Lisa

If celiac comes back negative....could gluten intolerance still cause digestive symptoms and other symptoms similar to celiac disease.....or do you have to have villi damage to cause it all??? thanks

You might find this interesting:

https://www.celiac.com/articles/22483/1/Gluten-Can-Cause-GI-Symptoms-in-People-Who-Dont-Have-Celiac/Page1.html

Hi! I've only just been gluten-free for not even two weeks now, but have already experienced quite a bit of symptom relief. Yesterday, my husband and I went to Buffalo Wild Wings for lunch after church. I VERY carefully went over the 'allergin' list to decide on my meal (which should have been not only gluten-free, but dairy free, nut free, soy free, egg free, and corn free), in additon to STRESSING to the waitress that I could NOT have those things. And now today, my back and feet are KILLING me again. They haven't hurt in about a week up until today. Does this sound like possible CC? Or is this still part of the detox process? I've been having insomnia, fatigue, and headaches (all much worse) since I started my elimination diet.

Hi! Any time we eat in restaurants we assume the responsibility of risk. That's just life living with Celiac. I have never been to Buffalo Wild Wings before, but I can assume that they are just like every chain restaurant.

You have only entered the world of gluten free living just a few weeks ago. I don't know your history, but often, it takes weeks, if not months to get your body to settle down after fighting gluten. Most foods can be an irritant until some healing can take place, gluten free or not.

You need some time under your belt, before you can attribute something to cross contamination.

Best advise I can offer is to eat simply with natural foods and keep a food log in the days to come.

Oh, that is just so fantastic. I am so happy for you all

ME TOO!!!! Great job MOM!

You get to pee standing up. But you miss out on the multiple orgasms.

Yeah, that would make sense Peter, you should try one or the other, but not both at the same time.

Good question...I always thought it was in May.

Just a quick note here:

Tums-all are gluten-free except as noted below

Tums Smoothies-Most varieties of TUMS Smoothies are gluten free. Only

TUMS Smoothies Cocoa and Cream contain gluten (5/5/2011)

I just checked out these pills on the Enzymatic Therapy website (they are the manufacturer of "Gluten Defense"). The enzymes in these pills appear to be pancreatic enzymes. As long as one has a healthy pancreas, their own body makes all of these enzymes to start with. None of the enzymes in this pill specifically target gluten or gliadin, just proteins in general.

Thanks for taking the time to do that.

There can definitely be gluten cc issues with canned goods, but at least in my experience, it depends on the product and the brand quite a bit.

Gluten Free canned goods are normally the least of my concerns. I would seek other possible cross contamination sources.

Welcome to the Board!

When you first begin the Gluten Free Diet after some time with major digestive issues, it may be an etended time to restore order to your digestive system. Every food, whether gluten free or not, will be bothersome.

Eat simply, eat fresh and don't worry about cross contamination.

Learn to read labels and listen to your body as you reach toward the road to recovery....life is out there.

Take one step at a time!

Wow, I did not know that! Thank you so much! I've been sitting here salivating over the delicious smells! Yea! Now my roomie doesn't have to eat it all.

SO glad to be of help!!

Hi everyone,

I made chili with "Ol' Hired Hand Six Gun Chili Mixins"... the bag claims "gluten free" but I'm worried about CC.

Anyone ever use this brand? All the ingredients look safe (just spices), but I heard that sometimes wheat is used in stone ground masa flour (another ingredient).

I've searched the Web - can't find any info!

Thanks!

If wheat is used in the processing or an ingredient, it by law, must be listed on the ingredient listing. If you don't see wheat listed, it's not there. ENJOY!

I have often thought that some gluten free clients indulge in the sauce mixture that they combine at the table. I have never, because I always assumed that it was gluten soy sauce they used.

I ask specifically for gluten-free Soy and they are always happy to bring it. Just love Changs It's a treat because we have to drive 1 1/2 hours to enjoy.

Does anyone know if Sweet Baby Ray's Honey Chipotle Barbecue Sauce is gluten free? I thought it was when I bought it, but now I can't find any information on their website and since it's the weekend I can't contact them. I ate it on chicken last night and this morning I have all the symptoms of being glutened. I was doing so good....haven't been glutened in months.....what a set back.

Thanks for any info!

Yes, it is gluten free:

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I'm wondering if there is a difference between refractory and non responsive Celiac Disease. Or are they the same thing? I'm really hoping that I don't have this...

I would think that Non Responsive Celiac Disease, would precede Refractory Sprue.

With Non Responsive, things to look at would be:

Full compliance with the diet.

Eliminating other intolerances.

Eliminating other issues disorders/diseases.

Accuracy in testing/diagnosis.

EXTENDED time to heal.

After extensive testing, refractory may your last diagnosis regarding Celiac...although it may take years to come to that conclusion. I know of one person with Refractory Sprue and she lives a very, very productive life and will continue to do so. But, she loves liver ( ) and proud of it.

It will take years after a diagnosis of Celiac, and documented dietary failure, for a label of "Refractory". Don't think you're there yet.

Keep searching. And keep asking questions.

There is no gluten in contact lens solution. Use the brand her optometrist recommends.

ditto

It's always nice when a company is going out of their way to add that extra information in for our benefit!

A short note to add on for any more sensitive celiacs or those with more severe allergies to wheat/rye/barley (really doesn't matter much for the average celiac, I don't think):

The company is not actually listing every ingredient that is derived from wheat, rye or barley. It is listing every ingredient that is derived from wheat, rye, or barley AND has above a certain level of gluten. If a product is derived from a gluten grain but is considered safe because of low/undetectable gluten content, such as a distilled vinegar, then the company will not list the source grain unless required by law (which I believe it usually is for wheat, at least here in the States). This was per a phone conversation with the company a couple months back.

