Lisa

Lisa,

I'm so happy to hear that. Your symptoms sound exactly like mine. You've given me hope.

Any thoughts on what may have helped?

thanks

-RG

In my case, it was the b12 shots that I had once a week for a month, then once a month for six, that stopped the brain fog and a good healthy diet.

I know that I have found myself, at times, being a little lax about the diet after five years, but I never cheat with intent. I do not get sick after cross contact or accidental ingestion. But, that's just me. My theory is that after years of healing, it would take repeated exposure, over an undisclosed time frame to reoccur the damage, where I would be symptomatic.

Are you careful about everything? I do know that long term use of antacids effects your B-12 levels. After four or five years gluten free, this might not be a gluten issue.

I would encourage you to continue to seek medical help.

I'm not sure if Lisa or anyone else on this thread still posts here since i don't post here or even lurk here often.

I have celiac, and have been gluten-free for almost 4 (or maybe 5) years. Over the last year and a half I started noticing that I was having trouble with word recall. Over the last few months I've noticed it's gotten really bad. I've also noticed memory problems, a few pronunciation problems, not being able to finish a sentence, and typing problems.

My GP has me doing b12 shots. I don't have much faith in my GP's diagnostic skills.

My endo, who i trust and respect, said i should see a neurologist to see why it's happening. He said it might be caused by celiac.

So i was wondering if anyone fro this thread had any updates for how they're doing with these types of 'brain fog' issues.

thanks

and happy gluten-free thanksgiving!

Well yes, Lisa is still around , after almost four years.

Ninety-nine percent of my issues, which began this thread are gone. I still have some memory issues, but I don't necessarily attribute that to Celiac.

I do keep up with several people in this tread, and some have ongoing, collateral issues and others are doing quite well.

Anti-gliadin antibodies (AGA) both IgA and IgG

Anti-endomysial antibodies (EMA) - IgA

Anti-tissue transglutaminase antibodies (tTG) - IgA

Total IgA level.

I think that I'm telling you something that you already know. A gluten filled turkey will no longer be safe to eat.

Just tell her that you are learning new things every day. I would bring your own cornish hen to eat with the family. The little kids at my table thought it was wonderful, because I had my own "mini-me".

That's about as good as it gets regarding disclosures! Thank you GottaShi for that.

lm - from just the talk on this tread, not from personal experience.

Hi Kat's Mom and welcome!

Please check out:

www.CeceliasMarketplace.com

www.Triumphdining.com

Both are a great guides to main stream gluten free products. I wasn't available when I was diagnosed, but it will be invaluable to those newly diagnosed.

After sometime, label reading will get you through.

Good luck and welcome again.

Just wondering if Cool Whip is gluten free or not. It's the only kind of whipped topping my family gets for pie for Thanksgiving (my mom hosts) and I'm wondering if I should bring my own instead.

Thanks!

Jen

yup. Cool Whip is a Kraft Product and will list all forms of gluten if included

Open Original Shared Link

I am traveling to Wilmington, NC to visit my mom for Thanksgiving. She was doing all the grocery shopping this weekend (after I gave her the gluten free list!). She went to the grocery store closest to her -- it was a Harris Teeter. She spoke to the butcher there and asked him which turkeys were gluten free and he said the only ones he knew for sure that were gluten free were the organic ones. And of course, they were out of those! Anyone know what brand of turkey is gluten free and where she might be able to get one in Wilmington? Thanks for any help!

The butcher must not be familiar with gluten.

Try www.butterball.com

www.purdue.com

www.jennyo.com

We buy Butterball yearly.

Do Butterball

An easy internet search found this from 2008:

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They look so good. I have used the same mix and added cranraisins and nuts.

The national research organizations recommend that one consume the equivalent of 3-4 slices of bread a day for six to eight weeks to insure accuracy in testing.

I occasionally crave chorizo from my pre-gluten free days. Does anyone know which brands of soy chorizo are gluten free? Is Reynaldo's gluten free?

Not a primary source, but perhaps one of interest:

Open Original Shared Link

North Carolina...

North Carolina is a big state. Swimmr lives on the other end.

Perhaps Chex has removed the gluten free label for the exact reasons discussed in this thread. They no longer will assume the responsibility of the assurance of a gluten free products (although no gluten ingredients are used). And they are under no obligation to do so. This puts the responsibility on the consumer, exactly where it should be.

I read labels and if a company clearly list all ingredients, I'm fine with that. If I consume a product that makes me ill, I don't buy it anymore.

Great inroads have been made in product labeling in just a few short years, but sometimes it's a giant leap backwards.

Nicole,

Refractory Sprue is a very severe diagnosis. I don't think you want to go there, just yet.

I would continue to work with a dietician and be specific when you tackle an elimination diet. A food diary will be helpful.

SUPER site. It will be helpful to so many!

I know of a few people I would like to give them to!

I know a few people who don't have any!

testes."

Yes, you disperse them in the X-ray Department.

OHHHH..this is right up my alley. Being from the Northeast, having moved south was quite an adjustment. One syllable words are two, and vice versa. (that's one right there people saying visA versa...VICE versa) or Real A tor, instead of REAL tor. At a job I had for the longest time I thought a man at work's name was DEEK. It was actually Dick. And FayETTEville is pronounced FAYETTEville. Hell and Hail are both pronounced the same. And instead of "I could use a drink" I MIGHT could use a drink! (HUH?)

Someone who AKS a question instead of ASKING makes me almost explode.

This is fun...

I maybe could think this was funny, if I didn't live in the thick of 'em.

My husband, who grew up in the country in the south, would cook a ham and always said that "we could eat on it" all week. (With tiny table and chairs). You can take the man out of the country, but....

You know how paleness is a system well does that go away when going gluten free? I don't expect to be tan but I look like I'm a corpse..

Due to mineral or vitamin deficiencies, paleness could be a symptom of anemia.

Ha! You guys crack me up.

You had best stay away from the "tickle me elbow" thread then.... those folks are doing some crazy thing with spelling!

The psillies are indeed kArazy.

FUSStrated

...or FLUSTRATED - a combination of flustered and frustrated.

Hi Chris and welcome!

If your girl friend has intestinal damage due to Celiac, it will take some time to heal. Any food will be an issues, gluten free or not.

Be as cautious as possible, eat simply with meat, fish, fresh veggies (cooked well), rice and potatoes. Limit seasonings to salt and pepper until you get the hang of label reading.

She should have her own toaster, and pots and pans should be free of scratches that could hide previous gluten. Meds, vitamins, lipstick, lotions or anything that can get into her mouth should be checked.

With chills and blurry vision, she might be coming down with a bug or the flu. But, it would be worth getting a full metobolic panel done to make sure her thyroid is in good working order or there are no difficiencies.

It's great that she has you in her corner. It's not easy at first, but a good support team, sure makes it easier. Cheers to you!

I can't stand Presidential bad language....."I am going ta work with.." instead of "to".

George #43 was famous for that and now Obama is closely following. A better example should be set.