Lisa

I was sickened from home made split pea soup a while back. The peas did not list wheat, but we deduced they must have rolled off a shared line. So, now I would like to figure out if I can make split pea soup from either frozen or canned peas (I would prefer frozen due to sodium). I would also like to figure out if I can make a multibean soup from canned beans. I don't want to even go near the chance of getting CC again.

Anyone have a starting point for a recipe?

Sorry you got sick!

I've got a great cold weather dish...

Brown 1 pound of ground beef

Add Hillshire Farms Kielbasa cut in small bite size pieces

Add a chopped onion and a green pepper

Add three cans of different beans - juice and all or (If frozen, add some tomato sauce, chopped canned tomato or Swansons Chicken broth)

Season with Lea & Perrins Worcestershire Sauce

Salt and Pepper

Throw in a can of tomatoes if you choose. And freezes well. I always make a huge pot

Full recovery can take up to two years with total diligence. Refractory Sprue is not even a player here until your have exhausted all of your options.

It took me at lest six months to learn the diet and equal that time to learn to read labels. Eating gluten free is not an easy learn, and if you find it so, you're missing something.

Please read and read and read here....there is so much to learn.

You might want to get a new doctor...one who knows more about Celiac Disease. Or look into other options.

Yeah, you gotta work with the companies who work well with the community.

Bottom line is you have to learn to read labels. Trust the companies who will clearly disclose and deal with that.

You are one of many, but not one to demand exclusion. ALWAYS be polite, take an opportunity to kindly educate and pave a soft path for those who will come behind you.

Dairy yes...it can mimic the gluten effect. And try to keep a food diary. It can help you pinpoint an issue.

I'm new to this forum and have benefited from it more than I can say. I was very fortunate and found someone who not only lives close by but shares my interests. I just moved here from another state and I would like to get together. I'm not big on my personal information being out there on the Internet but I would like to be able to email her from home in case she's not online. Is this allowed? If so, how do I go about it. Would emailing her on her page be private enough?

Thanks for everything you are doing here. Finding this forum couldn't have come at a better time. I'm in the midst of a flare and I've already learned so much and gotten so much support from the other members.

Loey

P.S. Why do some threads list me a a new community member and others as an advanced one?

Loey:

You can click on that person's name and it will take you to their profile. There you will see options to send a personal message that is private between the two of you.

Members status is based on the number of posts that are made.

Here is an additional listing that may be more current:

Open Original Shared Link

I would certainly contact the manufacturer to verify any list submitted.

I had purchased the Triumph Dining Trio and out of the the three products I found the laminated restaurant cards to be really useful. They have the language of the cuisine you're eating on one side and then they have it in English on the other. How long have you been gluten free?

Loey

P.S. I read that the FDA doesn't acknowledge barley, oats and rye as gluten so some companies can be saying something is gluten free when it's not.

Hi Loey! And Welcome to the Forum!!!!

This list was not compiled by me, but someone else. And as GFinDC mentioned, it is not a reliable listing because it is dated (2008). Ingredients change frequently and the best was to keep yourself safe is to become an expert label reader.

Your Triumph Grocery guide is super in the beginning, but as I said, learning to read labels is the key. The dining cards will also help you in foreign restaurants where language is an issue.

Sounds like gluten is finding it's way in somewhere,as result of your tests indicate.

By law barley, malt, rye do not need to be declared. And also, a standard had not been set in the US for guidelines, in which companies can claim that their products are gluten free. It is voluntary at this point, without the law to back it up.

There is a list of companies who will always disclose all forms of gluten and I will post that. Many of us like to support those companies:

Open Original Shared Link

It takes time to learn the ins and outs. But stick with this forum and you'll be an expert in no time.

You think family would adjust but...apparently not.

People don't always get it....so you gotta wing it and just ....roll! And don't let anyone know any different.!!!

I would kindly accept the invitation (Celiac is no excuse to give up living). Explain that you have a newly diagnosed food intolerance (or more understood, allergy). Tell your hostess that you would like to bring your own salad, or offer to make enough for the entire dinner party. Make it at home and buy some store bought croutons that you can add for others after you have taken your serving.

I have found, that there is almost always SOMETHING that I can eat (but I am not sensitive either). Most of my friends are not quite comfortable with serving me. They welcome me bring a dish.

After a while you can judge what would most likely contain gluten. And your friends would welcome questions.

I always tell my friends to plan their meal as they choose, but be open to a few questions and I always ofter to bring a dish or some kind. And close friends, save me the labels.

After all the company-fellowship-friendship is the important thing.

You're awesome!!!!!

I am, but way too modest to acknowledge it. Everyone have a safe and happy Halloween!!

Open Original Shared Link

BOO!

Burger King

McDonalds

Chick-fil-A

Hardees

all have www.________.com gluten free or allergen free menus.

