Lisa

Have you tried removing diary?

My suggestion as well.  Dairy can create some of the same symptoms as a gluten intolerance, and most often, it can be reintroduced once intestinal healing can take place.

I like Sam Mills.

And I can't wait to order this:

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When I was in my teens and early college days, I was finally diagnoses with 'spastic colon' for recurring pain just below my right breastbone.  The doctor that finally diagnosed it made the pain appear by pushing a spot in my lower abdomen (weird, right?) and prescribed a muscle relaxant for when the attacks occurred.   By my early 20s it pretty much went away and I thought no more about it.  Then, at 50, I was diagnosed with Celiac, after showing symptoms for maybe 5 years.

 

Are the two related?  Did I really have some sort of mild Celiac all those years?

Your story is close to mine.  Donnatol was prescribed to me  for years.  After 50, my symptoms kicked in and after two months of being housebound,  a GI made a diagnosis, after my biopsy.

I have enjoyed reading this thread. I love a good healthy discusion.

The study does state though that they have full remission of symptoms. So if they a very small amount of unrecovered physical scarring, which is basically what a single study is pointing to, then I don't see the problem. That is like saying that 90% of burn victims have scars. Well no s$#& Sherlock.

 

Another problem with any study of this nature is that the people doing the study do not have complete control of the diet and environment of the participants. This means that there is no way to know what "gluten free" means to each of them. For one it means a completely gluten free house and the strictest of standards eating out, or not eating out at all. For another (me), while I have the strictest of standards eating out, and in my home, I do not have the control I would like and have a shared home, many do. Many eat out frequently, eat things like Domino's pizza and a large amount of fast food and things with a "processed in a facility" warning. And many still are "take the bun off the burger" celiacs. There is simply no distinguishing between them in the study.

Good point.  In addition the "mean average of 16 months" cannot be conclusive that 92% of ALL people with Celiac do not heal....many take years to heal, but often times with great success.

I still couldn't bring myself to use them until I knew for sure so I call the Questions or Comments number on the lable and asked the representitive if these sauces were Celiac safe she looked them both up and said that they both were and that it has been a huge process for them but that all labels from La Choy will have wheat listed in the allergy statement if it is used in anyway in the production of their products.          So crossing my fingers that these sauces are awesome and in no way make me sick....

WOW! THAT WAS A LONG SENTENCE!        I use La Choy almost daily....without issue.

Yep. I recently had a doctor tesll me celiac wasn't an autoimmune disease either, and then he gave me a pamphlet that discussed how eating papaya digestive aids would allow people to eat gluten again.... Uh huh. Riiiiiiight.     

A family member doctor said they are pressured all the time to push pharm's (within the law).  Just as a tire store are solicited to sell the best tires from various tire manufactures. It's just business.

I should have married a doctor.....OH, what a goodie bag I would have.  :lol:

This sounds like one of the new explanations about ncgi??? Have no idea if your friend went through traditional testing, but we read/hear explanations like this all the time on this board re: ncgi.

I do not know what test she has had and I will post them later if I find out.  But, as you all know Non Celiac Gluten Intolerance and Celiac Disease can rival each other in the level of severety of symptoms and damage.

What patients are told, still mystifies me.  This is from a friend....

"Lisa, you are in worse shape than me if you have Celiac. i was heading in that direction and my doc told me if I didn't get off gluten that would probably be my final outcome. Basically, I was having an auto immune reaction to gluten. When I ate it I hurt all over...like rheumatoid (sp) arthritis. Gut also messed up all the time. Anyway..I could go on and on. Feeling so much better though."

...stupid doctor!

This sound slightly familiar.  My doctor tested me for Gallstones, but did not see any in the ultrasound.  The pain was intense in the back and when it appeared to pass (somewhere), the pain radiated to the front and slowly subsided.

Glad you feel better.

Wine is gluten free, but that does not mean that your body can process it successfully. Some can, some can't.

I do love quinoa!  I cook mine in water flavored with chicken boullion, with butter. 

Note that is not a link to the official mcDonald's website. While the info may be good, it may not be up to date. I would always double check with McDonald's.

From their official website:

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When I went a McD's they told me the fries were not safe and they didn't know of anything safe so I asked if they had the salad pre-packed with nothing but the veggies in it, and was told yes. I had a plain salad and no dressing. Not much energy but it least it made it look like I was enjoying lunch with everyone.

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nope, not semen.  just make sure, if you're exchanging various body fluids, that he brushes his teeth really good well.  plus, if he's eating a glutenous sandwich, etc, most guys won't wash their hands after they're done eating and if they have to pee, they're gonna touch their junk, the chain of gluten, lolz if i have my druthers i would like the hubs fresh out of the shower 

I have made three attemps of an anwser...after I read the replies. Funny, but "notme" has the answer and much more.

