I feel sorry for your daughter! Every new symptom needs to be documented, either by you or your daughter. When you have celiac disease for as long as I have, you find all sorts of rashes and headaches and abdominal pains that you never had before. We are not doctors, and neither are you, but it would help your daughter if you could read up on celiac disease as much as possible. Unfortunately, it is a connective tissue disease, which as such can mimic other connective tissue diseases. I would ask you if you have tried any milk other than dairy, like coconut milk or some of the other great milks they have now... just to see if she has an allergy to dairy. This is only a possibility, but worth trying since you have to pay to see a specialist. Scott Adams, our Editor has so much research on file regarding celiac disease and its favorite connective tissue disease. You will read up about dairy allergies, and also about thyroid disease, because these two seem to "pop" up time and time again with celiac disease. There are so many things to cause headaches, such as needing glasses. Of course then you say, "But she only has headaches when she eats". Can you possibly keep a diary as to what she has eaten that day...in order to eliminate other foods she may be allergic to. So many questions;- "Has she been sleeping on a different pillow, like a feather pillow, have you bought a new family pet, especially a cat with the dander from its fur. Is there a trigger point when the headaches strike. I get headaches when I have been glutened, but I have had celiac disease for so long I can almost tell what has attacked me, or made me go on the hunt for the culprit. If you have medical coverage it might be worth while getting a referral naturopath or a specialist. Many people who have celiac disease also find they are allergic to cows milk and even cheese. You could go on line to the University of Chicago, Celiac Disease Centre and ask one of the research team there if they have some suggestions. Sadly, they have restricted joining their newsletter to the medical facility, and even checked my background prior to admitting me. If you know someone who is a nurse, you could possibly get them to help you, or last choice, go on the internet and ask the question. They come up with lots of suggestions, but primarily they will mention dairy allergy right along with dust mites and the Spring allergy season we are in right now.