
Lisa
-
Posts
8,691 -
Joined
-
Last visited
-
Days Won
15
Lisa's Achievements
-
-
You can find Panera's Gluten Free opitons on line
www.panerabread.com
-
I'm not sure if this is related to celiac or not. I have been gluten free for about 4 months now but I am still very thirsty causing me to pee a lot. I may pee in the night alone 3-4 times. I've had my blood sugar tested and that was normal. I do not have any problems with my thyroid.
I've been to my doctor numerous times and it was of no help. What could this be and what should I get checked out?
I have long forgotten my source for this, but it's my understanding that you absorb 75% of the fluid intake in your small intestines. If you have villi damage, it's a reasonable cause for extra ordinary thirst. I experienced this in the early stages after my diagnosis.
Listen to you body. But maybe you can concentrate your fluids earlier in the day, so you can sleep at night.
-
As a side note, my preference would be for the phrase "gluten sensitivity" versus "gluten intolerance" to avoid the confusion with digestive intolerances like lactose intolerance. The Dr. Green quote above switches between the terms. From what I've read, Enterolab uses gluten sensitivity.
I agree tremendously Tim. The interchange between "gluten sensitivity" and "gluten intolerance" have created great misunderstanding, confusion and frustration here on C.com for the many years that I have been involved.
-
www.triumphdining.com
...has a Grocery Guide. It's a great asset for the first year after a diagnosis. After that, you should be able to read labels. Lists are great in the beginning, but ingredients change frequently and then they become unreliable. Truimph puts out a new listing annually. But reading labels is essential in the long run.
-
Any time you eat at a fast food restaurant you should assume the risk. Even though a product may be considered gluten free, the risk for cross contamination is great.
I don't mangers would intentially lie to you about their proceedures.
Have you considered a dairy issues? Especially if you are new to the diet and have not healed. Or, if you have not healed ANY food, gluten free or not, could be an issue.
-
https://www.celiac.com/articles/21567/1/Ten...ting/Page1.html
Laboratories in the U.S. that are known to offer complete alpha and beta subunit genetic testing include Kimball Genetics, Prometheus, and LabCorp. Bonfils, Quest and Enterolab only test for the beta subunit portions and therefore their test can miss part of a minor alpha subunit that carries a risk of Celiac disease. A negative DQ2 and DQ8 report from these labs may not necessarily be truly negative for the risk of Celiac disease.
As noted previously, gene testing for Celiac Disease can only indicate an estimated percentile for risk. It may be a piece of the puzzle, but it cannot determine whether you will or have Celiac Disease.
-
This is one place I saw that information:
Open Original Shared Link
and I'm pretty sure I saw it somewhere else, too.
Ah yes, glutenous wine barrels comes up from time to time. Until wine manufactures are subject to the full disclosures as in foods, we might not ever know whats in that bottle. But, I would assume that IF there was residual gluten from a wine barrel that it would be so insignificant. Common sense would imply that you don't contaminate good wine with wheat, which is one of the main allergens.
I do know, that there are many, many people on this forum who drink wine regularly without issue. I expect that it's rare to find a product where no celiac will have a reaction. We vary in our sensitivity enormously.
I can't think of a better treat than a good meal and a good bottle of wine.
-
I have not seen information specific to boxed wine, but wine is naturally gluten free. Wine Coolers need to be checked, because not all are gluten free.
Here is a list of safe alcohols:
https://www.celiac.com/articles/222/1/Glute...ages/Page1.html
-
Here are some list that may be helpful:
https://www.celiac.com/categories/Safe-Glut...3B-Ingredients/
Here is a list of company who will clearly list wheat, barley, malt and rye:
Open Original Shared Link
And welcome. This is a good place to be.
-
The prospect of beginning a gluten free life style for your daughter may be daunting to you at this time, but there have been many, many studies that children with Autism greatly improve on the gluten free diet, let alone that her number of increasing. Here are a couple articles.
Open Original Shared Link
Open Original Shared Link
Not one of us can walk in your shoes. But, I think you may be surprised to see some behaviour improvements on the gluten free diet. So it might not be as overwhelming as you anticipate.
We can take you through the diet, step by step. That's why we're here.
-
This is exactly what I said, but she said that was not true....that something can actually be gluten-free, as in alchol, but still cause a reaction, because of the wheat
Even though, distilled alcohol is considered safe for Celiac to consume, I have known several super sensitve who will react to distilled grain based fluids, even though no detectable level remains.
So maybe this debate may not have a conclusion?
Maybe some people have to determine what level is safe for them.
-
A product cannot be gluten free and contain a detectable level of wheat.
A product can be wheat free, yet not gluten free.
-
I know that Dixie has confirmed that their paper products contain trace amounts of gluten.
