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Lisa

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Lisa last won the day on December 26 2018

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  1. I'm not sure if this is related to celiac or not. I have been gluten free for about 4 months now but I am still very thirsty causing me to pee a lot. I may pee in the night alone 3-4 times. I've had my blood sugar tested and that was normal. I do not have any problems with my thyroid.

    I've been to my doctor numerous times and it was of no help. What could this be and what should I get checked out?

    I have long forgotten my source for this, but it's my understanding that you absorb 75% of the fluid intake in your small intestines. If you have villi damage, it's a reasonable cause for extra ordinary thirst. I experienced this in the early stages after my diagnosis.

    Listen to you body. But maybe you can concentrate your fluids earlier in the day, so you can sleep at night.

  2. As a side note, my preference would be for the phrase "gluten sensitivity" versus "gluten intolerance" to avoid the confusion with digestive intolerances like lactose intolerance. The Dr. Green quote above switches between the terms. From what I've read, Enterolab uses gluten sensitivity.

    I agree tremendously Tim. The interchange between "gluten sensitivity" and "gluten intolerance" have created great misunderstanding, confusion and frustration here on C.com for the many years that I have been involved.

  3. Any time you eat at a fast food restaurant you should assume the risk. Even though a product may be considered gluten free, the risk for cross contamination is great.

    I don't mangers would intentially lie to you about their proceedures.

    Have you considered a dairy issues? Especially if you are new to the diet and have not healed. Or, if you have not healed ANY food, gluten free or not, could be an issue.

  4. https://www.celiac.com/articles/21567/1/Ten...ting/Page1.html

    Laboratories in the U.S. that are known to offer complete alpha and beta subunit genetic testing include Kimball Genetics, Prometheus, and LabCorp. Bonfils, Quest and Enterolab only test for the beta subunit portions and therefore their test can miss part of a minor alpha subunit that carries a risk of Celiac disease. A negative DQ2 and DQ8 report from these labs may not necessarily be truly negative for the risk of Celiac disease.

    As noted previously, gene testing for Celiac Disease can only indicate an estimated percentile for risk. It may be a piece of the puzzle, but it cannot determine whether you will or have Celiac Disease.

  5. This is one place I saw that information:

    Open Original Shared Link

    and I'm pretty sure I saw it somewhere else, too.

    Ah yes, glutenous wine barrels comes up from time to time. Until wine manufactures are subject to the full disclosures as in foods, we might not ever know whats in that bottle. But, I would assume that IF there was residual gluten from a wine barrel that it would be so insignificant. Common sense would imply that you don't contaminate good wine with wheat, which is one of the main allergens.

    I do know, that there are many, many people on this forum who drink wine regularly without issue. I expect that it's rare to find a product where no celiac will have a reaction. We vary in our sensitivity enormously.

    I can't think of a better treat than a good meal and a good bottle of wine.

  6. The prospect of beginning a gluten free life style for your daughter may be daunting to you at this time, but there have been many, many studies that children with Autism greatly improve on the gluten free diet, let alone that her number of increasing. Here are a couple articles.

    Open Original Shared Link

    Open Original Shared Link

    Not one of us can walk in your shoes. But, I think you may be surprised to see some behaviour improvements on the gluten free diet. So it might not be as overwhelming as you anticipate.

    We can take you through the diet, step by step. That's why we're here.

  7. This is exactly what I said, but she said that was not true....that something can actually be gluten-free, as in alchol, but still cause a reaction, because of the wheat <_<

    Even though, distilled alcohol is considered safe for Celiac to consume, I have known several super sensitve who will react to distilled grain based fluids, even though no detectable level remains.

    So maybe this debate may not have a conclusion? :( Maybe some people have to determine what level is safe for them.

  8. I know that Dixie has confirmed that their paper products contain trace amounts of gluten.

    Does anyone know of SAFE paper plates? I have heard multiple people having reactions after microwaving food on paper plates.

    Is styrofoam safe?

    To clear up some ongoing confusion, it's a good to contact the manufacturer directly. Here is Georgia-Pacific's quick response to my question regarding Dixie Paper Products. False information can be spread fear needlessly:

    Thank you for contacting the Georgia-Pacific Consumer Response Center.

    Georgia-Pacific places tremendous importance on the feedback we receive from our

    consumers.

    Georgia-Pacific Corporation tissues, towels, napkins and Dixie products do not

    contain any wheat, rye, barley, oats, or any of their byproducts.

    Again, thank you!

    Consumer Response Center

    gpcrc@gapac.com | 800-283-5547

    -

    Ref #587064

  9. Lemonade?

    Ice Cream

    Those frozen icees

    Popcorn (if we watch a movie)

    Chips??

    Salsa

    Lemonade - Country Time, Chrystal Light

    Ice Cream - Most of Edy's (read label)

    Ices?

    Popcorn - Newman's Own Micro Butter, Light, Natural Tender White and White Cheddar

    Chips - Chi-Chi's - All

    Salsa - Pace - All Picante Sauce, Newman's Own - Most (read label)

    There are other brand named products that are gluten free. These are generally available.

    Enjoy

  10. I will attempt to answer all your questions from the ground up.

    Celiac is an autoimmune disorder. Consuming gluten triggers an autoimmune response, which will turn your body against itself. This occurs in the small intestine. There are some other foods that can create the same response by destroying the villi, but I believe it is rare.

    If I understand correctly, your have been tested for allergies. Celiac Disease, gluten intolerance and a gluten allergy are different, but common in the sense that they respond to gluten.

    I am not a fan of Enterolabs. The national Celiac organizations do not recognize stool testing as a reliable source to diagnose at this time. To my knowledge, there has never been an independent study regarding the accuracy in their testing. And it's a great deal of money to tell you what you already know....that you have issues with gluten or other foods. On the bottom of their interpretation, they often suggest that every first degree family member should be tested (at $500.00 a pop). Their genetic testing can do nothing specific, but to tell you that you cannot have Celiac because you do not have the appropriate genes. There is no specific Celiac gene. They merely inform you that you might have a increased risk - nothing more.

    I do acknowledge that some people have exhausted all forms of testing and Enterolabs may have been a crucial piece of the puzzle. Many people sing their praises. I'm just not one of them.

    Unfortunately, testing is not what we would like at this time. I suggest that people who suspect a gluten problem, have a full serologic panel and an endoscopy/biopsy. Anytime someone has digestive issues, and many here have for years and years, it's a good rule of thumb to have these tests to rule out more serious issues.

    What ever direction you choose, I wish you success.

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