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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    Twenty years ago, my thyroid lab ranges were normal, but I had a slightly enlarged thyroid with nodules which caused my doctor to order an antibodies test (plus, my Mom had Graves). My TPO antibodies were over 2,000 and anything over 35 was considered high! My doctor put me on a tiny dose of Armour. Over the years, my dosage increased as my thyroid...
  2. cyclinglady
    What are the lab ranges? But, honestly, your doctor would need to run a thyroid antibodies test to see if you have autoimmine Thyroiditis (Hashimoto's if hypo or Graves if hyper). Are you sure gluten has not gotten into your diet? Maybe ask for another celiac panel. What about perimenopause? Have those hormones been tested?
  3. cyclinglady
    You will need to do the blood test first. Open Original Shared Link Take the time and research more about celiac disease. Talk to your doctor. Do not go gluten free until all testing is done. Open Original Shared Link
  4. cyclinglady
    I am sorry that you are sick! There are 300 symptoms related to celiac disease! Open Original Shared Link I would say you qualify for at least screening blood tests. You should rule out celiac disease. I think an IBS diagnosis really means "I be Stumped." Here are the tests and you have to be eating gluten! -Tissue...
  5. cyclinglady
    That is a lot of processed food! You could have an intolerance to any of the gluten-free ingrediants. For example, I could not tolerate Xanthan Gum for a long time (I still avoid it). Can you add fruit and veggies?
  6. cyclinglady
    Welcome to the forum! Depression and anxiety have been linked to celiac disease. Here is a link to a government study: Open Original Shared Link Open Original Shared Link if you are getting tested, please make sure you are consuming gluten or the tests will be invalid. Check out the University of Chicago's celiac website for diagnostic...
  7. cyclinglady
    It is hard to say since everyone is different. Rice? That could be a short-term intolerance, like the alcohol. Remember , your gut is damaged and anything can be hard to digest. Give it a few more months or weeks (if you are lucky) and re-test. ?
  8. cyclinglady
    Please let me clarify. I did not mean to imply that people were not healing from celiac disease. I also did not mean to imply that a follow-up endoscopy is required. I am not an doctor, nor an expert in celiac disease. But with so many of us experiencing food intolerances (myself included), this topic has sparked my curiousity. Specifically, leaky gut...
  9. cyclinglady
    I am not trying to be a Debbie Downer......So, no antibodies in your blood, but how do you know if you have intestinal healing? Did you have another endoscopy/biopsy? Remember, some celiacs are symptom free yet have intestinal damage. Good news about being dietary compliant. That is huge!
  10. cyclinglady
    Basically, celiac disease must be confirmed by biopsies. Sad, but true. I understand your husband's fears. My own hubby worried about me having a C-Section. We had no choice at the time, but the end result was worth it -- a lovely baby girl! Open Original Shared Link Open Original Shared Link
  11. cyclinglady
    Oh, just diagnosing for celiac disease from just an endoscopy/biopsies is not appropriate as other things can cause intestinal damage: Open Original Shared Link
  12. cyclinglady
    The standard is procedure as recommend by British and American Gastroentrologist Associations and Celiac experts is a celiac blood panel followed by an endoscopy taking four to six tissue samples. Open Original Shared Link Open Original Shared Link Open Original Shared Link Open Original Shared Link
  13. cyclinglady
    Ugh! The forum is acting up! Please forgive my typing! Why not go gluten free now? It can take a celiac months to years to recover. It would be difficult to stick to a gluten free diet to test that theory. Not impossible. Just really hard! celiac disease is genetic. Kids, parents and siblings need to be tested every two years even if they have...
  14. cyclinglady
    I am sorry that you are sick! Please do not go gluten free until you have been tested for celiac disease! These are the tests: -Tissue Transglutaminase (tTG) IgA and (tTG) IgG -Deamidated Gliadin Peptide (DGP) IgA and (DGP) IgG -EMA IgA -total serum IgA and IgG (control test) -AGA IGA and...
  15. cyclinglady
    Welcome! I just wanted you to know that I only have tested mildly positive to the DGP IgA (even on follow-up testing) and was negative on all the rest, yet I had Marsh Stage IIIB damage per my biopsies. My visual on the endoscopy was normal. The small intestine is vast (size of a tennis court) and even experts like Dr. Joseph Murray (Mayo Clinc) have...
  16. cyclinglady
    Gourmet Girls Go Gluten Free. 100%!!!!! Located on the NW side on Oracle. Crossroad? Near River. So nice to eat safely. Yummy too! Check out their website.
  17. cyclinglady
    Sorry to hear about your glutening. I can only offer time and patience. It took me three months to recover from my last glutening (my GI ordered an antibodies test because I was so bad) . Six months to gain back the weight I lost. I have not eaten outside of my house since July. Seriously. No restaurant is worth the risk for me except for one...
  18. cyclinglady
    No, I disagree. The reality is that when fighting in the "trenches", it would be hard to insure that MRE's are gluten free for those who have celiac disease. Read more from members who have been in the military:
  19. cyclinglady
    I am glad your Ped GI has your child back on crackers in case of an endoscopy. You need at least two to four weeks of consuming gluten for an endoscopy (more for the celiac blood panel). I am saying this because some doctors fail to follow celiac diagnostic procedures published by the American and British GI Associations. I am not a doctor, but the...
  20. cyclinglady
    FYI. My visual on the endoscopy was normal. My biopsy revealed a Marsh Stage IIIB. Hopefully, you'll get results sooner! I am glad the procedure went well.
  21. cyclinglady
    Bartfull is correct. Most of our celiac.com members have some intolerances of some sort (soy, corn, histamines, salicylates.....the list is endless and unique to each person). You can search all you like with the forum to see that I am correct. I can tell you that I am now wearing perfume after 20 years of not wearing any scent at all! Most of my...
  22. cyclinglady
    Dumb question? Does she consume dairy (milk, cheese, yogurt), etc.? Here's another one....fermented foods were not for me when I was still recovering from celiac disease (even though they are healthy for most). Same goes for nuts. Just too hard to digest. What are you feeding her now? I ask because while recovering, I could only eat stewed meats...
  23. cyclinglady
    Remember, the small intestine is roughly the size of a tennis court! It is easy for the GI to miss damaged patches as they are not visible. Did you get copies of the biopsy report? How many samples and where were they taken? Open Original Shared Link Frieze is right. You should confirm if the IgG versions of the the DPG and TTG were taken...
  24. cyclinglady
    I am so sorry that your little one is so ill! Stephanie has offered up some excellent advice. I am not going to argue that the top celiac specialists do not approve of stool testing for celiac disease (and I know the lab is accredited but that is meanlingless here). Open Original Shared Link But, it sounds like your daughter maybe getting...
  25. cyclinglady
    Unfortunately, there is no test to diagnosis Non-Celiac Gluten Sensitivity. It is a process of elimination (namely, eliminating celiac disease and other intestinal illness (e.g. SIBO, Crohn's)). Since you have been gluten free, you would need to consider a gluten challenge: Open Original Shared Link Open Original Shared Link Here's more about...
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