Celiac.com Sponsor (A1):



Celiac.com Sponsor (A1-m):


Celiac Disease & Gluten-Free Diet Blogs

 

Good news. And some average news.

I finally had my blood work done. All micros, except iron, are well in the upper ranges of normal. Woot! I guess that means intestines are healing.  Fatigue still plagues me, though. Not as much as it used to, but I feel only 25% better.  The average news is my ALT and AST levels are sitting just above the upper range of normal. I have to now have the emotional calmness to investigate wh...

Keight

Keight

 

Is Refeeding Syndrome being misdiagnosed as a Celiac Crisis today? Latest Research indicates a Celiac Crisis Could be Refeeding Syndrome being Misdiagnosed Instead

To All. Is Refeeding Syndrome being misdiagnosed as Celiac Disease today? Refeeding Syndrome happens among the severely malnourished and having Celiac disease is a risk for a Refeeding Syndrome leading to a Celiac Crisis aka Celiac diagnosis. See this research entitled “Celiac Crisis: an unusual presentation of gluten-sensitive enteropathy” where the Symptoms of Refeeding Syndrome (Elect...

Posterboy

Posterboy

 

Rusty’s Seafood Market Issues Allergy Alert on Undeclared Wheat

Rusty’s Seafood Market of Lorida, Florida, is recalling all five of its Captain Rusty’s Seafood Dips due to the presence of undeclared allergens. People who have allergies to fish (mahi, salmon, whiting, pollock, threadfin bream), crustacean shellfish (crab, lobster, shrimp), wheat, eggs, soy or milk run the risk of serious or life-threatening allergic reaction if they consume these products. ...
 

Johnson Sea Products Issues Allergy Alert on Undeclared Wheat & Soy in “Home Style Crab Cakes”

Johnson Sea Products of Coden, AL, is recalling its 12oz package of frozen “Home Style Crab cakes” because they contain undeclared ingredients of wheat and soy. People who have allergies to wheat or soy run the risk of serious or life-threatening allergic reaction if they consume these products. The recalled “Home Style Crab Cakes” were distributed in retail markets throughout Alabama and Flo...
 

Thiamine

Some interesting articles about Thiamine Thiamine Deficiency Promotes T Cell Infiltration in Experimental Autoimmune Encephalomyelitis: the Involvement of CCL2 https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4135011/   Long-Term Treatment by Vitamin B1 and Reduction of Serum Proinflammatory Cytokines, Hyperalgesia, and Paw Edema in Adjuvant-Induced Arthritis https://www.n...

knitty kitty

knitty kitty

 

Gluten Free Chicken Recipes (3rd Week of April, 2020)

Note to myself... Gluten free sweet chicken: https://mygluten-freekitchen.com/5-ingredient-sweet-chicken-gluten-free/ Gluten free baked oregano chicken: https://www.glutenfreepalate.com/gluten-free-baked-oregano-chicken-7-ingredients/ Gluten free chicken skewers: https://www.carvingajourney.com/easy-japanese-chicken-yakitori-recipe/ Pad Thai (substitute with chicken): https://w...
Carrot Cake Muffins

Carrot Cake Muffins

Been working on this for the past 4 days and got it about perfect. 120g (1 cup) Almond Flour 100g (1/2 cup) Swerve Granular (Erythritiol) 2tbsp  Flax Meal 2 tsp Baking Powder 2 tsp Cinnamon Powder 1tsp Ginger Powder 1/4 tsp Nutmeg Powder 1/4 tsp Salt 60g (1/2 cup) Chopped Walnuts 1/2 Cup Melted Nutivia Butter Flavored Coconut Oil 3 Eggs Whisked ROOM TEMP 56g (1/4...

Ennis_TX

Ennis_TX

 

Update April 2020

Well, well! It has been a while. I needed time away from social media and only inching back towards the more sensible ones now. I hope you are all well and keeping sane in these very ... unique times.  I decided to try the carnivore diet. I had been listening to Drs Ted Naiman and Paul Saladino, and began looking at what the Armstrong Sisters were up to. This led me to the Paleomedicina ...

Keight

Keight

 

Mayo Clinic Study Shows Micronutrient Deficiencies Are (Still) Common in Contemporary Celiac Disease Despite Lack of Overt Malabsorption Symptoms

Micronutrient deficiencies remain common in adults with Celiac Disease despite increased non classic presentation new Mayo Clinic study shows; or How Under/Undiagnosed Malnutrition is making you Sick…. The  Posterboys Story of How Taking Magnesium and a B-Complex help him address asymptomatic Vitamin Deficiencies in Celiac disease They (Mayo Clinic) titled it… Micronutrient Defi...

Posterboy

Posterboy

 

April 2020

Recovered fully from having the surgery removing my appendix in 12 days...literally back to lifting weights (no more then 40lbs for the first month is my personal set limit)....day 1 after I was back to 10 miles a day on a under desk elliptical...but I go crazy if not moving. This Virus has shut down the farmers markets, and only had 1 order in the past month, so paying bills is not possible...

