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EmiPark210

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Everything posted by EmiPark210

  1. EmiPark210
    I've had an ADHD diagnosis since I was 7 and I had the same hope that once the brain fog cleared up that I could live without my meds anymore. My celiac symptoms began when I started high school and I'm now a college senior. Unfortunately, I'm going through reevaluation because I'm still struggling in school and inter-personally with ADHD symptoms. That being...
  2. EmiPark210
    I got glutened this weekend. I went home for Thanksgiving, and while my parents are amazingly supportive and helpful, something still slipped through. I didn't recognize that it was gluten until the gut sick started yesterday. I thought I was just tired/dehydrated/stressed and all that. I remember from the last couple times I got traces or those couple times...
  3. EmiPark210
    So I was eating some lovely soy chocolate pudding that says "gluten free" on it in 6 languages and in 3 different places, and then I looked at the ingredients and it listed "wheat syrup" and "wheat starch" in the ingredients. And before we get on the "saying gluten free doesn't mean it" rants, I'm in Austria which has very very strict labeling laws. Are...
  4. EmiPark210
    I did three weeks gluten free before doing the challenge for another three weeks and got a positive. But I also had violent reactions when I got diagnosed and my GI said he was almost confident calling the endoscopy positive on sight alone because I had such widespread, visual damage. So it really depends. The recommended time for an endo is 3 weeks...
  5. EmiPark210
    My psych symptoms never quite came in waves like that, but I barely remember the three weeks where I had to do my gluten challenge for my biopsy. Now that I'm gluten free, my head is a lot clearer and I feel like my ADD has gone away for the most part. If you want to get testing done for Celiac, be sure to do it before going gluten free. Just to put...
  6. EmiPark210
    There is a easy bread recipe you can make, if you're up for it, that is totally egg free. Google "almost no-knead bread." The most basic ones are flour, water, salt, and yeast. You could also try to see if there is a vegan bakery near by or anything like that because they would be egg free. But other than that, pastas work really well too. And then there...
  7. EmiPark210
    I remember the countdown to my endo... gosh those were the longest days ever. I'm glad to hear you had such a positive experience with your doctor. It really isn't that unpleasant of a test; I don't remember a thing. And then you just get to sleep a lot. Keep us updated with how recovery goes!
  8. EmiPark210
    Speaking as someone who had to make sure I could get accommodated for school endeavors, I would say, if eating gluten for long enough to get the biopsy is not absolutely debilitating, do it. A lot of places like to have all the possible tests done to have accommodations. I'm currently studying abroad and they asked for all my diagnosis papers to accommodate...
  9. EmiPark210
    I have a really bad coping mechanism: I drink a glass or two of wine. Most of my initial symptoms are more psychological in nature (dizziness, tingling limbs, disorientation, etc.) so to keep myself from over-thinking everything that's happening and making it worse by becoming psychosomatically ill (illness without physical causes, based in psychology), I...
  10. EmiPark210
    I need to talk to my gastro when I get back stateside about a couple of things, but dairy is definitely out. I had a couple days of just soy and rice milk which were great for the symptoms I thought were for dairy... but I just finished the ice cream I bought earlier in the month and I'm like a balloon. I might go get it checked if it's lactose or casein...
  11. EmiPark210
    I'm starting to question if I have other intolerances, temporary or otherwise, in addition to Celiac. But I don't quite know how to figure it out besides elimination which is proving to be very difficult. I think I may be sensitive or intolerant to corn and dairy. For corn, I know in the past I've gotten really bad colon spasms when I eat a corn based...
  12. EmiPark210

