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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    Exactly what celiac tests were given? Often just an IGA deficiency and a TTG iga screening tests are given. Some people (like me) test negative on the TTG tests. I only had one positive on the DGP IGA, yet I had moderate to severe intestinal damage based on my biopsies. Here is the complete panel: -Tissue Transglutaminase (tTG) IgA and (tTG) IgG...
  2. cyclinglady
    Ah, the Gluten Watchdog to the rescue! Tricia Thompson addresses this very study and independently tests on her own. Bottom line is.....it is safe to drink green tea! Again, I personally recommend reading labels and sticking with reputable tea companies. Open Original Shared Link
  3. cyclinglady
    Jean, Did you actually read the study? Not to offend you, but the study pointed out that there may be issues with various testing methods in detecting gluten. There was no mention of tea bags! To be very safe, buy tea from a reputable large company and read the label. I purchase Lipton all the time! Both hubby and I are gluten free and we consume...
  4. cyclinglady
    Here is a link to a posting made by Jebby, who is a PED doctor with celiac disease. She posted about this very topic! https://www.celiac.com/forums/blog/1038/entry-1762-eosinophilic-esophagitis-and-celiac-disease/
  5. cyclinglady
    Many celiacs also have eosinophilia esophagitis brought on by allergies (at least I have seen many postings). Has this been discussed? Here is a link: Open Original Shared Link Welcome to the forum! You might consider copying this blog entry into the regular forum section. The blogs are not read with as much frequency. Plus, you might get more responses...
  6. cyclinglady
    Kids can spring back pretty fast, but adults can take much longer. Usually it takes six months or years to feel better. But your daughter should see some results in a few weeks. Please read the "newbie 101" section found under the coping section of this forum. It contains valuable tips as the gluten-free diet has a steep learning curve. My advice is...
  7. cyclinglady
    Hopefully, someone will address a solution for stretch marks, but I never had one even while pregnant and I have celiac disease. I think it is just a genetic issue. My mom never had them either.
  8. cyclinglady
    How much gluten is he consuming? My kid eats gluten-free at home. I fed her plenty of gluten prior to her blood draw and her results were negative (symptom free and no anemia which was my issue). She gets gluten at school now, but that is it. She hardly gets gluten during the summer because we do not allow gluten in the house. Not sure if I would...
  9. cyclinglady
    Have you been tested for thyroid disease? Graves Disease (autoimmune hyper) can affect one or both eyes (lots of doctors assume it should affect both eyes....). It can cause tearing and eye pain, especially the muscles around the eye. It took some time for doctors to catch my Mom's Graves Disease. Regarding the blood test.... I assume the TTG is a celiac...
  10. cyclinglady
    Hi Cherries! Here is the list of celiac tests but you have to be consuming gluten in order for the tests to work. Like 1 to 2 slices of bread a day for 8 to 12 weeks! -Tissue Transglutaminase (tTG) IgA and (tTG) IgG -Deamidated Gliadin Peptide (DGP) IgA and (DGP) IgG -EMA IgA -total serum IgA and IgG (control test) -AGA IGA and AGA IgG - older...
  11. cyclinglady
    To make you feel better, try Republic of Tea. They are certified gluten free. I drink that and plain old Lipton.
  12. cyclinglady
    Dang, Barty! All your talk of grilled cheese sandwiches drove me to making one last week. I usually never do any grains because any kind of grain spikes my blood sugar, but it was to "die for". I paid dearly though! Bad tummy ache. I became lactose intolerant after my July accidental glutening. Might try it again taking those lactose enzymes as I...
  13. cyclinglady
    So glad that you are feeling better!
  14. cyclinglady
    I have been gluten-free since 4/2013 but became ill this past July. My GI ran the complete set of celiac disease blood tests before we started looking at other possible issues (SIBO, bile duct, etc). Got a positive (high). Now trying to determine what was glutening me. We suspect a prescription drug or one product that only I use since my husband did...
  15. cyclinglady
    Soy was okay for me, but others with celiac disease have had issues with it. Many are bothered by corn too. Hopefully any intolerances will be temporary (6 months to a year). Your best bet is to eat plain foods that are easily digested. Things like stewed meat, fish, cookies veggies, rice fruit -- comfort foods. Save the spicy foods until some of your...
  16. cyclinglady
    I have Hashi's and I test negative to the TTG tests (just had one done recently after a glutening). I only test positive to the DGP IGA test and I had moderate to severed intestinal damage. Why? Doctor's are stumped. Maybe the Hashimoto's had something to do with it. I can also tell you that my endoscopy looked good -- no visual damage. Again...
  17. cyclinglady
    Here are the tests for celiac disease: -Tissue Transglutaminase (tTG) IgA and (tTG) IgG -Deamidated Gliadin Peptide (DGP) IgA and (DGP) IgG -EMA IgA -total serum IgA and IgG (control test) -AGA IGA and AGA IgG - older and less reliable tests largely replace by the DGP tests -endoscopic biopsy - make sure at least 6 samples are taken (Source: NVSMOM...
  18. cyclinglady
    If you are going to be gluten free, then stand your ground! It is not a matter of being dishonest. It is your health! I would not buy meat from behind the counter that is sitting next to stuffed pork chops! Buy it in the package. At least the butcher is making dozens of packages and is not mixing up stuffing or seasoning at the same time. Talk to...
  19. cyclinglady
    Cross contamination exposure can last for days, weeks or months! Everyone is different. You must wash you hands before you eat! That is imperative! I do not care how cracked your hands are (mine are horrible from cracking and bleeding because I have contact dermatitis). Use coconut or olive oil on them and water gloves to bed to aid in healing. ...
  20. cyclinglady
    Well, it is not perfect, but what is? You should get copies of your sister's results and at least make sure you are getting the same tests. For example, my doctor ran the entire panel and I only tested positive on one (DGP IGA) and negative on the rest yet biopsies revealed a Marsh Stage IIIB (mod to severe intestinal damage). So, my kid gets the complete...
  21. cyclinglady
    Welcome! Read this link from the University of Chicago. It is good to be tested every few years (even without symptoms) or as symptoms develop. Open Original Shared Link
  22. cyclinglady
    Sounds like bull......this guy is into alignments. Good to go for a hurt shoulder, but not for a celiac diagnosis. Have a medical doctor order the blood tests. There is no credible test for gluten sensitivity. And an allergist (MD) is your best bet for testing for allergies. A medical doctor can check your blood sugar too. But....if the chiro can...
  23. cyclinglady
    Did you get the complete panel? Here is the list of tests: -Tissue Transglutaminase (tTG) IgA and (tTG) IgG -Deamidated Gliadin Peptide (DGP) IgA and (DGP) IgG -EMA IgA -total serum IgA and IgG (control test) -AGA IGA and AGA IgG - older and less reliable tests largely replace by the DGP tests -endoscopic biopsy - make sure at least 6 samples are...
  24. cyclinglady
    So happy for you!
  25. cyclinglady
    The only way to tell is to get tested. Ask for this celiac blood panel from your medical doctor: -Tissue Transglutaminase (tTG) IgA and (tTG) IgG -Deamidated Gliadin Peptide (DGP) IgA and (DGP) IgG -EMA IgA -total serum IgA and IgG (control test) -AGA IGA and AGA IgG - older and less reliable tests largely replace by the DGP tests -endoscopic biopsy...
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