Ennis_TX

Ennis_TX

Pop Tarts

Pop Tarts

So with the COVID apocalypse going on I been working on some bucket foods that are safe for me first on the list was pop tarts. I filled these with Miyoko dairy free cream cheese mixed with a bit of stevia and Swerve Confectioner. I plan on later trying a version with mock apple pie filler (minced stewed chayote squash mixed with swerve, lemon juice, and apple pie spice) that is blended into a...

Ennis_TX

Ennis_TX

 

Appendicitis

So pain started last night in my lower right abdomen with vomiting and fever. Took tramadol to sleep then woke up taking it again in the morning and vomitted when I tried eating. 99F fever Drove mysel to the ER got blood work wih raised white blold cell count, cat scan showed it was my appendix. Ambulance ride to Baylor and going for surgery in 3 hours....funny but the pain felt like my UC flaring ...

Ennis_TX

Ennis_TX

 

The LUPUS Inflammation Model for Sickness Beginning with B-Vitamin Deficiencies in Celiac's and other Inflammation triggered diseases….

Inflammation Model for Sickness Beginning with B-Vitamin Deficiency in Celiac's and other Inflammation triggered diseases…. AKA The LUPUS Inflammation Model or How the ignorance about nutrition is killing us today or how and why B Vitamins are being diagnosed as genetic GI diseases like Celiac disease today Note to blog reader :::::::) I get in the weeds sometimes...If you decide t...

Posterboy

Posterboy

 

March 2020

Actually in the hospital now getting a gastric emptying test done, I brought some Julian Bakery Bread since they want me to eat bread with the eggs. The cooked it all in the microwave in disposable containers so I have no worry about getting gluten or any other allergen in the foods. So far the first 2 x-ray have shown the food not to have moved...sorta expected this without digestive enzymes...

Ennis_TX

Ennis_TX

 

More Celiac Resources

Do you know about Welsh Filmmaker Greg Ballantine's documentary about the path to his celiac disease.  My knowledge of the National Celiac Organization was limited until the past few years when I was very restricted with the cousin to T.B. - M.A.C. and I found myself spending more hours researching my nursing degree books (out-dated of course) and all the new information regarding celiac ...
 

Sierra Soups Issues Allergy Alert on Undeclared Gluten in “Pasta e Fagioli” Soup

Celiac.com 02/25/2020 - Sierra Soups of Fresno, Ca is recalling its 13 ounce packages of "Pasta e Fagioli" because the soup mix contains an individually wrapped package of pasta, which contains gluten. However outer packaging states the product is Gluten Free. People who have allergies to gluten run the risk of serious or life-threatening allergic reaction if they consume these products. The...

Scott Adams

Scott Adams

 

Febuary 2020

So life has been crazy and busy, I got a new truck, a retired ambulance to be honest and have been working on modifications to work as a RV and a work truck. Ran into a bunch of issues the previous owner forgot to mention about the engine...Bad A/C Compressor, Fuel filters way past change time, fuel leak (leaking on top of engine...yes I am driving it with this), misfires on 2 cylinders and low...

Ennis_TX

Ennis_TX

 

January 2020

So starting off the new year with a bit of a big investment using all my savings. Due to health issues being worse now traveling has become a joke, like removing the second row seating from my vehicle and replacing it with a portable toilet with chemical disposal tank....yeah I had to. So this topped with having to rent a hotel every time I want to stay out late has made me invest in a new vehicle...

Ennis_TX

Ennis_TX

 

These days...

I left off my last blog entry about to see my GP for my ongoing lethargy issues. My iron stores are now in the normal range (yay!) and my fasting blood glucose is 5.4. She left me with the advice to allow time to heal things and that there is nothing she can find that is wrong with me.  Resting my entire weekend, every weekend, away is not what I call living. I am literally living to work,...

Keight

Keight

 

Cargill Voluntarily Recalls 39 One-Pound Bags of Product Packaged as Wilbur Dark Chocolate Covered Cashews Wheat Allergen Presence

Cargill is voluntarily recalling 39 one-pound bags of product incorrectly packaged as Wilbur Dark Chocolate Covered Cashews. Sold locally through the Wilbur Chocolate Store in Lititz, Penn., the bags are being recalled out of an abundance of caution because of a wheat allergen presence. Wilbur Dark Chocolate Malted Milk Balls were incorrectly labeled and packaged as Dark Chocolate Covered...

Scott Adams

Scott Adams

 

Introduce myself

G'day to you. Nice to see you here. I'm Keight; a middle aged woman from Australia. I am a truck mechanic by trade and I have two teen sons, who are the light of my life.  As a baby, I had massive intestinal issues and could not hold down the baby formulas on the market at that time. Eventually, I was given a mix of evaporated milk and vitamin drops. I have had a life long problem with severe ...

Keight

Keight



  • Celiac.com Sponsor (A15-m):


  • Blog Comments


    • Hi Keight and KK, thanks so much for your detailed responses!

      KK, thanks for the comments/suggestions.  My recent B12 test and others were all normal. I already take daily multivitamin, but I will also ask my doc for additional tests of thiamine, magnesium, iron, adrenal levels just make sure something is not being overlooked.  

