Lisa

I ttly luv the gluten free chick-fil-a sandwiches. I mean... they rock! But i miss regular chicken nuggets, especially when i am at a friends house spending the night. At sleepovers the options are: pizza, chick-fil-a,pizza

I know i can just say the meal i want, but when the mom says, "Guess what? I am going to buy 2 chicken nugget plates for everyone!!!!!!", what do u do????????????

~Small(12) and pizzaless~

(~Anna Louise~)

Hum, yeah...that's pretty tough. I guess you have to be prepared to pull out something wonderful and gluten free. Times like this will pop up from time to time. Ya gotta handle it with class babe! Then go home and eat 3 plates of Ians Chicken Nuggetts with Ranch dip.

That mom was a little bit thoughtless, but ya can't do anything about that. ( really mean a lot thoughtless)

"From my perspective, getting them to give us completely accurate information 100% of the time so we can make our own informed decisions is the only way we can both live in a world obsessed with things we cannot eat and still be responsible for making safe and healthy choices for ourselves."

.............

Sure, Sandi, that would be great in a perfect world. But the risk is still ours.

It is similar to recommending a certain gluten free product here on this site. We can recommend and give our testimony regarding a product, but in the end it is our responsibility to make sure what we consume is safe for us and our family. In this case, it's an educated choice.

If, indeed those fries were gluten free as listed previously on their website ( and I believe that they are/were) the child got sick from cross contamination. That is our risk to assume when eating out. This as well, is an educated choice.

This is my personal belief.

I had an endoscopy done last week and the GI doctor now wants me to do bloodwork to see if I have Celiac.

Everything I have read said that most have bloodwork done first and then a biopsy to confirm... since I am doing this backwards, wouldn't you think that the biopsy would tell the doctor if I have it? Do you think he is doing the bloodwork just to make sure?

I dont' see him for another 2 weeks and of course, this is all I can think about... it is kinda scary and would like other people's opinion who know what is going on.

Thanks!

Welcome

It does make sense that you doctor has ordered the blood panel. Many times biopsies can be hit and miss. The small intestines are lengthy and it would be easy to overlook effected areas.

This is the Blood Panel that you doctor should order:

Anti-gliadin antibodies (AGA) both IgA and IgG

Anti-endomysial antibodies (EMA) - IgA

Anti-tissue transglutaminase antibodies (tTG) - IgA

Total IgA level.

While you wait, take a walk around this site and learn about the diet. Even if you do not have Celiac, but rather a sensitivity, the gluten free diet is also the way to go.

It is scary, but that's why we are here to help if we can.

Ooops....Forgot to say thank you Respira for this information.

I totally agree with you. I think as Celiacs, we need to bear the responsibility of choosing whether to risk eating out or not. There are so many variables that are totally out of our control when we eat out.

I also agree. Whenever I eat out in a restaurant, I take 100% responsibility for my health, what I choose to order and what I put in my mouth. The risk is mine.

This is not good news for the Celiac Community.

If this law suit trend continues, you can look forward to no more gluten free menus in restaurants, no more gluten free labels on products and no more advancements in gluten free products. Look forward to more CYA statements that will leave you with doubt about what is consumable and what is not.

The fear of the almighty law suit will rob us of all the inroads we have made over the past several years.

McDonald's currently lists their fries as "containing gluten", WHICH HAS BEEN TESTED AS UNDETECTABLE AND SAFE FOR CELIACS TO CONSUME , as a CYA statement. It has often been recommended on this site, that consuming McD's fries is a personal choice.

Hi,

I was diagnosed with Celiac two months ago and have been struggling to find foods that I can really trust. Some companies claim to be gluten free but maybe are not . I am looking for any and all suggestions !!

for example...

1) a source of nuts and nut butters that are definitely not contaminated

2) hemp seeds (Nutiva packages in the same facility that also packages gluten so I don't know if they are totally good or not)

3) Flax seeds

4) Flours

5) Brown rice (Lundberg seems to be good but I am not totally sure)

6) Beans

Any suggestions I would really appreciate. I just discovered that two of my brothers are also allergic to gluten so they would appreciate it too . Thank you so much for taking the time to respond... it really means a lot to me to have some help!

This is a list of companies who will clearly list all gluten:

Open Original Shared Link

Welcome Mindy. Just wanted to say hello. Some of the moms will be here soon.

I was recently dx with celiac disease and I am trying to understand it all. I have read that Kens steakhouse buttermilk ranch dressing both reg. and lite versions are gluten free. I have also been learning about the hidden additives etc.

My question is, is it really gluten free, there are ingredients like maltodextrin, and monosodium glutamate and modified corn starch.

why is maltodextrin bad for you and if its in it why does the co say its gluten free? Can you tell I love my ranch!!

Thanks in advance for any replies.

Jenn

By law if wheat is an ingredient it must be listed. That also means that barley, malt or rye are not required to be listed.

Maltodextrin in the US is derived from corn and it is gluten free.

MSG, although it may not be good for you, it is gluten free.

Modified Corn Starch is also gluten free as the starch is derived from corn.

It does take a while to learn all the tricks about hidden gluten.