    ARCHIVED Dreams

    EmiPark210 replied to txgal748's topic in Coping with Celiac Disease

    The same thing happened to me when I first got diagnosed. It's super annoying, but a good way to identify how you are coping with it 'below the surface.' Mine were about eating pretzels, pizza, cookies, and ice cream cones.
  13. EmiPark210
    Check out the blog Gluten Free Girl and the Chef. Shauna, the author, has an AMAZING upbeat attitude about life with Celiac. Whenever I hit a rough spot, I go read her blog. It's also full of good recipes. As for good recovery stories... I'm doing pretty well with mine. I started this whole process in February where I had just accepted I was going to...
  14. EmiPark210
    Today my roommate and I went to the grocery store after a couple hours of walking around a museum so we were both shopping hungry. Everything I picked up had the coveted Austrian "gluteinfrei" symbol on it, until I got to the chips. I found one brand that based off the ingredients seemed safe, but then I found "Wild Tex Chili Chips" that looked delicious...
  15. EmiPark210
    Make sure you've replaced all the things that need to be replaced in your kitchen. For the most part, anything that is metal (not cast iron), silicon, or ceramic should be safe unless it has lots of cracks, scratches, or hard to clean nooks. Anything that is wood, natural bristles (basters), scratched plastic, or seasoned (cast iron, some cookie sheets, baking...
  16. EmiPark210
    I know the norm is that the longer you're off gluten, the worse your reaction is, but for me that has been the opposite. My reactions at the beginning of being gluten free were violent and debilitating. But as I accidentally found out a couple weeks ago, I don't react that badly anymore. I will never eat gluten again because I don't react strongly to small...
  17. EmiPark210
    I'm currently studying abroad in Vienna and as much as the grocery stores have, I really wish I could just eat the street food and try the local cuisine. It seems to not even be an option here. The one person at my study abroad center who lives here and is gluten-intolerant just pretty much said "don't eat out." I have my "celiac travel" cards but they don...
  18. EmiPark210
    I'm still pretty new to this, I haven't been gluten free for even a month yet. But I'm starting to wonder if I'm forming other intolerances like so many other people do. I'm thinking it's dairy because I feel off only after that. I usually have 1/4 cup - 1/2 cup of greek yogurt for a snack or dessert (with honey, vanilla, and dried blueberries) but somewhat...
  19. EmiPark210
    Starting on Thursday, I'm going to be staying with my cousin, aunt and uncle in Vegas for about a week. My cousin is graduating from college so there are going to be about 30 people in the house during the day and for a lot of the meals, especially during the weekend. I'm bringing foil, soy sauce, cutting boards, and pastas to get me through till my parents...
  20. EmiPark210
    I get them when I've had too much sugar coupled with stress. Everyone has their own causes but if you've still been getting them without gluten then it doesn't seem like it's a CC sign, though it's ways worth checking things every once and a while.
  21. EmiPark210
    I had the eating gluten nightmare for the third night in a row. I'm really scared that I've missed a source of gluten and am still eating it. Or that my dish washing system with my roommate isn't working somehow and I'm getting cross contamination. I'm at a naturally stressful part of the year and I wonder if all of that is being kinda projected on my...
  22. EmiPark210
    It's hard when you have to ask for exceptions to be okay with not having that full spectrum. I'm studying abroad this summer and had to ask for housing exceptions so that I can continue to stay healthy while I'm in Austria. This required me to have a full biopsy test for medical evidence. Luckily, I found out the documentation requirements while I was eating...
  23. EmiPark210
    My glutening symptoms are sometimes neurological, as you described. But if you don't think they're due to gluten to being gluten free, maybe it's time to talk to a neurologist? Also, hydration has a lot to do with that for me at least.
  24. EmiPark210
    I noticed I got really insecure when I continually eat gluten, to the level where I can now understand why I stayed in an emotionally abusive relationship for 3 years. Celiac's can mess with more than just your gut. Well, the messing with your gut can mess with your mind. The types of losses in courage and determination can be associated with depression,...
  25. EmiPark210
    For the nose hurt, I have a somewhat weird habit of using chapstick to help it. I figure a raw nose is more like chapped lips than just dry skin. Feel better soon!
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