Applebee's is the most unaware chain of restaurants that I am aware of, regarding serving a gluten intolernant patron.  The management is clueless, the wait staff is clue less and I can't imagine the kitchen   This is based on my local restaurant and a few others that I have had no option, but to attemp a carefull meal....and never with success.

Unfortunately, Applebee's is far down my list, it's not even on my radar.

 Like about everything else, there seems to be no consensus.....

 

TIA! 

This is true!  I can assume that you daughter is currently gluten free.  The old school instruction was a gluten challenge of 12 weeks.  Forturnatly, two to three week appear to be the current norm, with a cracker or two.

But, if your daughter gets so sick on gluten, you must find a doctor who will diagnose her based on those findings.  There is no need to have her suffer, further.  I have often admired parents of children with Celiac. You guys Rock!

Hi Kadee and welcome.

Testing can be very illusive, thus,  it takes an average of 11 years for a proper diagnosis.  Blood test, endoscopy exam and a positive dietary response can all determine a diagnosis.  Were biopsies taken during your endo exam? If so, it might indicate a diagnosis.

I would suggest you begin a full gluten free diet (assuming all testing is complete) and document your response.  If your symptoms subside with time, you can conclude that you are either Non-Celiac Gluten Intollerant or you have Celiac Disease.  Both, are managed by the gluten free diet.

Eat simply.  Meats, fish, fruits, veggies, rice and potatoes.  And keep it simple with salt and pepper.  If you see improvements, you can add a little at a time.  The reason for this is get you gut to heal.  OH!  And dairy.....give it up as well  for at least 30 days.  Dairy can cause symptoms very similar to Celiac, but after some time, it can be successfully reintroduced.

Hope this helps.

This is the full blood panel that you should have been tested for:

Anti-Gliadin (AGA) IgA
Anti-Gliadin (AGA) IgG
Anti-Endomysial (EMA) IgA
Anti-Tissue Transglutaminase (tTG) IgA
Deamidated Gliadin Peptide (DGP) IgA and IgG
Total Serum IgA

If not, perhaps you should try the diet for several months to see if it offers you more comfort.  A positive dietary response can be diagnostic in combination,with/ or blood work and endoscopy/biopsy.

As far as I know, there are no gluten concerns with any artificial sweeteners, including SweetnLow. Whether artificial sweeteners are "safe" is subject to some controversy, but they are gluten-free.

Not, a gluten free worry from me.

As far as I know, there are no gluten concerns with any artificial sweeteners, including SweetnLow. Whether artificial sweeteners are "safe" is subject to some controversy, but they are gluten-free.

No...never a worry for me.

Goya canned beans have been okay for me FWIW

FWIW...?

. The finished product has been independently tested, going back to 2006, and found to contain no detectable gluten. If undetectable gluten from that source is a concern to you, you should not be eating anything at McDonalds (or any other restaurant) because the risk from cross-contamination is far, far higher.

I agree 100%...and I do enjoy McD's french fries and hashbrowns from time to time, with pleasure.   (bold is mine)

With that said...perhaps you could pack your child a full lunch to eat at McD's and allow him to get a milkshake or a sunday.

So' we went to a graduation party Saturday for the daughter of some friends.  Before going to the party I had a salad just in case.  Now, I don't keep my celiac disease a secret but people that don't deal with it everyday do not know how all consuming celiac disease is.  I was diagnosed with breast cancer 5/09/2012 and then I was diagnosed with celiac disease 5/21/2012.  Frankly, the celiac disease is there every moment of every day.  My breast cancer tumor was 8mm, estrogen and progesterone positive(Thank God).  My treatment was lumpectomy, radiation treatment, and tamoxifen for 5 years.  The January  mammogram showed no evidence of disease, next mammogram is in June.  So, even though I worry about recurrence on occasion I feel like I don't have to worry as much about this than the celiac disease.  I do worry about other cancers because of the celiac disease.

 

Anyhow, I was very happy nobody noticed I did not eat any pizza. It was a relief my friend did not have to make a big deal about me not being able to eat pizza and trying to find something I could eat.  I greatly enjoyed being able to visit with all of my former neighbors and watch the teenagers play in the water.

 

I just wanted to share this with yawl because you understand better than anyone else.

 

Good Night

You made it though a social night, with many hidden burdens, and you MADE IT.!  Every day will be better, step by step.

We can walk you though your travels with Celiac and it's not as nearly daunting as the road you have already faced.  I can assure you of that!

You need to turn the can around and read the lables.   Recipes change all the time and they only way to survive a gluten free diet, is to learn to read lables.  Look for wheat, barley or rye on the  ingredient listing,or allergen warning.  Products with simple ingredients are easy to figure out.

Just beans in a can and just beans.....we love garbonzo beans