Lisa

A thousand pardons if I offended anyone. After reading every post I honestly believed what I said was on topic. I only meant to offer hope and encouragement to anyone struggling with the issue spiritually, emotionally, or physically. If anyone took it any other way, I am truly sorry.

Sandi,

You did not offend anyone.

I still don't have the view last unread buttons, and I have 19 pages of "new" topics as well. Seems like Momma Lisa Goose is getting special treatment, she's the only one who's back to normal.

...or too dumb to know the difference!

Ok, so I was diagnosed in early June of this year. I had two negative blood tests, and a biopsy that showed lots of white blood cells, and which my doctor said was positive for celiacs.

I have been as damn close to gluten free as I can imagine. Yes, there have been a few slip ups (always when I try to eat out, which is rare now), but at home, I am close to gluten-free as I can be. I've checked shampoos, and other such things. I've called companies. I have read about 15 books on celiac disease and gluten-free. I am doing EVERYTHING I can think of that's right.

So why don't I feel ANY better? The first few weeks, I thought things might be getting better, but now I'm sick ALL the time. Last night I couldn't even get out of bed (except to run to the bathroom every 5 minutes). In the last 2 weeks I've averaged one meal a day (if that) because I can't stomach anything else. What is going on? What am I doing wrong?

All I know is that this is miserable. I think I feel worse than when I was still eating gluten.

Anyone have any suggestions? How long did it take you to start feeling better? What should I do next?

Welcome to the forum!

I would suggest that you go dairy light or eliminate it all together. After some healing time you can introduce it again.

Have you checked your cosmetics, medications, vitamins, shampoo, toothpaste, lotions. Do you use a separate dedicated toaster, old wooded utensils or shared scratched pots and pans.

I have never heard of "a lot of white blood cells as a description/diagnosis for Celiac (not celiacs). I am not sure what they actually look at in a biopsy sample.

Many people take several months to feel better. It's almost impossible to go 100% gluten free over night. There is just too much to learn and there are too many unsuspecting traps.

Try to revisit what you put into your mouth and see if there are some things that you might have missed. And learn as much as you can from this forum, it's your best source.

Its not just Bleu cheese, its any soft cheese. Bleu Cheese is just the most popular. Because Cheese making is an art, and the processes are kept secret, they do not have to list if they use bread to make the cultures for the soft cheese... so none of them can be considered safe... Richly veined cheeses like Maytag blue and Stilton are off limits as well. Thats what I found in the Gluten Free Bible and other gluten-free books I can't rememeber right now!

Now, some of the blue cheeses are made with a synthetic starter, as opposed to wheat starters. I would suggest calling the company. There are many brands of blue cheeses' that are gluten free. I doubt that you daughter is a fan of blue cheese, though.

Most cheeses, soft or hard are gluten free. Kraft is a company that will list all ingredients and a great company to trust. Simply read their label.

Just for the record, everything is fine with me. I don't understand why some have issues and others not?

Thanks Lisa! Is it in a jar or can?

It's in a can and you can find it where all the other soups are in the grocery store.

We can let the Boss know on Monday.

I use Progresso Creamy Mushroom soup. If it's too thin, thicken it up with some corn starch.

I appreciate your opinion, though I do not agree with it. Your church is very compassionate in that it goes out of its way to help you with your gluten intolerance.

Theological discussions have a VERY BAD history on this website as many of us do not share the same beliefs as you or as each other. People don't like being told you think their religion/faith is wrong.

Though I am not a moderator, I thought I'd just point out that we've had a bad history here when theology enters into this type of discussion.

As a moderator, religion does seem to create some volatile discussions on this forum, a bit ironic. It is best for ALL to keep religious beliefs private and to stay on topic.

I'm also in NC if anyone wants to share favorite restaurants, etc. Try Biaggi's in Cary if you are near Raleigh as they have gluten-free pasta on the menu and a knowledgeable staff (I think it's www.biaggis.com) and the World's Best Carrot Cake in Asheville NC (chocolate gluten-free carrot cake, yum). Other options I've found are Bonefish Grille, Carraba's, Chick-Fil-A, and Outback.

My husband surprises me with orders from Foods By George (he orders online) sometimes - pricey but really good.

By the way, I recently discovered that I am having reactions to dairy as well...anyone else have this come on after being diagnosed celiac disease and going gluten-free?

lcmiller,

Welcome! Yes, it is often suggested that those who first go gluten free due to celiac/intolerance to go diary free as well. Dairy is absorbed on the tips of the villi which may have been damaged due to the gluten consumption.

Dairy may be introduced again once the villi are healed.

Progresso's safe + some of Amy's soups (I get them at whole foods) are gluten-free (read the labels).

SOME Progresso soup and SOME of Amy's soup is gluten free. Please read the labels well.

Bonefish Grill

Carrabba's Italian Grille

Old Heidelberg Cafe

Outback....all have gluten free menus.

Generally all raw chicken at the grocery store should be gluten free. If wheat is added to a broth, it is required by law to be listed. Just read the lable.

Premarinaded chicken, needs a very close exam for gluten ingredients.

The Triumph Dining Guide 2006-07 says that ALL BEVERAGES at Chic-fil-A are gluten free - not specific for lemonade.

That's a classic!

This board can certainly not be all things to all people.

I do have to say that overall the people that post here devote a great deal of their time, experience, research and a giving hand to everyone that asks to the best of their ability.

Many companys that I have called "do not add gluten ingrediences"; and therefore, they "do not test and do not guarantee."

This often is a CYA statement and your own personal judgement needs to apply in taking/consuming or not. I normally would consume.

Call them back and ask if it contains any gluten ingrediences, they owe you that at the least.

Yes, it is often suggested that those newly diagnoses eliminate diary until some healing can occur.

After some time you can introduce it.

Smart Balance is diary free. It's a far cry from real butter, but it works.

I think that the chocolate cake mix is better than any Duncan Hines that I remember. I just love it.

Open Original Shared Link

Much better link.

Jess,

Note that this is an October 2007 update. Hope this helps.

LOpen Original Shared Link

Thanks Judy. I deleted my original link. (also I posted TMI )

I clicked on the link on the bottom and was able to view the segment. If that doesn't work, I am helpless to provide answers for viewing this. Maybe Peter can help?

The segments run all week.

I deleted the non-operable link. Please follow this thread for the proper link.

oops double post.