Lisa

Hershey will not disclose it's source for "Natural Flavors" in any of their products, and thus, will not consider these products to be gluten free.

Here is a list of companies who will clearly list all gluten (as in wheat, rye, barley and malt):

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Learning to read labels will be the key to your success. It does get easier.

I posted a question and a response or two...but, I never really introduced myself. Looking back, I guess I have been a celiac for three years. My symptoms started after I had my fourth surgery. I have seen multiple doctors and have done hours and hours of research trying to find out what was wrong with me. My recent bloodwork just came back negative for a celiac allergy. But, I also have been on a gluten free diet for about six months (with the occasional slip-up**See my restaurant post). One doctor told me to "just get married and my problems will go away." He said my problems were from IBS and stress. However, after seeing a nutrionist who put me on a strict IBS diet, I landed up on the floor in total pain after eating artichoke pasta. Little by little it became clear what was going on...at first very confusing (look at my tummy it looks like I'm pregnant. oh geez I gained five pounds overnight. the trips to the bathroom, the sudden milk intolerance) Anyway I was really feeling great two days ago...i was on a gluten free high. But tonight I am down in the dumps. I read a post about a lady crying in a detox tub...that is how I feel right about now. Anyway, sometimes it feels really lonely (I don't know any body around with it...the one person I do know is hesitant to talk about it) I guess I just wanted to talk to other people out there who can relate. Thanks for the forum...I like reading it....it is so very helpful.

We have all been where you have. I did have to laugh at your doctors saying "just get married and your problems will go away". I wonder where he was coming from with that statement.

You are not alone. I have been hanging around here for two and half years and I have learned everything I know about Celiac from here. My medical community was of no help to me. And, I have made some really wonderful friends.

I hope you feel at home here.

Welcome to the Club! You have found yourself the best source of Celiac information around.

The best advise I can give you is to start simple. Simple meats, seafood, rice, potatoes, fresh veggies and fruits. Limit your seasonings to salt and pepper until you learn what you can expand upon. Wheat, barley, malt, rye and oats are your enemy.

Your old toaster, chopping block, and scratched pots and pans are subject to serious cross contamination as gluten can hide everywhere.

Anything that you can put in your mouth must be checked for gluten, including your shampoo and lip balm or lipsticks.

If this is overwhelming to you, it's because it is! The beginning is very difficult and the learning curve is steep. With the help of these good folks here, they can teach you everything you need to know. Questions are always welcome.

Recovery is different with every one. For a totally recovery, it took me a full two years, with initial improvement within a month or so. It also is correlated to the level of damage. Good health can be yours again with diligence with the gluten free diet. It will get better and you have come to a wonderful place.

I don't think so in regards to appliances. Pots and pans are another thing. Leftover residue may exist. A good clean washing would help. I never felt the need to buy new pots and pans. I do cook wheat pasta in a special pot for other family members.

"When I was at my chiro's for an appt. she put some wheat grains in my hand and I reacted to it. The same thing with sugar. She told me if I'm not careful I could end up getting Celiac "

...Now, I have heard a lot of things, but this is the first time I've heard this. Celiac is not a virus, you can't catch it. It is an autoimmune disease that you are predisposed to and it is often inherited. With over 200 symptoms, you mentioned a few,

If you are going to pursue testing, you must continue to eat gluten up until your testing is finished. This is the panel of test that your doctor should order:

Anti-gliadin antibodies (AGA) both IgA and IgG

Anti-endomysial antibodies (EMA) - IgA

Anti-tissue transglutaminase antibodies (tTG) - IgA

Total IgA level.

Welcome to the forum. It's the best place to learn about Celiac and other associated issues.

Thank you Momma Gooose. This information will help me add lots of items to my very basic earthquake emergency kit.

You're welcome. Hurricane season is about to begin here.

EDUCATION & AWARENESS

Planning Ahead: Creating a Gluten-Free Emergency Kit

By Linda King

NFCA Volunteer

The idea of a gluten-free survival kit became important to me recently as my family was subject to some of the floods that made their way across the Midwestern states. Suddenly, we found ourselves with almost two feet of water in our basement for a total of 48 hours. We lost heat, hot water and electricity while working really hard to keep our positive mindset! After all, no one was injured, but instead we temporarily lost the conveniences that we depend upon, including those to help us prepare gluten-free meals for our family.

