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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    Wow! You have been through the wringer like so many of us! Has your anemia resolved? Has the osteoporosis improved at all? You would think that your doctor would try to get to the bottom of your health issues. My anemia was blamed on my fibroids and perimenopause, plus I have a genetic anemia. Still have the Thals, but my iron-defcient anemia...
  2. cyclinglady
    Is there a reason you can not repeat the celiac blood panel? If I recall correctly, the ones you had were the old AGA tests that have been discontinued. The current tests include the TTG, DGP (IgG and IgA versions) and the EMA. Biopsies through via endoscopy are still the current standard of American and British Gastroenterology Associations/Colleges...
  3. cyclinglady
    There is so much to be discovered by medical science regarding the human intestinal tract! Let's face it, it is not a glamorous topic! The best we can do as non-doctors is to maintain our medical records, read current research that may aid our doctors (they are humans after all) and continue to advocate for ourselves. I wish you well! Welcome...
  4. cyclinglady
    Annie, Your endo may have prescribed thyroid replacement because 1) at the time your lab results indicated you were running hypo or 2) he had hoped a tiny bit of hormone replacement might bring down your thyroid antibody levels. Option 2 occurred for me when I was first diagnosed with Hashi's almost 20 years ago. Eventually, my thyroid slowly gave...
  5. cyclinglady
    Okay, at least your GI has ordered some standard tests. It is too bad that during your endoscopy, he did not take four to six biopsy samples to test for villi damage caused by celiac disease. And that he tested you for celiac disease when you clearly had been gluten free for some time. Well, in his defense, he may have tried testing in the hopes that you...
  6. cyclinglady
    Oh yeah, gluten withdrawal is very real!
  7. cyclinglady
    Welcome Annie! I do have some concerns! I assume your doctor has diagnosed you with Hashimoto's based on a thyroid antibodies test? Do you have the actual lab results? Hashimoto's can cause wild swings from being hyper to being hypo making it difficult to manage thyroid replacement dosages. I personally went through this just before my celiac diagnosis...
  8. cyclinglady
    I love it! I like Sprout's "25% off all body and supplement sale" that occurs at least quarterly too. I stock up on my Certified gluten-free lipstick then!
  9. cyclinglady
    Well, here is good news! MD Magazine recently published an article that discusses celiac disease and the possible risk for dementia. Originally published in the Journal of Alzheimer's Disease, the article basically states that the risk for dementia does not increase before or after a celiac disease diagnosis. Nice to read something positive! I know it...
  10. cyclinglady
    We can not really diagnose you over the internet, but I do sympathize with you! I can guess about a few things. You are absolutely right that you can not rule out celiac disease when you were gluten free when your doctor ordered the test. It is obvious that your doctor is not celiac savvy. My neighbor is an ER doctor. Can anyone possibly remember everything...
  11. cyclinglady
    Only you can decide what is the best thing to do for you. Here's my personal experience. Hubby went gluten free 14 years ago per the poor advice of his GP and my allergist. "Hey, give up gluten and see how you do?" Well, it worked. Gluten was the problem. We all know it. But now we have a new doctor and she really does not believe my hubby. ...
  12. cyclinglady
    Hi Cassie! If you are IgA deficient, then any Iga celiac tests could be invalid. It would be helpful if you could post your celiac blood test panel results and include the lab ranges as well. I ask because not all doctors will order the complete panel. The most common and preferred celiac tests are the TTG IgA and the TTG IgG . These tests are pretty...
  13. cyclinglady
    The gold standard for diagnosing celiac disease still includes an endoscopy that obtains several (up to six) tissue samples. Is there a reason that you did not get one two years ago? Some of our members do not get one because of 1) financial reasons or 2) the wait time in obtaining the procedure is long (e.g. Canada). If you can, I would recommend one...
  14. cyclinglady
    No, the endoscopy (obtaining four to six tissue samples) is the gold standard per most medical research (University of Chicago's Celiac Website is one source). Your doctor may want to check out yor colon (e.g. Rule out Chrohns) and it is possible to biopsy the lower end of the small Intestine.
  15. cyclinglady
    Forgot this link stating it is possible to have celiac disease with a positive IGG and not be IGA deficient. Open Original Shared Link
  16. cyclinglady
    I think then answer is yes. I am no expert, but your doctors are following protocol per the GI Association. Get a positive, next step biopsies. I personally tested positive only to the DGP IGA but negative on the rest (same for follow-up testing, so it was not a fluke), yet I had a Marsh Stage IIIB. I would get the biopsies. Oh, did I mention that I...
  17. cyclinglady
    A colonoscopy is much worse in terms of prep. I still can not drink lemon gaterade without shuddering! ? I went in the morning. I was talking to my doctor while I was being prepped and all of a sudden I was in the recovery area! It was that easy! It is also good to have him check for other things like an ulcer or SIBO. It might not just be celiac disease...
  18. cyclinglady
    The learning curve for the gluten free diet is so steep! Mistakes are made when you are a newbie and even for the old timers! ?Each glutening can set you back in healing. The reality is that it does take time to heal. Concentrate on whole easy-to-digest foods. I lived on stewed meats (crockpot) and over-cooked veggies for two months after my last glutening...
  19. cyclinglady
    The employees may not have been able to apologise per their insurance and corporate policy. Let 's face it, people sue for all kinds of reasons in the U.S. I am sorry that you became ill. I will certainly avoid this particular location. I try to read reviews from celiacs before going to a restaurant. If I am not satisfied, then I eat from my cooler...
  20. cyclinglady
    Sounds like a good plan! ?
  21. cyclinglady
    I am so sorry! Hang in there! Hugs!
  22. cyclinglady
    I am not sure the original posters are still around, but any medical doctor can run the celiac panel: -Tissue Transglutaminase (tTG) IgA and (tTG) IgG -Deamidated Gliadin Peptide (DGP) IgA and (DGP) IgG -EMA IgA -total serum IgA and IgG (control test) -AGA IGA and AGA IgG - older and less reliable...
  23. cyclinglady
    All the advice given has been excellent. I think that three months is not enough time to see huge improvements considering that 1) you were very sick and underweight, 2) had other intestinal issues, 3) and the gluten-free diet has a very steep learning curve. Chances are you have other intolerances too, like so many of us. You can try to identify those...
  24. cyclinglady
    Adding my two cents! Nope, gluten-free products are not any better in the U.S. vs. EU/GB. They are about the same -- most are junk! But, I think it is more charming and palatable to eat a gluten-free cookie in the Cotswolds! Just saying...
  25. cyclinglady
    Exactly what celiac tests were given? Often doctors order just the TTG IgA for screening (cheap and reliable) and then check for an IgA deficiency (this determines if the TTG IgA test is valid). If negative and the doctor is still perplexed, he should order the complete celiac panel which includes both the TTG and the DPG (IgA and IgG versions).
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