I have had Ken's but I don't recall which one.

I believe that Hidden Valley Original Ranch is gluten free. I posted regarding this a short while ago. You can do a search here.

This thread was begun in 2005. Any information provided in 2005 would certainly not be guaranteed/accurate.

Ah, I got a little teary on that one. Out of the mouths of babes. Too bad we can capture that kindness forever.

I used Lame Advertisement very successfully. I smoked for over 30 years and have not had a cigarette in six months with no desire.

I have heard in the news that Lame Advertisement does have some added warnings regarding preexisting depression.

I'm going to hope that, since I had such severe malabsorption problems, I'm not completely healed yet.

Good luck and I hope you have a "successful" test.

I have a different opinion.

If the cheese is a US product and it does not list wheat (required by law) then it should be gluten free. Many, many veined cheeses are started with a synthetic base now. I am sure that there are cases when the starter is wheat based, although it should be listed on the ingredients.

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Post #4 |

This message was posted: Jan 29 2007, 11:41 PM

Many bleu cheeses are started on an artificial culture now. As for the ones started on bread, some do indeed question whether any gluten would transfer. Second, the amount of culture is so tiny compared to the final result, even if the entire culture were gluten (which it wouldn't be), the gluten level still couldn't be measured.

I'm not saying that anybody should adopt my stance, but I just don't worry about bleu cheese any more.

richard

Holly,

Continue what you are doing and try to be totally gluten free. Remember to check you shampoos, meds, lotions and tooth paste, etc.. Two weeks is still a relatively a short time. It can take up to several years to get back to that 100% that you remember. Stick to the diet and keep learning here.

I don't think any cleansing will help you at this time and in fact some that I have heard about can be dangerous.

Hey Debi,

Welcome to the Club! In Virginia Beach you will have great opportunities to find some gluten free products. I'm not too far from you.

I would recommend that you keep your diet simple, naked as we sometimes call it. Meat, seafood, potatoes, rice, fresh veggies and fruit. Eat simply until you learn what products are safe to add.

You should consider getting a new toaster, wooden spoons, replace all scratched pots and pans. Replace that tub of butter or mayo that you used to use on your "real" toast, due to cross contamination.

Call the manufacturers on any vitamins or meds that you may be taking. And just to be on the safe side, use a shampoo and lotions that do not have gluten. We are talking about anything that can get into your mouth.

This initial transition is pretty hard in the beginning. We are here to help with that.

Here is a listing of companies who will clearly list all gluten (ie. wheat, malt, rye, barley):

Open Original Shared Link

Here is a starter guide to Celiac:

Open Original Shared Link

And on a personal note, I have not heard of a dietician who knows more than this site can provide for you. Save your money

Being gluten free for two months, you most likely have had some healing during that time. I don't think a week of gluten can reverse that. Your biopsy may or may not indicate Celiac.

Open Original Shared Link

This is interesting.

Pamela's Chocolate Cake with Rasberry Sauce.....sinfull.

Those little valentine hot red cinnamon heart candies. I'm assuming they are, but I"m wondering if anyone knows for sure so I can give my son's teacher the ok.

Thanks!

PLEASE don't assume anything in this game. Here is a current list of gluten free candies:

http://files.meetup.com/30853/gluten-free%20Candy%2...ober%202007.pdf

Open Original Shared Link

Would Heidi Collins of CNN do as a spokesperson? She has done many PSAs, plublic speaking events and aired several report on CNN.

Ken, you do wonderful work. You are a great advocate!

Morning Kelly,

You might find this link informative:

Open Original Shared Link

Everyone has some very good ideas. I remember three years ago, no one knew what Celiac Disease was nor ever heard the word and gluten sounded like a school supply. The Celiac community has made tremendous inroads in public awareness. Without the strong lobby from groups such as Celiac Sprue Association, Celiac Disease Foundation, GIG, NFCA and many others, the Food Allergen Labeling and Consumer Protection Act of 2006 would never have happened. Product labeling gluten free would not be happening. Gluten free menus in restaurants would only be a wish. The quality and availability of gluten free products could not be found nor consumable. And, without this site, we would all be walking in circles talking to ourselves.

Contact some of these support organizations and offer a contribution or contribute as a local contact person. Be someone who a newbie can rely upon. Take someone to the grocery store, advise on your local medical community, help others in what to order at local restaurants safely, be a friend, hold a hand or sit down with them and have a Redbridge.

There are a lot of people out there advocating for us. Lets tap into those who do and gain strength as a collective whole. I appreciate their work on my behalf.

Hi everyone,

Just alittle input would be greatly appreciated. I have tried to bake two different things the last two days using Bob's Red Mill all purpose flour. A loaf of bread and some brownies and they both tasted horrible. I also allergic to eggs so I used applesauce in place of the egg.

Does anyone have any suggestions as to where to find good recipes?

It seems like I cant eat anything tasty anymore.

Thanks for listening!

Joyce

Recipes have their own section here on the Baking Tips and Recipes Thread.

Hi Lori and welcome:

Here is a list of companies who will clearly list gluten (wheat, barley, rye, malt). It will be a great help while shopping.

Open Original Shared Link