Now that heat, water and electricity are restored to our family home, I've browsed some Internet resources to help put together a gluten-free emergency kit, in the event that our house is flooded again. I am hoping that we won't need this kit, as one flood was more than enough.

The outline below is adapted from the American Red Cross (www.redcross.org/services/disaster). The gluten-free food items were collected from manufacturer websites and the Delphi forum product lists.

There are essentials that we all need in any kind of emergency situation, whether or not we live gluten-free. These include water, food, first aid kit, non-prescription drugs, tools and supplies, sanitation, clothing and bedding.

Below, I focused on the food details and what brands will accommodate the emergency survival kit guidelines. Please check all labels when choosing items for your emergency kit, as labels can change anytime.

FOOD

Store at least a three-day supply of non-perishable food. Select foods that require no refrigeration, preparation or cooking, and little or no water. If you must heat food, pack a can of sterno. Select food items that are compact and lightweight. Include a selection of the following foods in your Disaster Supplies Kit:

Ready-to-eat canned meats, fruits, and vegetables

Canned juices

Staples (salt, sugar, pepper, spices, etc.)

High energy foods

Vitamins

Food for infants

Comfort/stress foods

Ready-to-eat canned meats

HORMEL

Hershey is not a reliable company. They will not disclose whether their products are gluten free due to propriety ingredient information from their suppliers. It more important to be loyal to their suppliers than the millions of people who buy their products.

Here is a list of companies who will clearly disclose all forms of gluten:

Open Original Shared Link

If you have Dermatitis Herpetiformis, you do have Celiac Disease. A doctor can biopsy these blisters during an outbreak for a diagnosis.

"There are no gluten-free items better than gluten ones."

Luckily lm, my memory is fading. I can't remember what a gluteny waffle is.

Vans are great. I have two every morning toasted with melted peanut butter and orange marmalade. I am so addicted.

Prilosec is gluten free as is the generic Omeprezole. Here is a listing of gluten free meds.

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Some companies will have a CYA statement, but you have to made that judgement for yourself.

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Prozac is on this listing.

I have had to remind myself that all ills are not gluten related. Perhaps it's something else.

Pamela's Chocolate Cake Mix and Brownie Mix imo taste better than any cake/brownies that are gluten filled.

Namaste Spice Mix makes an amazing spice cake (or carrot cake variation), full of flavor and so moist, better than the real thing.

Yeah, Julie and I have a thing for Pamela's Chocolate Cake Mix and Brownies. On my list for tomorrow.

The only running I've done is to the bathroom.

I wanted to welcome you. This is the best site around for information regarding Celiac and other associated issues. You are wise to continue to eat gluten prior to your testing.

Thanks for posting that. That is why reading labels is the only way to insure you and your families safety. Products change ingredients and passed on information may not be reliable.

Hope everyone feels better soon.

Here is a list of companies who will clearly list all forms of gluten, as in "wheat, rye, barley and malt". It will help you find a good barbeque sauce.

Open Original Shared Link

I have been blogging for a long time and have just started my Celiac blog. Does anyone else have one? I am looking for more bloggers.

survivingceliac.blogspot.com

Welcome bareden,

This is a great site with invaluable information regarding Celiac and associated illnesses.

I would welcome you to review the Board Rules. This site has an entire section of blogs and you are welcome to post there or list your blog/personal website on your personal profile page. Many people have listed some great information as they continue their blogs.

Glad to have you join us and looking forward to viewing your blog in the blog section.

Julie,

I think the risk of inherited Celiac is around 20%.

Accurate testing in children is highly unreliable. There are many threads here about breastfeeding and when to introduce gluten. Try a search.

And, congratulations.

Vinegar is gluten free with the exception of Malt Vinegar. (although some sensitive people here do react).

Don't know about that product, but artificial ingredients generally should not be a problem because it's "artificial" and not natural as in wheat, barley, rye and malt - more chemical.

I do know that Poppy-Cock Original is gluten free. I assume that they are very similar.

Could you please back up you opinion that colon cleansing can be very bad? I would like to know what you mean. Thanks.

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Obviously, there are various degrees and methods of cleansing. I believe that some should be approached with caution.

While I value the forum and the information that I get, is there a way to filter out all the AD emails I receive every day? Thanks

You can unsubscribe your settings to "e-mail notification" on this site. I'm not an expert, but give that a try.

This is a great article/book reviews about poo. It answers many of the questtions asked here at celiac.com.

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