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CaliSparrow

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Everything posted by CaliSparrow

  1. CaliSparrow
    I've sometimes thought I have Lupus. According to the Internet, all it takes to be healthy is to avoid gluten. Little did I know the road ahead with this thing. I have to look back to appreciate that I'm not as sick as I was a few years ago and thank goodness for that.
  2. CaliSparrow
    Thank you guys. I went to a cardiologist in '11 and he told me I had a leaky valve that I shouldn't worry about as long as I didn't shoot up with street drugs. He also said I had a benign arrythmia. This was before I discovered gluten was my problem. He also didn't think anything was wrong with me when I walked in and then looked sheepish when he called...
  3. CaliSparrow
    I need to get this out and don't want to share this with my loved ones. I'm worried about what damage has been done to my heart by all of this illness and stress I've been through. My doctor confirmed the "bubbles" I'd been experiencing were palpitations. I honestly thought they were bubbles - I guess I watch too many movies. I have had arrythmia since...
  4. CaliSparrow
  5. CaliSparrow
    My doctor is going to call the Mastocytosis Society. She said she has one other patient with it and that in the past, it was believed to be very rare. She is fully on board with trying out the newly proposed testing. She believes after looking at my file that I'm a good candidate for it but it didn't get me out of seeing the cardiologist. Slow heart rate...
  6. CaliSparrow
    [quote name="Waitingindreams" timestamp="1398709778"]Have you thought of trying paleo bread? It is grain free..it typically contains almond and/or coconut flour. You might be able to find some in the freezer section of one of the health stores near you! It's pricey at about $10.00 a loaf, but personally I like it a lot and if you're used to not eating bread...
  7. CaliSparrow
    Oh! I meant labORATORIES like Quest or LabWest! I guess I'll just send this to my doctor and let her figure that part out.
  8. CaliSparrow
    That must have been the page right after I got scared or bored Thank you both!!
  9. CaliSparrow
    Hi T.H. Thank you! I will send this to her. Do you know what labs perform this test or how I can find this out? I didn't see anything on the website. Karen
  10. CaliSparrow
    Hi Jess, My doctor is familiar with MCAS but unfamiliar with the tests you suggest. She is open to calling Quest or an independent lab to inquire about them. In the past, she has used a panel of labs from Dunnywood labs that looks at histamine, diamine oxidase, and zonulin activity. She is leaving it up to me. Can you shed some light on these various...
  11. CaliSparrow
    Sara, I hope this appointment goes well for you. Thank you for the update. Lots of luck! Positive energy being sent your way! K
  12. CaliSparrow
    Yum! That's good to know. Whenever I start reading those threads, I mentally check out. I'm assuming if I have these issues, they will make themselves obvious... Maybe on a strong day, I'll do some light reading!
  13. CaliSparrow
    Thanks! I was not in charge of where we ate but the first restaurant, Mikado's at the Marriott accommodated me with success. I spoke with Sean, the manager and and sushi chef who said he'd use a kosher knife. I ate salmon sashimi with nothing else. There was no gluten-free menu but they served a work of art gluten-free birthday dessert for my husband...
  14. CaliSparrow
    Looks like there are lots of good suggestions here. I bought an induction stove and a Koolatron cooler that you can plug into an outlet or the car (adapter included). My trip lasted four days. I took egg whites to eat for breakfast. I precut my veggies for the egg scramble the day before leaving and sealed them as daily servings. (I had a bag of onions...
  15. CaliSparrow
    I know someone who is allergic to a certain fish but only during the springtime when a particular pollen is out. That is so random! I am beginning to believe that stress can cause the body to be more reactive. At least, that's what I'm telling myself . I am not going to reintroduce intolerant foods until my life conditions ease up. I hope it's that simple...
  16. CaliSparrow
    I'm so glad you found success with your MIL. So did I . Happy Birthday!! (Love the gluten traffic cop story!)
  17. CaliSparrow
    I believe it :/
  18. CaliSparrow
    I'm sorry some of your family members were inconsiderate yesterday. Back before I understood how vigilant I had to be, I sent an email to Original Pancake House to find out more about their "gluten-friendly" pancakes (I know, I know). They sent me the most impressive response. They explained all the reasons why they did NOT want me walking in their door...
  19. CaliSparrow
    YES! In another post, I mentioned that I stopped eating out. I've learned how to pack easy food items. For the first time this week, I was driving and thought, "Now this is true emancipation. I don't have to think of stopping to eat; don't have to change my schedule to go eat. I have more spending money not eating out. Have food, will travel! Completely...
  20. CaliSparrow
    Ami - I did the same thing wanting to be sure to care about my body and catch problems before they snowballed. This went on far too long and I didn't want that to happen again! Stay on this lily pad for a while. It's big. In the beginning, the learning process is steep. Healing did take place although, I was unable to realize it at first. I'm 17 months...
  21. CaliSparrow
    I've heard that too! I get night sweats whenever I'm glutened. I didn't have them until after I gave up gluten. A friend told me to have my hormones checked and I'm in the beginning of perimenopause (or squarely in it, the doctor started fading out...). My friends who are in "the menopause" tell me to hang onto my hat.
  22. CaliSparrow
    Better than white knuckling it, I'd say!!
  23. CaliSparrow
    This little guide has helped me: Open Original Shared Link The brain fog hits me first so I walk around dazed and confused for a while before realizing what happened. I stick with soft foods like steamed fish and if I eat veggies, I over cook them. Salt baths relax me if I'm up for it Drink lots of water Most of all, rest and patience (that last one...
  24. CaliSparrow

    Turn It Around

    CaliSparrow posted a blog entry in Inspiration

    I can't get this song out of my head.
  25. CaliSparrow
    This is a short vent. The assisted living my mom is in had a party Thursday night. They have one every month which has been good for the residents and the families. This time, it came right before Easter. I've got to tell them not to put their events so close to a holiday. It's not unusual for the main caregiver to also struggle with their health. There...
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