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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    I am sorry that your doctors were not able to help you! I am glad that you are doing so well now! It is hard for many to remain gluten free for life. It can be done (hubby has been gluten-free for 14 years without a diagnosis) but there are many reasons someone like Deryk should be tested before going gluten free. Why? http://celiacdisease.about...
  2. cyclinglady
    Normally, I would recommend that you get tested for celiac disease, but you have been gluten free for a while (or maybe not with all your glutenings and it might be worth getting tested to see if you have antibodies in your system). But doing a gluten challenge can be difficult: Open Original Shared Link You could just remain gluten free for life...
  3. cyclinglady
    Who knows? Could be celiac disease, allergies, food intolerances, etc. Consider getting tested or learning more about celiac disease. The University of Chicago has a very good web-site on celiac disease: http://www.cureceliacdisease.org/medical-professionals/guide/diagnosis Also consider keeping a food journal. Good Luck!
  4. cyclinglady
    If it is not DH, then consider researching a histamine intolerance which may just be temporary. I am not a doctor, but something to think about. In any case, remaining gluten-free is critical. Sorry to hear you were glutened!
  5. cyclinglady
    I am sorry both your husband and little girl are ill. The only way to know if they have celiac disease is to get tested: Open Original Shared Link Please continue to eat gluten until all testing is complete! Welcome to the forum!
  6. cyclinglady
    I like those tags! I wear a Road ID when I run or bike ride. Nice to have medical information and phone numbers handy in case I am not conscious. My daughter runs with one too as she's in Track/Cross Country and they leave the campus. Open Original Shared Link And...I am not affiliated with this company in anyway!
  7. cyclinglady
    Welcome! I do not understand what you mean by "Celiac Screen". I think it means the following: TTG IgA and an IgA Total Serum deficiency test That is a typical screening test for celiac disease and it is very sensitive. The deficiency test used with the TTG IgA lets the doctor know if the TTG is working (control test). This screening is...
  8. cyclinglady
    Consider getting tested for celiac disease prior to going gluten free. But, to answer your question, it can take a few months to several years to recover from celiac disease.
  9. cyclinglady
    Yes! Ask your doctor to order a complete thyroid panel and be sure that he includes thyroid antibodies too. You can have more than one autoimmune disorder. Sad, but true!
  10. cyclinglady
    You could have an allergy to wheat and that is totally unrelated to celiac disease. But, why are you so worried about having an endoscopy? I have been "knocked out" for several things (C-section, gallbladder, etc.) and I can relate to your concerns (actually, my hubby worries more about this) but each time, the end result was well worth it. Did you...
  11. cyclinglady
    It sounds like you had a few positives indicating celiac disease, but your biopsies failed to confirm it. The small intestine is vast. It is the size of a tennis court when stretch out. So, it is easy to miss damaged areas. GI doctors are supposed to obtain four to six tissue samples at certain locations. Often just a "visual" check reveals nothing....
  12. cyclinglady
    I am sorry that your daughter is ill! No matter what the outcome, please continue to advocate for her health! The way you presented the results, it appears that she tested negative. BUT.....BUT.....did the doctor test her for an IgA deficiency? That would let us know if the TTG IgA test is valid or not. Also, the complete panel which includes DGP...
  13. cyclinglady
    Two positives? Looks like an endoscopy is in order. When I tested, I only had one positive on the DGP IgA and the rest were negative, yet I had a Marsh Stage IIIB which translates to moderate to severe damage. Good luck and keep us posted!
  14. cyclinglady
    Haven't been to Hershey since I was a kid and I did not have to worry about gluten back then. I can recommend contacting local celiac groups, using the App "Find Me Gluten Free" (be sure to ready reviews from those who actually have celiac disease), and take along some safe gluten-free foods. We travel for fun and work. If by plane, we bring snacks...
  15. cyclinglady
    It will get better!
  16. cyclinglady
    Throw in a little perimenopausal or thyroid issues on top of celiac-related issues and you can get really grumpy!
  17. cyclinglady
    I am sorry that you are sick! The only way to know if you have celiac disease is to get tested: Open Original Shared Link You must be consuming gluten daily or the tests will be inaccurate! Symptoms: Open Original Shared Link Please do not settle for an IBS diagnosis. I personally think it is just code for "I Be Stumped"...
  18. cyclinglady
    Ugh! Your doctor sounds like he is not celiac savvy! You must be consuming gluten daily (about 8 to 12 week) prior to a celiac blood panel. If you are gluten free, your body will stop producing antibodies! SSL Runner is right! Open Original Shared Link I happen to be the first in my family to have celiac disease which is an autoimmune disorder...
  19. cyclinglady
    Welcome to the forum! Many of us can relate to your symptoms. But, the celiac blood panel, an endoscopy taking four to six biopsies can help diagnose celiac disease. This is a good time to research celiac disease and the University of Chicago Celiac website is a great place to start. They are one of the leading researchers in the U.S. and have a pretty...
  20. cyclinglady
    Welcome to the forum! Have you had any follow-up antibodies celiac testing? You should first rule out any gluten sneaking into your diet before investigating other possible issues. When intestinal villi damage occurs, it can prevent the necessary enzymes to digest foods easily (like lactose (milk sugars)). So, many celiacs often have temporary or...
  21. cyclinglady
    I forgot to add this...I only had one positive on the complete celiac panel. I had a positive on the DGP IgA test, my visual endoscopy "looked fine" but my biopsies revealed a Marsh Stage IIIB (moderate to severe villi damage). My symptom at the time was anemia. Keep eating gluten daily until all testing is complete. This is really important! ...
  22. cyclinglady
    Welcome! We are not doctor's here, but it appears that you have a positive on the celiac blood panel. You just need one positive for your doctor to take the next step which is a referral to a GI doctor (and you have that). You will need to confirm celiac disease via an endoscopy where they take four to six samples. You can read more here: Open Original...
  23. cyclinglady
    Consider getting tested for celiac disease (an autoimmune disorder) before you go gluten free. Here is a link about it: Open Original Shared Link Going gluten free as a "test" is not usually very helpful. That is because if you have celiac disease, it can take months to years, (yes, years), to heal. So, it is hard to maintain the diet for years...
  24. cyclinglady
    I am pretty much grain free because I am diabetic (my meter tells me so!) So, I fill up on plenty of fats! I have been gluten-free for three years, so I have dairy back. I add cream to everything! Lots of butter, olive and coconut oils, avocados and fat from meat. Bacon! Bacon! Bacon! Anyway, my cholesterol levels are great (only carbs from veggies...
  25. cyclinglady
    Most toiletry products are fine even if they have wheat/gluten in them. The main issue is not to ingest them! Many folks with celiac disease are careful with shampoo, conditioner, soap, lotion, lipstick, lip gloss, hair products, and sunscreen because they could be accidentally swallowed (if you chew on your nails, etc.). I have used Crystal Deodorant...
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