so-mainstream dx of IBS. When will you be tested...
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