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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    If your son is IgA deficient, then often the TTG and DGP IgA celiac tests are invalid. The doctor would need to run both the DGP IgG (Deamidated Gliadin Peptide) and TTG IgG (Tissue Transglutaminase) tests. Be sure he does both of them. Kids, especially young kids, can test better using the DGP (and some older folks too, like me, who test negative to...
  2. cyclinglady
    Glad to help! Never stop advocating for your health. Be patient (that's the really hard part), but it is possible to feel well and recover from celiac disease. Of course, you'll always have to avoid gluten as if it were rat poisoning, but there are worst things to worry about! It is nice to have a resource like Celiac.com. It is anonymous, so...
  3. cyclinglady
    Many celiacs are not healing because they are not diet compliant due to hidden sources of gluten. Read this research paper about this subject. As Karen said, refractory celiac disease is rare but some doctors are quick to jump to that diagnosis because they are not celiac savvy. Open Original Shared Link welcome to the forum!
  4. cyclinglady
    You are NOT a loser, Zach! You are sick and are still in the process of recovering. Think about getting a re-check on celiac antibodies. See if they are improving. If they are not, you need to see if something else is going on. In any case, you are not alone! ?
  5. cyclinglady
    Zach, I am glad to hear threat you are improving! I do not think you are going to win this battle. Read this: Open Original Shared Link This is just my opinion as a Mom and someone who has celiac disease, but I think you just need to tough it out. Take an incomplete or retake the class to off set your grade. I once had a nutty professor...
  6. cyclinglady
    FlowerQueen is correct. Once diagnosed with celiac disease, you should never consume gluten again without the risk of becoming very ill (osteoporosis, liver damage, lymphoma, etc.). I think everyone has trouble in the beginning sticking to a gluten free diet. That's because gluten is in so many processed foods. It takes time to learn to read labels...
  7. cyclinglady
    First of all, your doctor does not seem to be celiac savvy. It is so easy for a GI doctor to miss patches of intestinal damage on an endoscopy because the small intestinal wall, if spread out is the size of a tennis court! How many samples were taken and submitted to a pathologist? A visual look from the GI often results in nothing! For example, my endoscopy...
  8. cyclinglady
    Thanks for clarifying! How could I forget about milk protein issues?
  9. cyclinglady
    Corn is safe for those with celiac disease. Open Original Shared Link However, many of our celiac.com members have intolerances to various foods like corn, soy, lactose, etc. Many members report that their intolerances resolve over time (never for gluten though.....) but some never resolve.
  10. cyclinglady
    I can! Start with hard cheeses, then yogurt/butter, soft cheeses and finally milk/cream. Start slowly and build. Give yourself time to get your body to release the enzymes necessary to digest lactose. Certified gluten-free enzymes for lactose can help the transition. Lactose free milk and ice cream are helpful too. Remember, that genetically some...
  11. cyclinglady
    Here is a link that explains why you should get tested (completely) for celiac disease: Open Original Shared Link As far as the link to the functional doctor....why? If you get a celiac diagnosis, chances are you will heal on a gluten free diet. As you have probably seen on this forum, most of us encourage newly diagnosed members to eat a whole...
  12. cyclinglady
    I can not say as I have never gone to one or researched the topic. I would bet that an acupuncturist would be a better choice. I found it helpful with pain management for a shoulder injury. It allowed me to heal faster and to do all the things physical therapy therapist wanted me to do without using drugs. But, finding the root cause of your pain is...
  13. cyclinglady
    We are prepared for earthquakes at home, in our car and at work. That means keeping tins of sardines, gluten-free cereal bars, SPAM, nuts, chicken, fish, rice, etc. in our earthquake kits. I have to go through it every three to four months to rotate out some of the foods (e.g. cereal bars). I mark it in our planner. It works for us. Tasty? Appetizing...
  14. cyclinglady
    How much fat are you consuming? Going lower carb and not adding in fats can make you hungry. So, do you know that Type 1 diabetes is strongly linked to celiac disease? I would ask your doctor for a GAD antibodies test to rule out type 1. Open Original Shared Link Open Original Shared Link I basically eat to my meter and that...
  15. cyclinglady
    I was glutened in July. Badly. I have NO clue as to what got me. I suspect two things 1) a gluten free store- brand, product that might have been mis-labeled and 2) a prescription generic medication (contacted the manufacturer to confirm a gluten-free status but got the old liability statement of no guarantees). Both items were NEVER consumed by my gluten...
  16. cyclinglady
    Chiro? Hubby went to one with a shoulder injury as recommended by our GP. It was a great experience. I always resisted. Why? Just a "gut" feeling. Good thing. My bones started fracturing on their own. I can not imagine anyone manipulating me now. If you have celiac disease, get a bone scan first. Just saying.......
  17. cyclinglady
    After my blood test (DGP IgA positive), I went crazy eating gluten until my endoscopy. Because of work issues, I waited for seven weeks. Seven weeks of saying goodbye to my favorite gluteny foods! I knew what was coming going gluten free since my hubby has been gluten free for over 14 years. I was eating a loaf of sourdough a day besides cakes and cookies...
  18. cyclinglady
    Oh, my heart goes out to you and your daughter. My daughter is turning 15 soon. I can not imagine her being in so much pain! ?. Please keep advocating for her, Mom!
  19. cyclinglady
    From what you posted it looks like you daughter tested negative to the TTG Iga test, but I am not sure if she is IGA deficient which would make the test invalid. Can you get copies of the lab test and include the lab ranges (lab ranges vary) and post? I would also see if you can get the complete celiac panel. The TTG test is the "go to" screening test...
  20. cyclinglady
    This response rocks!
  21. cyclinglady
    Sorry, but the forum is not allowing me to properly edit today! It is late and I am making mistakes. I am just trying to encourage you to maintain your own records. It also allows you to stay on top of your medical issues. I know that some doctors resist any patient input, but my PCP/Internist has 2500 patients. Does she really have time to...
  22. cyclinglady
    Pretty sure? I strongly suggest you obtain and maintain all your medical records. It is your right, after all! Why? Well, personally, my health provider does not allow PCP/GP doctors to order the entire celiac panel. Most likely to save costs and to be fair, the TTG IgA is pretty good for most. My health provider does allow GI doctors to order the complete...
  23. cyclinglady
    Welcome! Gluten may very well be your problem! The only way to know for sure (or pretty sure) is to test for Celiac Disease (an autoimmune disorder triggered by ingesting gluten and it's not an allergy). There is no test for Non-Celiac Gluten Intolerance at this time. But....you must be consuming gluten daily (8 to 12 weeks prior to the blood tests)...
  24. cyclinglady
    Hi Jessica! This is a pretty old post, but the topic is still current. But I caution that newly diagnosed celiacs may want to consider a cooked-to-death, whole-foods diet during the first few months of a gluten free diet. Why? Many patients lack the digestive enzymes needed to digest raw foods due to intestinal villi damage. I agree that...
  25. cyclinglady
    Okay, the forum edit function is not working today in my iPad. I meant, GB (gallbladder) not BG! ?
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