Lisa

You all had me reminiscing back to MY younger days (second oldest phart here, somewhere between Peter and Patti).

As a date at a VMI (nikki - Virginia Military Institute and at the time a totally male institute) I saw Tina Turner WITH IKE. I am sure that it was quite a night for many a maiden

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You might find this interesting. These blood tests can rule celiac IN but cannot rule it OUT. They are well known not to be 100% reliable.

You can follow-up with an endoscopy/biopsy or confirm by a positive dietary response. And, many people here have had gene testing, which will not confirm Celiac, but can inform you of a predisposition.

Twenty percent of individuals with Celiac will pass it on to first degree relatives.

If you are frustrated with the continued medical dismissal, try the diet and if it works for you...great.

TIME

I'm not from Michigan, but just wanted to give you a welcome. You have found an invaluable place for Celiac information and a lot of great people willing to share their stories.

lisa I am sorry that you are feeling so miserable.

You, by far, exceed my expertise and I can only relate to gluten issues. I have heard that Lays Products often get reactions from many people here on this forum through cross contamination. Perhaps the Fritos may be causing your symptoms.

It's awful hard to be a detective. I hope you feel better soon.

So.....dextrose, glucose and caramel color are ALWAYS gluten free even if listed (wheat)?

I have seen these ingredients often and have never been concerned, but rarely have I seen the source listed as (wheat).

Happy Birthday Patti. My all your wishes come true!!!!!!

Got one!

We were hosting the WHOLE neighborhood for dinner, about twenty people. I wanted to do a "Shrimp Boil". I found a recipe in our church cook book and I have have enjoyed this several times at friends homes.

The recipe called for kielbasa, shrimp, corn on the cob, 1 1/2 cups of salt (yes, believe it or not) and a particular brand of shrimp boil. Well, I couldn't find THAT particular shrimp boil, so I substituted Old Bay.

Everyone was served and I finally dished up my plate. I took one bite and spit it out across the table. The entire pot as so saturated in salt that it was totally inedible. AND NO ONE SAID A WORD!!!! Once, I reacted to the dinner, everyone else started to laugh. I had always had a fairly good reputation of cooking well and that's why they all found this to be sooo funny.

Apparently, my substitution of the shrimp boil was the wrong thing to do and I haven't made it sincel This was years ago and all my dear friends STILL refer to this as "The Great American Salt Lick", with great amusement.

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Here is a link to Newman's Own. I always try to buy Newman's products because of their awareness.

I was drooling at your menu description. I'm glad you have a wonderful "event".

I must admit the best restaurant in Maine is about 20 minutes north of Portland in Freeport. Haraseekett Lunch and Lobster is the best. Open seasonally, you dine on picnic tables and watch the lobstermen work and the seals play.

I have no financial intererst in this restaurant, but I feel that I have over the many, many years that my family and I have enjoyed it.

Glad you received a confirmation, but Cranraisins have never bothered me. I used them often in chicken salad and muffins.

Cadbury Mini Eggs are in the Hershey family and are my FAVORITE.... i'm fairly certain that they are gluten free, but just check the ingredients listing

I too recently spoke to customer service and was given a fairly stock answer. I think they must have a wheat or gluten binder or dervied flavouring because my lips and mouth burn lately after eating Yoplait. The "reaction" is brand new with Yoplait so I have no choice but to believe that they changed their product and are not labeling it as they should.

As HAK stated before, I strongly suspect that your reaction was to something other than the Yoplait (unless it was cookies or granola).

Could you have an allergy to dairy? It does sound more like an allergic reaction.

Ohhh, I can't wait for people to respond to this thread! LOL! I want to know about Peeps!

I know that Starbursts and Skittles are.

Peeps are gluten free.

Here is a list of gluten free candy. I believe that it is 2007 update. As noted recently on this site, Cadbury Eggs are NO LONGER GLUTEN FREE.

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Well, the report from endoscopy came back positive for celiac. I am going have doctor give me an order to have vitamin levels tested. Wondering if that will help me figure out why I have constant tingling in arms and legs and balance issues. Also, the fatigue and muscle weakness is a problem and osteoporosis is on a fast pace. Have been putting off taking my Fosamax til tests came in. I was having stomach pain and didn't want to add to it. After reading on the drug and celiac, I'm glad I waited. It can cause problems and lower blood calcium. I'm going to be sure everything checks out before going on it again.

