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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    I agree with Karen. There must be something wrong with your inability to absorb iron and increase your ferritin levels when you have been gluten-free for so long. I have Thalassemia (a genetic anemia). One doctor just blamed my Thals for my anemia but never suspected celiac disease. Another doctor blamed my low ferritin on my being a woman. Only the...
  2. cyclinglady
    Read this study from PubMed (reliable source) about trace gluten contamination: Open Original Shared Link Think about it. For a celiac, a small amount of gluten can trigger the autoimmune response causing a patient's body to attack their small intestine. Doctors do not exactly know how gluten affects an individual. Symptoms are different for...
  3. cyclinglady
    I am a little late to the game, but I can honestly say that I am much better than when I was diagnosed back in March 2013. My anemia resolved quickly which was my main symptom. My learning curve to the gluten-free diet was not steep since my husband had been gluten-free for 12 years and I managed to keep him safe (though I am still learning something new...
  4. cyclinglady
    Flower Queen to the rescue! Thanks!
  5. cyclinglady
    I have been on a low carb high fat diet for two years now. I have Hashi's and my blood glucose levels have almost normalized. I say almost, because if I cheat my glucose levels will spike. My doctor is happy, my thyroid is happy, I am happy. I do not need to take diabetic meds. While I do cheat on my low carb high fat diet, I NEVER cheat on my gluten...
  6. cyclinglady
    Welcome to the forum! Here is a link to our Newbie 101 section that you may find useful: As far as shared manufacturing lines, I personally tend to avoid them. The risk is not worth it.
  7. cyclinglady
    Rest assured Gas-Ex is gluten free. This list composed by a pharmacist is dedicated to advocating for gluten-free drugs. This list is not perfect as formulations can change. Always read labels and you can check with the manufacturer. Open Original Shared Link She could be reacting to other ingredients in Gas-Ex. How long has she been...
  8. cyclinglady
    Welcome! What celiac tests were taken? There is a full blood panel. The standard screening TTG IGA does not catch all celiacs. Did they biopsy your small intestine? This usually is done via an endoscopy not a colonoscopy. I recommend getting copies of all your lab reports. Your rash could be DH (celiac) rash.
  9. cyclinglady
    If you are new to being gluten free, first read our Newbie 101 thread under the "Coping" section of this forum. You should make sure you are not getting gluten into your diet accidentally. I would also not recommend taking any supplements for the first month or so. Your gut is damaged. Even trying to digest a vitamin can be hard! I would make sure...
  10. cyclinglady
    Those probiotics could be making you sick! GI doctors were puzzled that many of their celiac patients were not getting well so they tested about 20 probiotics marketed in the US this year: http://www.medicalnewstoday.com/articles/294043.php My recommendation? Either purchase certified gluten-free supplements (tested) or avoid them all together...
  11. cyclinglady
    ?, that drives me crazy! It is a curse and a blessing! ?
  12. cyclinglady
    You do have a tough call to make. Like Darren, anemia was my main symptom. I went in for a routine colonoscopy (Yep, I am old) and the GI ordered the celiac blood panel and the endoscopy too. I had a Marsh Stage IIIB biopsy result. I was shocked. Why? Because my hubby had been gluten-free for 12 years. He went gluten-free per the poor advice (no celiac...
  13. cyclinglady
    Yes! Iron levels can drop fast in just a month per my doctor. The key is how fast your body is able to recover. Amazingly, it can but some things like intestinal damage from celiac disease or heavy-long periods from hypothyroidism or other fluctuating hormones can prevent recovery (iron absorption). Personally, I dealt with 30 day periods, undiagnosed...
  14. cyclinglady
    You do know that 30% of the poulation carries the celiac genes, right? And only a tiny amount actually go on to develop celiac disease? The gene test is usually used only to rule out celiac disease -- not to diagnose. So, your family has the slight risk of developing celiac disease, but without actual antibody testing or intestinal biopsies, you will never...
  15. cyclinglady
    Yes! If you have celiac disease, a 90 to 95% gluten-free diet could easily cause an iron-deficency because your small intestine can never heal and absorb nutrients. Did your doctor check your iron stores (ferritin) too? A celiac must be 100% gluten free to achieve healing. Celiacs do get glutened (risk diminishes as you learn the diet) but the goal...
  16. cyclinglady
    I use kirkland (Costco) grain free dog food for my lab. I always wash my hands after handling it, but I have always done that serving dog food. ?. I am sure others will give advice, but you can search through the forum as this topic is popular.
  17. cyclinglady
    Hang in there Brian! You are normal, at least for someone who has celiac disease. If things become really difficult, I would suggest talking to your doctor. We can have other issues that are not related to celiac disease (virus, depression, hormone issues, etc,.). Let's face it. Having celiac disease is hard. It can be overwhelming. I am sick of cooking...
  18. cyclinglady
    I am formally diagnosed as a celiac, but my husband is not. He went gluten free (before any testing) per the poor advice of his doctor and my allergist 14 years ago. He struggled the first year and made mistakes, but it was obvious that he had an issue with gluten. He NEVER cheats knowingly! If after a year of being gluten free and your symptoms...
  19. cyclinglady
    Many celiacs have a "temporary" intolerance to lactose that can resolve with healing provided that you are not one of the many people who naturally become lactose intolerant due to aging or genetics. Read this celiac.com link for diet tips, cross contamination, etc.: /celiac-disease/the-gluten-free-diet-101-a-beginners-guide-to-going-gluten-free...
  20. cyclinglady
    Hi Archer! Here is a link to celiac.com's newbie information which is helpful. There are diet tips there too. Avoiding cross contamination is critical. Took me six weeks to feel a bit better. Six months for anemia to resolve and a year to really feel good. Finally, it took two years to be back to to feeling really great. But take that with a...
  21. cyclinglady
    -Tissue Transglutaminase (tTG) IgA and (tTG) IgG -Deamidated Gliadin Peptide (DGP) IgA and (DGP) IgG -EMA IgA -total serum IgA and IgG (control test) -AGA IGA and AGA IgG - older and less reliable tests largely replace by the DGP tests -endoscopic biopsy - make sure at least 6 samples are taken ...
  22. cyclinglady
    Gluten must be ingested in order to trigger a celiac flare-up. However, you can have both celiac disease and a wheat allergy. This topic has been hotly debated in the celiac world. The bottom line is that until there is an actual research study, we will never really know. I trust Jane Anderson, who writes for about.com and has great tips for celiacs...
  23. cyclinglady
    Open Original Shared Link
  24. cyclinglady
    Great to know! ?. Thanks!
  25. cyclinglady
    There are specific tests to help rule out SIBO. Has that been pursued? Exactly what celiac blood tests were given? If you do not know, then get the lab copies. If the ENTIRE panel was not given, you can not rule out celiac disease. Get copies of your biopsy report too. Four to six biopsies at specific areas should have been taken. Cross contamination...
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