Does anyone know of SAFE paper plates? I have heard multiple people having reactions after microwaving food on paper plates.
Is styrofoam safe?
To clear up some ongoing confusion, it's a good to contact the manufacturer directly. Here is Georgia-Pacific's quick response to my question regarding Dixie Paper Products. False information can be spread fear needlessly:
Thank you for contacting the Georgia-Pacific Consumer Response Center.
Georgia-Pacific places tremendous importance on the feedback we receive from our
consumers.
Georgia-Pacific Corporation tissues, towels, napkins and Dixie products do not
contain any wheat, rye, barley, oats, or any of their byproducts.
Again, thank you!
Consumer Response Center
gpcrc@gapac.com | 800-283-5547
-
Ref #587064
-
Lemonade?
Ice Cream
Those frozen icees
Popcorn (if we watch a movie)
Chips??
Salsa
Lemonade - Country Time, Chrystal Light
Ice Cream - Most of Edy's (read label)
Ices?
Popcorn - Newman's Own Micro Butter, Light, Natural Tender White and White Cheddar
Chips - Chi-Chi's - All
Salsa - Pace - All Picante Sauce, Newman's Own - Most (read label)
There are other brand named products that are gluten free. These are generally available.
Enjoy
-
will I mess myself up for any tests by going gluten-free?
Yes is the answer to that question. Keep on a full gluten diet until you have exhausted all testing for the optimum accuracy.
-
I have never heard of a paper plate containing gluten.
-
That is certainly not a stupid question and it's been asked quite a bit here. Shampoos and body washes should be gluten free because there is a chance of getting into your mouth while you bath or shower.
Feel free to ask way. The learning curve is very steep when your tackling a new lifestyle. This is a great place to ask for help.
-
Yes there is a second page. Look for the page numbers under the Subscribe to free alerts notice
Here's the link to the second page:
https://www.celiac.com/articles/227/2/A-Lis...ters/Page2.html
Yes, there it is. Thanks Darn210. It IS hard to notice.
-
I'm not quite sure which one you're referring too. Here are several links found on celiac.com:
https://www.celiac.com/categories/Celiac-Di...-Organizations/
This one stops on Montana. We can inquire with the site Administrator:
https://www.celiac.com/articles/227/1/A-Lis...ters/Page1.html
-
I will attempt to answer all your questions from the ground up.
Celiac is an autoimmune disorder. Consuming gluten triggers an autoimmune response, which will turn your body against itself. This occurs in the small intestine. There are some other foods that can create the same response by destroying the villi, but I believe it is rare.
If I understand correctly, your have been tested for allergies. Celiac Disease, gluten intolerance and a gluten allergy are different, but common in the sense that they respond to gluten.
I am not a fan of Enterolabs. The national Celiac organizations do not recognize stool testing as a reliable source to diagnose at this time. To my knowledge, there has never been an independent study regarding the accuracy in their testing. And it's a great deal of money to tell you what you already know....that you have issues with gluten or other foods. On the bottom of their interpretation, they often suggest that every first degree family member should be tested (at $500.00 a pop). Their genetic testing can do nothing specific, but to tell you that you cannot have Celiac because you do not have the appropriate genes. There is no specific Celiac gene. They merely inform you that you might have a increased risk - nothing more.
I do acknowledge that some people have exhausted all forms of testing and Enterolabs may have been a crucial piece of the puzzle. Many people sing their praises. I'm just not one of them.
Unfortunately, testing is not what we would like at this time. I suggest that people who suspect a gluten problem, have a full serologic panel and an endoscopy/biopsy. Anytime someone has digestive issues, and many here have for years and years, it's a good rule of thumb to have these tests to rule out more serious issues.
What ever direction you choose, I wish you success.
-
I did a search for Cadbury - gluten Free and this is what I found. I do not know how current this information is or whether it is a Canadian, European or US listing and it may differ. You might want to dig deeper, so you children can enjoy the cake:
Open Original Shared Link
-
. I did the complete Celiac panel and also the Dairy and Egg test too. www.enterolab.com
I don't believe that Enterolabs offers a "Celiac Panel". They can test you for a gluten sensitivity, but cannot test for Celiac. Never have.
-
Yes, Cheers to you Peter!
-
I think that you will find a larger portion of members here self-diagnosed or have a spectrum of gluten intolerance, than those with MD diagnosed Celiac Disease.
It would be interesting to run a poll.
Campbell's - Canadian Products With No Added Gluten
in Introduce Yourself / Share Stuff
Posted
Campbell's CANADA and Campbell's US have TWO ENTIRELY DIFFERENT LISTING.
Campbell's CANADA has serveral gluten free products which are not in the US.
Thank you for posting this for all our Canadian friends.