Lisa

I am sorry that you are going thought such difficulties. Most of us are not doctors, and I would encourage your to continue in your search with medical professionals.

It's not necessary for a doctor to recommend the gluten free diet. It might be something that you might want to try to see if you can get some relief.

Here is some support information:

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Hi Nathan and welcome!

Everyone is different so there is no specific answer to your question. I would keep a food diary and document everything you eat, to include meds, vitamins, toilettress, lotions...in other words, anything that can get into your mouth.

Eat simply. Fish, meat, rice, potato, fresh veggies in the simplest way are your friends. When you feel comfortable, add a little at a time.

Once you get over the hump, it's a lot easier. This is a great place to learn...take a walk around.

Anyone familiar with gluten-free friendly hotels here? Restaurants advice needed too! Thanks

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H! Do a search here. I can't remember details about certain teas, but I do know it's been discussed here.

Don't know about your question, but I do know that antacids will cause receding gums. They are commonly used with bloating issues associated with Celiac.

[b]Latent celiac disease refers specifically to patients who have abnormal antibody blood tests for celiac disease but who have normal small intestines and no signs or symptoms of celiac disease.

Did you have the blood panel for Celiac?

Powdered sugar, should be nothing but 100% pure powder sugar.

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Corn starch can be listed on some brands.

Make sure to check your powdered sugar, some brands have flour in it to keep from sticking together but other brands use corn starch, just check it before using it.

Powdered sugar, should be nothing but 100% pure powder sugar.

Happy Birthday Jess. Celebrate to the fullest.

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This is really too cool not to share... Live feed from the Space Shuttle Atlantis.

Happy Birthday Tiffany! May all your wishes come true (and I bet I know, but won't tell) ! And ditto, on the glad to have your here.

I am afraid Glamour, that you would be doing yourself a disservice by not trying the diet 100%, in conjunctions with medicine, to control your DH. It take time and dedication. And eventually, you will find it's much better than a magic pill.

If you are having trouble with the diet, we can help you along. It's hard, but it does get easier.

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Skin biopsies performed on the affected skin are nearly always positive for IgA deposition.2 Blood tests for antiendomysial or anti-tissue transglutaminase antibodies may also suggest celiac disease.

This NIH statement does not say will also suggest celiac. It says it may suggest. That to me does not mean a definitive diagnosis for Celiac. Is it 100% conclusive that if one has DH, they also have Celiac Disease?

I'm not sure. But, I am sure that other may know more.

Celiac antibodies can attack pretty much any organ of the body.

I agree 100%, a gluten induced autoimmune response can be found in many parts of the body. But when it occurs in the small intestines, it's called Celiac. DH is a gluten induced autoimmune response in the skin, Cerebral Ataxia can effect the muscles and the brain. I'm just saying that where is manifests itself, carries a different name and reference.

I'm just saying that those with Celiac do not necessarily have DH and those with DH do not necessarily have Celiac. Both are controlled by a gluten free diet, but that does not make them the same, in my opinion.

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Dermatitis herpetiformis is an autoimmune disorder characterized by chronic, intensely pruritic (itchy) symmetric groups of vesicles, papules, and wheals (hives), that may occur on the elbows, knees, arms, legs, shoulders, scalp, buttocks, neck, and face. Dermatitis herpetiformis, which is also known as Duhrings’s disease, Brocq-During disease, and dermatitis multiformis, usually occurs in people with celiac disease and well as milder forms of gluten sensitivity, and less often, in people with autoimmune thyroid disorders.

Dermatitis herpetiformis has also been reported to occur in people with vitiligo, type I diabetes, Sjogren’s syndrome, dermatomyositis, and rheumatoid arthritis.

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It has always been my understanding that DH can be present in other autoimmune issues, to include Celiac, but not exclusive too. Celiac Disease takes place in the small intestines and DH is a manifestation of a gluten response on the skin. Both can be controlled by a gluten free diet, but yet, they are not the same.

DH is closely associated with Celiac Disease, but it's not exclusive to Celiac.

Are you having ANOTHER Birthday Deb? My how time flies. Well then, happy birthday to you and many wishes to ya

Hello and welcome!

It is recommended that you continue with a gluten diet until all tests are exhausted. To continue on with the endo, is up to you.

Many people here are self diagnosed and they feel quite comfortable with that choice. A positive dietary response can also be diagnostic of a gluten intolerance or Celiac Disease.

Here is a start:

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This is a great article.

Yeah for You!!! Feeling good, feels great!

Well...there is no specific "Celiac Gene". There are some identified genes that CAN be associated with Celiac as well as other autoimmune disorders.

Thirty percent of the general, non-Celiac, population also carry the gene. If you carry the gene, it is no guarantee that you will ever develop Celiac.

The gene testing can rule out Celiac, but it cannot rule it in.

If you are considering further testing, it's best to remain on a full gluten diet.

My daughter is a full time chemist, doing full time work for a large company. They hired her as a temporary employee, with permanent status in three months. She has worked there for four years, full time-temp. They do not pay her any benefits what so ever, and not required too.

She can't afford a personal plan. Is that the right thing to do?

My husband is a retiree from a major international company and just a letter away from no health insurance, or one day late in a premium or one form overlooked. Private pay at our age, yeah right!

Yes, I do think that reform is in order.

Great minds! I roasted cut up egg plant, zucchini, yellow squash, onions and brussel sprouts, tossed with olive oil and salt and pepper. And served it over some quinoa.

It was a little too "earthy" for my husband though. I thought it was great.