Most of the time, this isn't an issue, but for those who seem to react to vinegars or hydrolyzed wheat products in the UK and such, this would be something to be aware of.

WELL...this post is a bit of a newbie overload and totally premature.

First step is to remove the gluten from your diet and it's always recommended to choose potato, rice, meats, fish, fresh veggies and fruit until things settle down a bit. Try to stay away from processed gluten free products, because you won't like it. Until you have healed, you can experiment on how those produces suit you.

Put some healing under your belt (literally) and branch out slowly and deliberately. And don't get too overwhelmed by the dialogue. After you're comfortable with the diet you can explore other options if it's just not working for you. I does take time and lots of patience.

ConAgra products will list ANY forms of gluten. You can always count on them. We love these companies. Along with Con Agra...Kraft will always list as well.

Phew!

I was beginning to wonder if I was getting gluten, but couldnt figure out how. I am writing down everything I eat. To help with possible contamination. I email or call on anything new I eat. Im so worried about getting sick again.

I also have canker sores in my mouth, more on my tongue and my teeth are really sensitive. Is this also normal?

I REALLY appreciate your help. I feel quite lost in this huge gluten world.

Have you checked your cosmetics or lip balms, lotions, shampoos....etc. Any thing that can enter your mouth must be gluten free. Do you share a toaster, scratch pots and pans?

It does tend to be quit an overload in the beginning....but, you will get the hang of it in no time. Hang out here and it will ease your tradition, because we have all walked in your shoes.

Yes, Michelle, it is perfectly normal. In fact, it would be abnormal to have completely recovered by now. Healing can go on for years - just look at all the improvement that might be ahead of you And neurological symptoms take longer to resolve than GI symptoms. You are on the right track - keep up the good work.

Yes, so true! Mushroom always offers great advise.

So I've been taking a generic Omeprazole for the last couple of weeks, and have had two reactions from CC in that time. I've gone through everything I've eaten and taken, called manufacturers of meds...and the only conclusion I can come to is something, either CC or a binding agent, in the Omeprazole. I usually get it through a mail order pharmacy (won't do THAT anymore), and it was a different brand when I got it refilled - Dr. Reddy's. When I called Dr Reddy's, they told me that there were no gluten ingredients, but that they receive the ingredients from other sources and could not confirm the ingredients were truly gluten free. The way she described it was that all they do is "put it [the drug] together." Well, that's comforting...

Has anyone else had problems with this brand?

The generic omeprazole that I buy over the counter has no gluten ingredients. I have used it off and on for years.

Some antacids will have a cleansing effect on me (if ya know what I mean) from time to time, but I don't consider the cause from gluten.

I believe that few, if any "filler" ingredients in meds would be sourced from gluten. And the statement from the company is a general CYA statement.

Remembering my gluten free world seven years ago, I'm just grateful for what we have achieved and the future is exciting.

Not sure where to put this but...

What's your favorite online blog or website that has to do with gluten-free and celiacs?

www.celiac.com ?

Here are some blogs that you might find interesting:

https://www.celiac.com/blogs

Nathan's was the only brand (that I'm aware of) that did contain gluten...they no longer do. But, in the US (important to note), most are gluten free. Wheat should be clearly listed, if it's an ingredient. Oscar Meyer, Ball Park, Boars Head, Hillshire Farm's (except the Brats and Beer) are all gluten free.

I haven't been on here in a long time, but I've decided to try the Specific Carbohydrate Diet again. I didn't really do it right the first time as I was only eating meat and the allowable beans, but this time I want to do it the right way and hopefully actually get somewhere this time. What I'm unclear about, however, is the use of dairy and eggs. I did a finger prick blood test for food sensitivities about three years ago and it showed that I am intolerant to eggs, casein and whey from dairy, and wheat gluten. I began avoiding gluten about three weeks ago and it has become clear that I need to do more to heal my intestines. This is where the SCD comes in.

Nearly every recipe in the SCD contains either dairy, eggs, or both. Infact the homemade yogurt is basically the staple of this diet. Since the food sensitivity test three years ago I have only eaten eggs and dairy as ingredients in other things, never as a stand alone meal or addition to a meal, although I have had cheese on several occasions. I can't notice a problem from eating eggs or dairy in this manner.

Does anybody think it would be illadvised to consume these two things in adherence to the diet? I can't handle fruit and vegetables right now, so there really isn't much I can eat. I don't do well with nuts or most oils, either. If I can use eggs and the allowable dairy items it would give me a lot more choices. I can't do the meat and beans thing again. I felt ten times worse only eating those things.

I should also add that I think my gastrologist made me much worse when he prescribed a digestive enzyme called Creon. I took one dose of it and things haven't been even close to right since then. I was able to eat vegetables, fruit, nuts, oils, and even drink caffeine before then. Since then I haven't been able to tolerate any of those. I'm guessing the Creon was like throwing a match in a can of gasoline.

Thanks.

Here is a previous thread:

anyone have negative blood test results and positive endoscopy??

Yes, many here. I guess your blood test is only as good as your lab tech. And false negatives do happen. An endoscopy would tend to be more accurate.

I am newly diagnosed with gluten sensitivity. I have read that non food items such as hand lotion, chap stick, and lipsticks could be a problem. Are there any that are safe? If I call the manufacturers, what questions do I ask?

I'm gonna move your post the the newly diagnosed. I think you will find more relevant information there.

I use chapstick, Mary Kay Lipstick, Lubriderm Lotion.

Look through the product section of this site and you will find lots of stuff. Until you can read labels,it's a great help.

AND a welcome to you! Take a walk around.