If all your villi are destroyed you will not be producing any lactase. However, unless you had the pillcam done they could not have visualized your whole small intestine, and they take only 4 or 5 biopsies, so if you are okay with lactose it must mean that you still have some villi intact or you would be suffering gas and diarrhea. I would still not push the lactose, personally, until you have done some healing. Milk in tea or coffee, okay, but try some ice cream subs for now (coconut milk ice cream and hemp are both delish). Your body is in healing mode so give it its best chance

Excellent reply!

For most people it is temporary. And welcome to you! You have found a great place to rest your head and take a deep breath.

I had sudden and disabling anxiety for about a year and some before my GI symptoms started. It was bad enough that my doctor put me on an anti-depressant. As soon as I was gluten free for 3 months, I went off of the anti-depressant, and the anxiety has not resurfaced. The connection is very clear to me.

I understand and felt the same. I think due to vitamin and mineral deficiencies. With the lack of B-12, I had difficulty walking. Sentences began, but never completed. Forgetting where I was driving also a grave concern. And I would have cold sweats while walking on a dock or driving over bridges.

I still hate bridges, but everything has returned to normal.

I'm lucky to have a hub who likes to eat whatever is in front of him.

Me too.

If I was poetic & could spell, this would be a better ode. As you may ( or may not) know, I am the only Celiac in a family of 2 teen boys and a hub that eats like one. We were gone all day at the Nascar race so I wanted easyish dinner. Made 5 pizzas on the Kinnick???crusts, different toppings. The consensus " So good, Mom! ". " Yes, make this again". "Next time make 6"

Yeah! Makes my life easier!

Glad it was a hit, wonder MOM! Good for you!!!

I don't think my husband remembers what "real" pasta tastes like. But, he's happy!

OK, got a question? Are teen boys or teen girls easier? :rolleyes:

Just voted.

You received some good info so I'll just tell you where you can get excellent english muffins plus more.... Joan's gluten-free Greatbakes.....her bagels & pizzas are very good as well.

Conte's has ravioli & pierogi's that are very good.

Dutch Country Pretzels for a good soft pretzel.

EverybodyEats for baguettes & Ficeille rolls

The Grainless Baker: graham crackers, creme puffs, hot dog buns are a few of our favorites.

hth

mamaw

Mamaw knows her stuff

I don't do maltodextrin. But I'm a newbie too - I'm sure the more experienced members of the forum will have better educated answers than mine.

Maltodextrine is gluten free, but, don't confuse it with Malt.

Hang in there. I'm in the same stage as you are. I'm frustrated as hell, sometimes feeling better and sometimes feeling just as awful. I sit on the bathroom floor some nights and curse my existence.

We can do this together! We can be Celiac newbies together. As awful as all of this stupid crap is, at least we are together in the craziness.

Only to add to your confusion....Malt is not a good thing, but few products contain active malt. Maltodextrine is so processed that it it considered safe for people with Celiac to consume.

So the short....malt is bad, maltodextrin is ok. Confusing, ah, yeah!!!

Don't ever use the soy sauce they put on the table. You have to request gluten free soy sauce and they will bring it to you.

I was just diagnosed with Celiac on Monday. I'm having a tough time dealing with the news, but am happy I'm going to finally stop feeling awful all the time. I stopped eating gluten on Tuesday, and what is odd is I actually feel worse.

Is this common? How long does it take to start feeling better? Am I going to get over my craving for English muffins?

I was looking through my kitchen cabinet last night (I can't purge it of gluten because I have a roommate) and was amazed how many things have some form of wheat or other gluten. The corn flakes had wheat starch and the corn chex had barley malt extract. I had to eat a can of peaches because there was nothing else.

I feel hopeless and feel like I'm going to go nuts. I'm glad I found this website.

/rant

Welcome!

You must not be in the US. Five of the Chex Cereals are now gluten free, in the US.

Good health has a price, but you are on the right road. You have to be a quick learn and I am sure that you will find your way soon. We have all been in your shoes.

Don't forget to pick up some Lea & Perrin's Worcestershire Sauce. It's gluten free in the US, but not in Canada.

And stock up on Chex Cereal. Five varieties are gluten free in the US.

No Campbell's Soup, not safe here. You have more options in Canada.

Have a BIG time!

Here is a fun page from Chex:

Open Original Shared Link

...makes life worth living

Check out Bob & Ruth's - Santorini would be my choice

Open Original Shared Link

To add to this discussion I think that Unilever may have made some changes in the last year or so. I know this was brought up in another thread but the regular original Lipton Onion soup mix USED to be gluten free but now has barley listed on it. For the record, it is not the kosher brand i was looking at either. I have started experimenting by making my own with gluten free beef bullion, sugar, onion powder, and minced or dried onions. I think Unilever has started making it a point to correctly label, but I think that they are still causing confusion with their statements and through their customer service department. I have been hearing customer service will say one thing, but the label will say another so I would trust the labels more than customer service.

The Autolyzed Yeast Extract (Barley), as listed in Lipton's Onion Soup Mix, is processed to the degree that the offending gluten is removed, thus safe for people with Celiac to consume.

Lipton Onion Soup Mix is considered gluten free, and subject to Unilever's excellent labeling policy, they list the source.