      Keight, your comments esp. ring a bell with me:

      "I suspect my poor body has been needlessly flogged for years. Probably all my adult life. It simply gave up and metaphorically collapsed last year. I could not last a week's holiday alone in Kuala Lumpur. I spent the last three days of my vacation in bed. It was that bad." 

      "I want, so desperately, to have the energy to do things, to be things, to give. But I truly have very little energy for my daily necessities. On paper, things are looking good, but I am back at the dr again, begging for some way to find out why I am still dragging myself through each week."

      That is EXACTLY how I feel EVERY DAY!   For me, I reached that breaking point "collapse" and downward spiral--not just metaphorically, but literally--last June, when I ended up in the ER fearing a heart attack or stroke after a really terrible day at work (rude client and boss both screaming at me during back-to-back phone arguments).  After I hung up, I tried to deep breath/calm down but immediately had a sudden, severe headache/heartburn--the worst of my entire life. (I NEVER had headaches before in my life).  Thankfully, all the physical tests were normal but the doc did say I had a full-blown panic attack which made my blood pressure suddenly spike through the roof, causing the headache and heartburn. (I also had no history of panic attacks and my low blood pressure was always in the slow normal range.)  I was very relieved I wasn't about to die. 

      But there is nothing like lying in an ER alone, hooked to a beeping EKG machine and fearing imminent incapacity/death, to make one "wake up" and take long-overdue stock of one's life and health.😵  That day, I FINALLY understood I needed to listen to--not minimize or ignore, as I had for years--even subtle "hints" my body/mind was sending me for YEARS (insomnia, anxiety, depression, fatigue, bad jobs, job burnout)....because if I don't listen and, more important, make changes/seek help, it WILL eventually end up in full-blown physical/emotional crisis. 

      After quitting that job last year, I hoped and expected to slowly but surely feel more rested, energized, relaxed after a few months of no work.  Instead, no real change.  In Sept. I began to notice sudden bout of severe IBS-like symptoms (constant D, C, gas).  I thought it was just a flu bug or a bad meal.  I tried probiotics, bland diet for a few weeks.  No improvement. That's when I got a gluten blood test (abnormal--224) and EGD/biopsies (normal "no celiac sprue"; "mild inflammation").  I started gluten-free diet late last year/early this year.  Subsequent blood tests show definite decline (down to 73) but still not nearly "normal" range yet.  All other blood tests show normal vitamins/minerals.  TSH normal range.  Yet I STILL feel exhausted/entire body sore/stiff 24/7.

      I suspect much of my ongoing, current fatigue is related to plain old "burnout" and chronic depression issues which, of course, are only deepened by this new diagnosis, CV pandemic, and unemployment since last year.  Thus, I think I will give the anti-depressant a try and see if that helps.  I also plan to try MH counseling.  I live alone and the isolation, esp. during CV, only magnifies our health worries.  Perhaps I should get a pet.  Here's an interesting article about "service dogs" who can actually detect gluten: https://www.platinumperformance.com/articles/canine-companion-with-a-cause

      Sorry for the long-winded post..and thanks for reading eveyone!..This chatroom certainly helps me feel less alone as I navigate life's challenges! 


    • Keight, 

      Without enough thiamine to turn carbohydrates into energy, the body uses a shortcut that uses less thiamine and turns carbohydrates into fat.  This may be the explanation for the increase in obesity and NAFLD.  

      High fructose corn syrup has to be processed through the liver, just like alcohol, and depletes thiamine stores and causes NAFLD.   

      Niacin is also helpful in reducing liver enzymes and triglycerides.  

      The eight essential B vitamins are water soluble and need to be replenished every day.  They all work together, and, with Celiac Disease, it's possible to have deficiencies in more than one of the B vitamins.  Because they are water soluble, any extra your body doesn't use is excreted in urine.  

      Please discuss with your doctor the benefits of supplementing thiamine and niacin.  I'm not a doctor.  I'm a microbiologist who has done a lot of research.

      Recently, scientists have discovered that during thiamine deficiency, the thiamine transporters that allow thiamine to enter cells quit working.  The chromosomes that controls the thiamine transporters are on the same gene as Celiac Disease and Diabetes and other autoimmune diseases we Celiacs get.  In order to turn the transporters back on, high doses of thiamine are needed.  Sometimes results aren't seen until 500mg or 1000mg are taken for several weeks, then the dose can be lowered to 300 - 500 mg a day.  

      I have Type Two Diabetes which requires extra thiamine.  I take at least 300mg a day, 500mg if I'm eating more carbs.  I control my diabetes with diet, and by supplementing with niacin and thiamine.  I don't have NAFLD anymore.  My doctor was pleasantly surprised. 

      Hope this helps!  Thanks for being interested! 

      Knitty Kitty


  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-m):





  • Celiac.com Sponsors (A19):


  • Member Statistics

    • Total Members
      91,701
    • Most Online
      6,255

    Newest Member
    BlakeGracieKarsen
    Joined

  • Celiac.com Sponsor (A20):


  • Blog Statistics

    • Total Blogs
      1,176
    • Total Entries
      2,117

  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)


  • Celiac.com Sponsor (A22):


  • My Clubs


  • Celiac.com Sponsors (A23):