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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    Seriously, it hit 100 yesterday and we opted for cold Costco chicken, cold salad and cold cantaloupe. Tonight it is grilled pork tenderloin and more cold salad and fruit. It is expected to be even HOTTER! Ugh! What happened to "Gray May" (ocean-driven, cloudy-overcast that typically occurs until noon and keeps temperatures moderate)? I sure hope "June...
  2. cyclinglady
    It is not rare to develop celiac disease at 50. It can develop at any time.
  3. cyclinglady
    Definitely check the birth control pills.
  4. cyclinglady
    There is malted barley in regular Rice Krispies, but I know that there is a gluten free version of this cereal by the Kellogg's. Check the label again?
  5. cyclinglady
    Keep eating gluten until all testing is complete (lactose intolerance often goes hand-in-hand with celiac disease due to intestinal damage) so that might have to go until you are healed. Sorry you are feeling unwell.
  6. cyclinglady
    Yes! I was a crazy lady! I became anxious and irritable. Frankly, I just did not think well. Weird, since I used to be a very successful marketing manager before I opted to stay at home with my daughter. I blamed it on perimenopause, but it was Celiac disease. My husband and I still become irritable if we accidentally ingest gluten (he can not have gluten...
  7. cyclinglady
    Welcome! Here is a link to the University of Chicago's website for celiac disease. It contains a list of symptoms and and the testing requirements that you can share with your doctor. Open Original Shared Link I was severely anemic and that happened to be my only symptom. Iron tablets helped, but I could never get ahead...... Hair loss, could be...
  8. cyclinglady
    I think it helps a lot! Family members will not have to suffer for years before getting a diagnosis.
  9. cyclinglady
    I am sorry that you are feeling unwell! Here is a link to the University of Chicago's celiac website. Share the test requirements with your doctor: Open Original Shared Link Keep eating gluten until all testing is complete! It is hard, but it can be done! You can do it! just take one day at a time.
  10. cyclinglady
    Yep, I have had Hashi's for 20 years. My antibodies have been off the charts over the years. I have thalassemia, so I have always been slightly anemic. Then the last year of perimenopause I began very anemic. No one suspected anything. Lowest ferritin was a 2. Went for a routine colonoscopy and the GI suspected Celiac. Blood test mildly positive...
  11. cyclinglady
    Here is a link listing all kinds of things that can damage villi. It is from the U of Chicago. Open Original Shared Link
  12. cyclinglady
    I am not a dentist, but those look like teeth affected by celiac based on my highly scientific research "Google Images"! Ha! Sure an endoscopy is invasive, but why not start with a celiac blood panel? Here is a link to the University of Chicago's celiac website. Print off testing procedures and symptom list to share with the Ped Gastro. Open Original...
  13. cyclinglady
    Eat it everyday. Here is a link about a gluten challenge: Open Original Shared Link
  14. cyclinglady
    Good strategy on sticking to whole foods! I can tell you that I after my diagnosis, I started consuming gluten-free breads and desserts that I made or bought for my gluten-free husband for the past 13 years. I think my gut could not handle Xanthan gum. It could not handle lots of things. Things really improved when I ate whole foods and allowed time to...
  15. cyclinglady
    I just bake gluten-free items for everyone and no one can tell the difference. My daughter requested my gluten-free cake over a store-bought bakery cake that was rated best in our county! Adults rave too. But bragging is not the topic. I would never bake with gluten in my kitchen. It is too hard to contain. My husband has been gluten-free for 13 years...
  16. cyclinglady
    Have you read the newbie section under "Coping"? There are lots of tips to expedite healing -- like giving up dairy until your intestines heal.
  17. cyclinglady
    Keep at it! Took me six weeks to get relief and I only got tummy issues during the actual diagnostic period (ate tons of gluten as a farewell). Do not go back to eating gluten. Carpool time. Got to go.
  18. cyclinglady
    Am off to school...but here are a few: Taro -- starchy Bok choy -- like cabbage Chia seed I can not have garlic or anything from the onion family. That might be a first group to eliminate. Got to go.....carpool time!
  19. cyclinglady
    So, you had both an endoscopy and a colonoscopy? I had both but the gastro took biopsies of the small intestine during the endoscopy to determine celiac disease. The colonoscopy was just a well-check since I was over 50. Yes, you can have more than just celiac.
  20. cyclinglady
    Here is a link to the. University of Chicago's celiac website. It contains the blood test requirements and a list of symptoms that you can share with your doctors. Do not stop eating gluten until all testing is complete. Open Original Shared Link I hope this helps!
  21. cyclinglady
    There is no "reliable advice" regarding the amount of time it takes to heal from Celiac Disease. That is because it is an autoimmune disorder that relies on diet alone for healing and everyone heals at a different pace. How can doctors or researchers track actual compliance from patients other than locking them up and feeding them gluten free foods for...
  22. cyclinglady
    Have you been diagnosed as having Celiac disease? If not diagnosed formally with celiac disease, were you hoping that a gluten free diet would help and it has not? Or are you having a hard time staying on the gluten free diet? Please clarify! I would love to try to help you.
  23. cyclinglady
    Rolled in from a camping weekend with a big group of friends near San Diego. Bought a Costco chicken on Friday and fixings prepared so that my family can heat and serve me! Winds are picking up. Expected to be a scorcher tomorrow! Yosemite! Have fun, Lisa! Happy Mother's Day!
  24. cyclinglady
    Here is the link to U of C: Open Original Shared Link A gene test is not really worthless but is typically used to help diagnosis (or exclude) when the other celiac tests have been done. Your doctor skipped some critical tests. I would find another doctor. If you change your diet now, you'll never really know if you have celiac disease. A firm diagnosis...
  25. cyclinglady
    The foster parents should not start a gluten free diet! You have to be consuming gluten in order to be properly tested. A definitive diagnosis would be best in this instance so that this family can be reunited.
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