I was reading through Celiac Disease, Hidden Epidemic and the chapter on related autoimmune disease really got my attention. I think my father's side of family carries the celiac gene. I have an aunt and uncle with ideopathic cardiomyopathy. He has had a heart transplant and his sister is on a list for one. An aunt died with cardiomyopathy. I am encouraging them to get tested (without alarming them) and to have their children tested if their tests are positive. There has been a missing link to their heart problems and their inflammation problems.

Does anyone else have this is their family? I know I am starting to feel better, but I think it will take some time to completely heal. I want my daughter to have a healthy full life, as well.

A good blood screening is a wonderful idea. I was low in folic acid and b-12 and that seems to be a frequent issue with celiacs.

I would suspect that the numbness and muscle weakness is due to peripheral neuropathy which has three causes, diabetes, alcohol abuse and other autoimmune issues. This can be reversed through supliments, expressly B-12.

My mothers family always has osteo isses, but my mother died when I was a small child. And every morning finds me with new aches and pains. This is my new medical adventure. My father had had stomach issues all his life and died from a second heart attach at 62. I suspect that the Celiac came from my fathers (Austrian) side.

It sounds like we have similar histories.

Oh... AND WELCOME TO THE CLUB.

Those were some of my pre-diagnosis symptoms. Are you taking any new meds or vitamins? Can you think of something that you repeatedly ingest? Is there any cross contamination from kids, animals, work or home? Could it be from something previously known to be safe and perhaps reformulated? Run through your own checklist.

But, then on the other hands, we do have to remember that all roads don't lead to gluten, so maybe it's a stomach bug

Try some antacids and maybe that might help with the cramping. and lots of water. I hope it passes quickly.

"Rice is a common problem btw for people with a corn allergy (unsure if you're intolerant or allergic?). Some rice is coated with corn which is often considered a processing aid and not listed. Enriched rice is also corned. "

I have never heard of this. Could you please explain or document this statement?

Oh, I do miss Chris. COME BAAAAAACK! and Happy Birthday.

Sorry that you are having a hard time.

Start a food journal. Record everthing that you eat and that will help you find out what the culprit is. Alot of foods can be irritants because you aren't healed.

When I feel bad, I go back to the basics. Simple unprocessed foods. Meats, seafood, rice, fresh veggies, potatoes and fruit.

Hello All-

Does anyone find that Prilosec hurts more than it helps? My doc thinks I should stay on it until I am feeling completely well, but she is very pro-drug. I ran out of the drug and was off of it for 2 days and felt amazingly better. I started it again, and my stomach cramps returned. She has got me so cowed (sp?) that I don't want to address this with her. She thinks this is all in my head. Anyway, I know I need to get a new doc, and I will as soon as I can find one willing to listen to my litany of symptoms and attempted solutions, but for now - has anyone had a similar experience with Prilosec?

I have not had a problem. But, I would reduce your dosage. Too much can add to some digestive problems (ie. cramping, nausea and D).

Many of us have had gastritis included in our diagnosis. Prilosec was a help for me. Now I rarely need it.

I watched it on TV, lol. Does that count??

Nope

We had a great view from the east coast. I couldn't help but wonder what the inhabitants here thought hundreds of years ago.

I wonder if anyone had the opportunity to view the satellite/missile explosion in space?

First off not to offend anyone but you are missing an 'i' in my name. It's JacquIe. WardGirl is what I refer to myself and many other girls who drool over a character on a TV show that we like. And yes we do get locked up in a Ward on a regular bases. It keeps the streets safer

Well, Patti started it!

With Celiac can come with some neurological symptoms. It was difficult to type also and my fingers would be all over the keyboard. Some B-12 and some folic acid seemed to help.

I would think that it's a deficiency of some kind. I would suggest a full metobolic panel to see where you may need suppliments.

Welcome

Psst--you're not Jacque, are you?

Wow Patti, you're good! Hi Jacque.