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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    I am sorry that you are sick! i think you need to really adhere to a gluten free diet that consists of ONLY whole foods (no processed gluten-free foods) and do not go out to eat, until you start to see improvement. Each tiny gluten exposure can set you back. It sounds like you really became even more ill after the gluten challenge. I was just...
  2. cyclinglady
    Great point. EoE! Open Original Shared Link
  3. cyclinglady
    What? Wine that contains milk? That is new to me. You know that there are about 300 symptoms for celiac disease and you do not have to have intestinal issues. You do not even have to have ANY symptoms (aka silent celiac). I think you need to wait for your endoscopy. When is it scheduled? I assume it is not for months and that you will be expected...
  4. cyclinglady
    Ah, more information trickles in...... There are a few things that may elevate a Ttg igA result: 1) celiac disease, 2) Lyme disease, 3) another autoimmune disorder. Someone recently posted during the Last month who had a very elevated TTg but ended up not having celiac disease. Instead he was diagnosed with Lyme disease. My memory could be wrong...
  5. cyclinglady
    Awok, Welcome to the forum. Have you considered trace gluten? Here is a study on the topic: Open Original Shared Link It could explain why you felt good for a while. I personally was glutened badly last summer. I have no idea what got me. I suspect either a prescription medication or one gluten free product (not certified). I ended up...
  6. cyclinglady
    I sit in an ice bath after a long training (running or riding). It speeds my recovery, I swear!
  7. cyclinglady
    Karen is right. Do the research. Have you been tested for celiac disease? Here is more info..... Open Original Shared Link
  8. cyclinglady
    Wow! I will never complain about my measly rashes and hives again (resolves with antihistamines). DH is awful! I can see why you are so diligent about avoiding gluten at all costs! Thanks for sharing. You are bound to help many. Hugs!
  9. cyclinglady
    Thanks for sharing with me. I really appreciate it. Honestly, after a glutening last summer (still do not know what glutened me), I did not eat out for a year! The risk was too great as my healing time took 3 months (for symptoms to subside) and six months to regain lost weight. Our recent vacation to Europe was worth the risk as we traveled with our...
  10. cyclinglady
    Welcome to the forum! I sure hope that you are able to find a proper diagnosis. I am sorry that your firm is not very understanding about your medical problems. I hope you feel better soon.
  11. cyclinglady
    Adrien, Do you have celiac disease? I think it would have a greater impact (at least for me) if I knew you were diagnosed with it. On all food/restaurant reviews, I tend to side with those who have celiac disease than those that are just gluten free. Otherwise, thanks!
  12. cyclinglady
    I am the butter Queen! I can eat butter by the spoonful for a snack! Ask my family! I have used Kerry gold and had no issues. You might be reacting to casein (the milk protein) or you might be temporarily or permanently lactose intolerant.
  13. cyclinglady
    Most of us take a year or longer to really feel well. Why? There's a huge learning curve to the diet. Each one of us has different levels of damage and sensitivities to gluten. Because of intestinal damage, we also can have many intolerances (leaky gut/zonulin/it's real). It's hard to figure it out (especially when you feel like crap) and that's why...
  14. cyclinglady
    Having only one positive (DGP Iga and I was not even IGA deficient, but the opposite high out of range) on the celiac panel, my GI proceeded with the endoscopy/biopsies. I did not even have gut issues, but I was anemic and had Hashi's too. Biopsies revealed a Marsh Stage IIIB. The celiac antibody tests are not perfect. I would get a opinion from a GI...
  15. cyclinglady
    Jane Anderson has written some good information about this topic. (I am not affiliated with Jane.) Here is just article of many: Open Original Shared Link
  16. cyclinglady
    Welcome! Now you can look forward to improved health! ?
  17. cyclinglady
    Are you kidding? Malt is derived from barley. Google it.
  18. cyclinglady
    Ah, so many of us have been told that our symptoms are "all in our heads"! I am glad that you finally are getting better. There is a huge learning curve to the diet on top of varying degrees of damage, so recovery is long for most. It took me a year to feel okay and another year to feel normal (I dealt with wildly swinging thyroid too). A severe glutening...
  19. cyclinglady
    Wow! That is a lot of intolerances! How long have you had celiac disease? How damaged was your villi? If you are new, it can takes a year or longer to heal and resolve intolerances that often accompany celiac disease. I just worry about products that can be swallowed accidentally. This includes sunscreen, lipstick, foundation, hand lotion, shampoos...
  20. cyclinglady
    Here are the tests: -Tissue Transglutaminase (tTG) IgA and (tTG) IgG -Deamidated Gliadin Peptide (DGP) IgA and (DGP) IgG -EMA IgA -total serum IgA and IgG (control tests) Note: -AGA IGA and AGA IgG - older and less reliable tests largely replace by the DGP tests ...
  21. cyclinglady
    Not true. I was barely positive on the blood test, yet biopsies revealed a Marsh Stage IIIB (Moderate to severe damage). Antibodies can take months to build up in the bloodstream. That is why leading celiac disease experts recommend that you be on a gluten diet for 8 to 12 weeks prior to a blood draw. I am concerned that your doctor "said". Please...
  22. cyclinglady
    Yes, you have to stand your ground! I only accept food from another celiac (and only smart ones!). I have two gluten free ladies in my community band who are gluten free for various health reasons. Only one understands how bad it can be for me to accept gluten free food from a non-celiac. The other nice lady is always trying, but I never take it. I...
  23. cyclinglady
    Get your celiac blood panel results from your doctor and make sure you had the entire panel. This is the entire panel list: Tissue Transglutaminase (tTG) IgA and (tTG) IgG -Deamidated Gliadin Peptide (DGP) IgA and (DGP) IgG -EMA IgA -total serum IgA and IgG (control test) Why do do I push for the entire panel? If my doctor did...
  24. cyclinglady
    Welcome! Have you been tested for celiac disease? Celiac disease is an autoimmune response trigger by gluten found in wheat, barley and rye.
  25. cyclinglady
    I am sorry to hear about your cancer. It could be completely unrelated to a possible celiac disease. I would not worry about your seemingly wacky TTG results. My own GI can not explain why I test negative to to the two TTG tests even in follow-up testing. My research has found that this is common in small children and I am old! Never-the-less...
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