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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    I can not believe that you have had to suffer for so long! It makes me ! Glad you are feeling better! Oh, I use Armour.
  2. cyclinglady
    You sound like you need a GI refferal. A HIDA scan will catch a non-functioning gallbladder. The ultrasound just looks for stones. Here is a link that talks about gallbladders. It is not a gov or edu site, but it is informative and I send it to family. The gallbladder curse runs strong in my family! ☺️ Open Original Shared Link My Dad got dow...
  3. cyclinglady
    I had no noticeable symptoms at the time of my diagnosis. I was in for a routine colonoscopy and during my GI consult my doctor said that he thought I had celiac disease based on my life-long anemia (I already had a genetic anemia). I was shocked! I had no tummy issues. Three months after my diagnosis, I was dealing with fractures due to osteoporosis...
  4. cyclinglady
    Well, it seems like you have been adhering to the gluten-free diet. Were these the first celiac blood tests you took? You might have had a negative result in the past, but perhaps the doctor did not check for an IGA deficiency then. I admit that I am stumped! Unless you must have an official diagnosis, just keep eating gluten free. Try researching...
  5. cyclinglady
    It looks like you do not have celiac disease (you were eating gluten for up to 12 weeks prior to the test, right?). No deficiencies, parasites, bacterial infections, anemia, etc? You could try a gluten free diet and see if it helps, consider a FODMAP diet, or keep a journal to help you determine if any foods are suspect. I wish you well!
  6. cyclinglady
    Welcome! Were you eating luten daily for at least 12 weeks prior to the blood draw (except for the day or so that you went gluten free? Can you type and post your results? There are the tests: -tTG IgA and tTG IgG -DGP IgA and DGP IgG -EMA IgA -total serum IgA and IgG (control test) -AGA IGA and AGA IgG - older and less reliable tests largely...
  7. cyclinglady
    First, take a deep breath and try to relax! There are benefits of consulting Dr. Google, but there are negative things too. Remember, it is just a tool and you are not a doctor! It sounds like from your posts that your celiac antibodies are still high. Anxiety is one of the many celiac disease symptoms! It appears that you maybe getting glutened....
  8. cyclinglady
    Here is a link to an an posting with our forum about narcolepsy..... https://www.celiac.com/forums/topic/68207-tiredness-poll/?hl=narcalepsy#entry605872
  9. cyclinglady
    A gluten challenge is typically 12 weeks of consuming a slice or two of bread a day. Go to the University of Chicago's celiac website for more information about a challenge.
  10. cyclinglady
    Oh, your research might show that by going gluten-free, many people miss out on valuable nutrients. That is true for those that survive on a junk food diet! I suspect you do not fall into that category (not that I never eat a chip, but those are considered treats and saved for parties or emergency foo while on the road!
  11. cyclinglady
    Are you still taking the sublingual supplements? That might help.
  12. cyclinglady
    It is either 100% (including cross contamination) or nothing. Simply a reduction in gluten is not beneficial for someone with celiac disease or NCGI. celiac disease is an autoimmune response triggered of all things, gluten! A tiny spec can set off an autoimmune flare-up that can last for weeks. It is the only Autoimmune disorder that is triggered by a...
  13. cyclinglady
    Your best bet (and you already know this) is to eat a clean healthy diet. No junk food at least until you see some improvement! You could be reacting to a variety of chemicals, preservatives, gums, etc. I could not tolerate guar gum, a bread additive that mimics gluten properties. Did not bother my gluten-free hubby, so it was just me. Take care!
  14. cyclinglady
    There should be not issues remaining gluten free during your pregnancy, postpartum, and while lactating as long as you are eating a healthy diet. I would even keep baby on a gluten-free diet to give him or her the best chance of developing and growing. Think about a gluten challenge prior to school years perhaps. There really has not been enough research...
  15. cyclinglady
    You only need about 1 to 2 slices of bread daily to meet a gluten challenge. You can eat it all at dinner. I am not a doctor, but the sleeping issues may not be related to gluten at all. Not saying that you might not have a gluten issue, but they could be separate issues.
  16. cyclinglady
    What are the results of you lab tests after starting the b-12 shots? I would think your doctor would base your injection schedule and dosage on lab results and the fact you have celiac disease and not just because normal procedure dictates it for the average patient.
  17. cyclinglady
    Changing the subject from celiac disease, maybe you should research A FODMAP diet that has been very helpful in treating IBS. It is not about gluten, but sugars that also happen to be in wheat, veggies, and other foods. Here is a link: Open Original Shared Link It may help you depression symptoms as well. Sounds like just going gluten free is not...
  18. cyclinglady
    Josep, Here is a recent (3-31-2015) transcript of a conference discussing possible pharmaceutical interventions for those with celiac disease that one of our members posted: Open Original Shared Link It is rather long, but the introductions are done by Joseph Murrary of the Mayo Clnic and Alessio Fansano (Open Original Shared Link). Dr. Murray stated...
  19. cyclinglady
    You are lucky to have such a nice supportive family!
  20. cyclinglady
    Keep eating gluten until all testing is complete. Check out the University of Chicago's celiac website which is one of the leading research hospitals in the U.S. to confirm my advice! It can take weeks or months for someone with celiac disease to feel better. Chances are, going gluten free for a week is not going to improve your health. Heck! I only...
  21. cyclinglady
    Were you actually tested for celiac disease? Were you diagnosed with IBS? If you were to have celiac disease or Non-Celiac Gluten Intolerance, then going back on gluten even for a few weeks (to please others) would make you very ill. Perhaps, you have an intolerance to other foods like dairy or soy?
  22. cyclinglady
    We eat Mission Chips all the time. Never been glutened. I just ate some Guerrero tortillas that are not certified but are gluten free. They crank out so many tortillas that they never share lines. So, knowing that they also process wheat flour tortillas is fine with me. They are not good my my diabetes, but a fresh package? Yum! Costco has several...
  23. cyclinglady
    Hugs! Your symptoms do not match my Hashi's symptoms (running hyper or hypo), but sound a lot like a food intolerance. I can tell you that I ate lots of jalapeño peppers the other day and they made me sick. Woke up with tummy rumblings, could not get back to sleep and my roseacea flared. I hope you figure it out!
  24. cyclinglady
    I am not aware of any Gardasil and celiac disease link. I never had the vaccine and yet I still developed celiac disease and Hashimoto's thyroiditis. I think AI diseases tend to run in families and my family is riddled with them. I can tell you that my daughter had a seizure when this vaccine was administered to her. Scared the $&@% out of me!...
  25. cyclinglady
    Three years gluten free....hum.....you must have been glutened during that time. Most of us can tell when we have been glutened even if we do not get noticeable abdominal symptoms. it sounds like your symptoms went away on a gluten-free diet, but did they come back during an accidental glutening? When you said your thyroid is normal, I take it that...
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