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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    @Twelthlady -- Seriously, Lay's Potato Chips (Fritos, Plain Chips for sure) are gluten free in the US. We eat them when traveling. We have never been glutened by Lay's. Just read the label. I can not vouch for all the varieties because I have to watch for garlic and onion). Hubby eats regular Doritos too. Just read the label. I know chips are...
  2. cyclinglady
    Okay. You did ask for an opinion. I am not a doctor. I was just repeating what I read on the Canadian websites. It seems that your doctor isn't not following standard protocol for some reason. Obviously, you are concerned about how your GI has handled your case. I hope you find answers. I wish you well!
  3. cyclinglady
    You joined the forum because your boyfriend told you to. You went gluten free because your boyfriend told you have celiac disease. Gee, see a pattern here? About the boyfriend? I am not trying to sound flippant or harsh. You need to stand your ground, be your own advocate and get some real medical help. You could have a variety of medical problems...
  4. cyclinglady
    Oh, no! I am so sorry! Things will get better! It just takes time to adjust.
  5. cyclinglady
    Hi Natalie! It seems your GI is not really celiac-savvy. He/She does not even follow the Canadian Celiac Association and the Canadian Health government recommendations that you must continue to consume gluten until the endoscopy is done! Open Original Shared Link Open Original Shared Link I can tell you that the British, Australian...
  6. cyclinglady
    Thanks for clarifying. I hope your breakfast went well!
  7. cyclinglady
    Dylan, These are the specific tests for celiac disease. You should try to ask for them all, if possible. For a while, the TTG tests were considered the best for screening. They are very good but do not catch all celiacs (like me). Funny thing is that the University of Chicago used to recommend the TTG for screening (along with American GI Association...
  8. cyclinglady
    Here is some of the "new" science by Dr. Fasano (a leading celiac researcher) helping to validate "leaky gut": Open Original Shared Link I love this video too: Your advice is excellent!
  9. cyclinglady
    Welcome! It is a relief to know, isn't it? Now, you can focus on getting better. I am going to warn you that it takes time. Everyone heals at different rates because their damage (not just to their small intestine) is unique to them. That means months to a year or so. Why so long? There's a steep learning curve to the diet. It's not just...
  10. cyclinglady
    I do not think you can ignore the EMA test just because the TTG is negative. A positive EMA means celiac disease or DH (antibodies). But.....I still think there might be a lab error. I would not worry, if her health is improving. Just get re-tested in six months and stick to the same lab or go back to the old lab soon for piece of mind.
  11. cyclinglady
    I can not explain it, but a different lab could be the difference. Perhaps, carry on and retest in six months. She is thriving, right? I only test positive to the DGP even in follow-up testing (biopsy Marsh Stage IIIB). Weird. I guess that's why the celiac complete blood panel offers several different tests. It's just not "one size fits all...
  12. cyclinglady
    I am so sorry that you have been sick (we've all been there!). The good news is that you can really improve your health by strictly adhering to a gluten free diet. I went shopping today with a girlfriend, her daughter and my daughter. Time was tight so we ate at Chick fil a. I ordered a coffee (very good) with cream. I drank while they ate and...
  13. cyclinglady
    Jane, With insulin resistance (prediabetes is like being pre-pregnant), you can not make drastic changes to your diet without monitoring your blood sugar to determine how certain foods affect you. Especially being on Metformin. Your doctor probably prescribed a dosage based on the Standard American Diet. If you sudden cut carbs while you are on a...
  14. cyclinglady
    Welcome Jane! If you seriously suspect celiac disease, you should get tested (blood test), but that means you must be eating gluten. Even being gluten-free for as little as a few weeks can impact your tests results. Here's more information: Open Original Shared Link In the meantime, it sounds like your blood sugar is wonky. How often do...
  15. cyclinglady
    What? Be sure that next endoscopy tests you for lymphoma (cancer) as well! Seriously. You need to do some research as your knowledge of celiac disease is lacking. Did you fail the entire celiac panel? Or did your doctor/insurance save cash and just order the very good (but does not catch all celiacs) TTG IgA? You have a family history, a positive...
  16. cyclinglady
    DH is celiac disease that appears on the skin (gluten triggered). It does not appear when you are consuming dairy, which sounds like a separate issue for you. A DH biopsy requires active lesions (new/fresh) from consuming gluten. So, if you want to be tested via a skin biopsy you must go back on gluten. Finding a dermatologist who knows exactly how to...
  17. cyclinglady
    Eat what you eat at lunch or dinner. I am happy with a fried hamburger patty, fish, or chicken (I know it needs to be fresh or frozen for the histamine diet). Yes, I eat veggies for breakfast! Wanted to add that I was glutened in July (GI ordered follow-up antibodies testing and it was high) and it took me 3 months to recover. Picked up a histamine...
  18. cyclinglady
    Are you sure you had the complete celiac panel? Here are the tests: -Tissue Transglutaminase (tTG) IgA and (tTG) IgG -Deamidated Gliadin Peptide (DGP) IgA and (DGP) IgG -EMA IgA -total serum IgA and IgG (control test) -endoscopic biopsy - make sure at least 6 samples are taken ...
  19. cyclinglady
    I am sorry that you are sick! ?. I think you need to find out which celiac antibody tests were given. Often just the TTG Is ordered for initial screening. This test catches most, but not all celiacs (like me!) You also need to see if they gave you the igA deficency test too. Here are the tests: -Tissue Transglutaminase...
  20. cyclinglady
    Hey, I am a member of that forum (not very active though). But that's exactly how I eat. A year after my celiac disease diagnosis, my GP tells me that I am prediabetic via an email. Instructs me to improve my diet and exercise more. What? I exercise more that most my age. I run, swim, bike and teach a few exercise classes. Change my diet? I...
  21. cyclinglady
    One month into the diet and she's probably very constipated because she HAS celiac disease. She needs more time to heal. Maybe six months to a year. Why so long? In theory, she should heal within weeks, but it takes a long time to really master the gluten free diet and learn about cross contamination and shared manufacturing lines. Plus, consuming lots...
  22. cyclinglady
    If I were in your shoes, I would first test out a histamine intolerance diet before going gluten free. Migraines and fatigue seems to scream histamine intolerance. It's most widely known in Europe, but it is gaining some ground here in the US. But, I am not a doctor and I do not know you. What I can suggest is that you do some research and continue...
  23. cyclinglady
    Money. It costs more to run a celiac panel. For years the TTG has been the recommended screening test for celiac disease. It catches most, but not all celiacs. It's a pretty good test, but no test is perfect. You are going forward with the endoscopy. Make sure your GI takes 4 to 6 tissue samples (biopsy) because just a "visual" often looks fine (visually...
  24. cyclinglady
    I am not a doctor (nor a Rocket Scientist), but I would say that your results are soundly negative. You might consider going gluten free as a trial as it can not harm you (and adhering to a whole foods diet) . You could keep a food and symptom log. Have allergies, mast cell issues or a histamine intolerance been considered or ruled out? Open...
  25. cyclinglady
    Welcome Ashley! Here are the current tests. The DGP versions seem to work a bit better than the TTG in small children. So, ask for the complete panel (and get it all in one stick....my 15 year still hates to get blood drawn ! Open Original Shared Link Your doctors are wrong! They must be reading old medical text books. Not all kids or people...
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