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mmaccartney

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by mmaccartney

  1. I work in downtown Cleveland OH, around public square and have trouble finding any place to eat. I only know of two places that have or can make food that is gluten-free and DF. They are Au Bon Pain at 600 Superior, and Portcellis Bistro at 1852 East 6th Street. Does anyone know of any other restaurants in downtown Cleveland, preferably close to public...
  2. I've been gluten-free for several years now. The last time I got sick was Christmas eve I think it was 3 years ago. Today, I accidentally ate my wife's leftovers which had Boca Burger in it (Contains Wheat gluten as the 3rd ingredient). I forced myself to vomit about 45 minutes later, but after looking into it, that probably didn't do much more then take...
  3. Wrigley is typically good at ingredient labeling. The ingredients for this product are: Semisweet chocolate (suger, cocoa liquor processed with alkali, cocoa butter, soy (lecithin, natural vanilla flavor),sugar, natural and artificial flavors, acacia, gelatin, confectioner's glaze, corn syrup, and modified corn starch. It does contain the warning...
  4. Look for EREWOHN cereals. They make a great "rice Krispies" alternative that is gluten-free and Nut free, and they just brought out a gluten-free, nut free corn flake cereal!! I order them from Amazon...
  5. All I've been able to do is to purchase gluten-free egg roll wraps and make my own. And no, they are nothing like what I used to enjoy from Chinese restaurants...
  6. The current standards FAILED to dx Celiac in me. All my biopsies were neg. My blood tests showed pos IGG , neg IGA and neg on the rest. Capsule Endoscopy showed patterns pointing towards celiac Enterolab showed positive for Celiac, both from stool and genetic testing. Stopping gluten intake saved my life. It takes years and years to change...
  7. Don't let it hold you back! I had a job that required about 75% travel. So, I rented short term apartments with full kitchens. Extended Stay America has them for around $70 to $100 per night. Sometimes there wasn't one around so I'd have to have a hotel room, small fridge and small microwave. I also kept a kit in my car with pans, hotplates,and everything...
  8. If only they would remove the milk ingredients....sigh... I use the Ranch mix from Lipton...not the standard one, they have a Kosher version that is indeed gluten and dairy free. DO NOT use the Kosher Onion Soup Mix, this one has gluten...the normal one from them does not.
  9. My casein intolerance is all about belching, a sulphur taste/smell, vomintg and diarreah.... It all starts about 2 hours after eating milk and then ends after about 9 hours of hell..
  10. I might be coming in late with my 2 cents... I don't trust restaurants at all. None. I've been glutened too many times to trust anything that I don't make myself in my own kitchen. Maybe I'm going overboard, but I don't think so...I've spent too much time in pain, agony, and the bathroom to take any risks... Heck, one steakhouse I ate at...I am sure...
  11. For those that have DH. Do the skin lesions/blisters only appear when you have been glutened? Or is there some level/amount of lesions/blisters that are always present even if you are gluten-free?
  12. We have lots of allergies too. My household can't have gluten, milk, eggs, peanuts or any other nuts. We keep the house free of any of these items. We cook 95% of our own food. My children can have gluten when they aren't eating at home...just like I can have eggs and nuts outside of the home. The house remains safe for everyone. I can't say it's easy...
  13. casein intolerance is a life long issue. I've been dairy free for some time. I knew I had a dairy problem before I was tested; however I wanted to see if it was lactose or casein. I am sure that I could eat small amounts of dairy without any major symptoms showing up. There is some threshold where if I have too much dairy I will have severe symptoms...
  14. I might be able to make it. I'm east of cleveland so its about 2.5 hrs....however I have freinds in Columbus that I haven't seen in about 6 months....
  15. One of my children drinks apple juice that has added calcium and vitamin D. The other is 4 yrs old and has drank about 4 cups of Silk soymilk every day of his life. He is in the 90th percentile for height and weight and is developing just fine!
  16. I gave up gluten and after about a month I ate a gluten-free cheese pizza that I made myself, and got very sick. I knew immediatly it was the cheese...gave up all dairy after that, and then had myself tested as I wasn't sure if it was lactose or casein that was my problem...unfortunatly for me it was casein so dairy's out for good...
  17. We got a new box of cocoa puffs the other day, and didn't notice until we got home that they now contain wheat! They did label the box properly acording to the new regulations. They even put a small box under the ingredients in bright blue background with white letters (in contrast with the brown/white box) that indicated that change, and caught our...
  18. Thank you for the suggestions. I'll try the Isomil, and I think I know where to find powdered soymilk.... The chicken/vegetable powdered soup base still eludes me though. The Watkins brand beef base is OK, but the chicken has milk in it so that's out...
  19. Book: The Gluten-Free Gourmet - Revised Author: Betty Hagman p. 292 - Creamed Soup Base 1 cup dry milk powder or nondairy substitute Recommends using powdered baby formula (Isomil)...? Has anyone used Isomil for this? Are there other alternatives for non-dairy that anyone has tried with success? 3 tablespoons gluten-free Powdered soup base...
  20. Thanks everyone for your input. Even though all of you are faithful I'm still afraid to try them again as of yet. The other suspect food weas the new rice crust soy cheese pizza from Amy's They have a dedicated area in their facility,...but their food has made me and others sick before. I did contact them and they are sending a sample from tthat production...
  21. We eat Fritos all the time and haven't had any problems.
  22. I've had these several times. The last time I ate them I had a reaction....but this wasn't the only thin I ate that night that could be suspect... Just wondering if anyone has ever had a reaction to this product?? KinniToos Chocolate Vanilla Sanwich Cookies
  23. I just had this problem on an international flight. I tried to biring canned food, soymilk, etc on board. I explained to them the medical need, but they still wouldn't allow it as I had no documentation to prove it. Do this. Have your doctor write a letter on their letterhead paper, indicate your condition, and the need for special dietary considerations...
  24. My family has used the product for several years. No reaction to gluten or dairy YET!
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