Nantzie

I don't have any specific advice. Just sorry you're going through this. Have you discussed your worries with your doctor in detail? He may not realize how serious your concerns are. If the doctor doesn't have any ideas on how to make this surgery workable, you might want to get a second opinion just to see if maybe another doctor might be able to figure...

Just so everyone here knows, the rant I posted here yesterday was actually split off into another topic and not deleted as a couple people who PMd me thought that it had been. For anyone who wants to find it it was put in the Board/Forum Technical Help area - or follow this link - (removed by Nancy) Update - I PMd Scott earlier today and he PMd me letting...

Have you thought about changing the varietal? I started getting really bad reactions to cabernet. It was almost like a gluten reaction, but not quite. When I changed to merlot, I stopped having problems, even with the same wineries I was having problems with from the cab. I have a friend who has the opposite problem, can't drink merlot, but has no problems...

Yea, it's probably cross contamination rather than the coffee. If you think about it, how many times before finding out about gluten did you think "I just touched some bread. I have to wash my hands before making the coffee." The person behind the counter making the sandwiches and setting out the bagels is probably the same person making the coffee ...

I'm relatively sensitive. Even though you are having possible reactions to larger amounts of gluten, I think my experience with smaller amounts might be helpful to you. My big PITA product category is haircare products. There are products that others seem to have no problem with that I react to. But it can take a few days (I'm guessing the gluten...

I had two bowls of gluten-free Corn Chex for lunch. Corn Chex was one of my favorite cereals before going gluten-free, so I'm a happy girl. Can't wait to try the cinnamon and the strawberry. Yum!

I also had speech slurring before I went gluten-free. It got to the point where I couldn't even read a book to my kids. This symptom showed up when I was already sure that gluten was the problem, but I was waiting for test results to see if it was classic celiac or not. Now that I'm gluten-free, I don't get that symptom unless I'm glutened really badly...

I usually know if I've been glutened within 15 or 20 minutes too. I'm glad I saw this thread because I had been thinking about trying Wendy's. I'll stick to the butter, chives and sour cream. I'll keep it away from my dog though.. I had a dog when I was little that ate a whole chocolate Santa that was wrapped in tinfoil, with a $5 bill wrapped...

I found this article about eczema, which I've thought might sound like my hand reaction. Open Original Shared Link They mention allergens (including wheat) being a trigger. It's possible that they just haven't put 2 and 2 together yet to specifically connect some types of eczema with celiac like they have with DH.

Almost the same thing happens to my hands. Just the backs of my hands including my lower knuckles but not my fingers or thumb. The skin gets all dry and kind of lizardy or something.. And the skin on my knuckles splits (the little cuts). It's reddish and hurts like hell, but I don't remember it being itchy. Mine doesn't flake off. The first time...

You've got a few things that might be too difficult to digest. Especially since you're super sensitive and your body never seems to get a chance to fully heal. The first several months (maybe even a year or so?) after going gluten-free, there were still a lot of things that just killed my stomach. I wouldn't get a full-on gluten symptom complex with my...

You are KIDDING me!!! That's ridiculous. That's so sad because most of the people here are great. But it gets exhausting dealing with the vocal minority. I agree that it's the only community to find answers. Even when I haven't been an active member, this is the place I go when I need information. But I had been limiting my time here to searching for...

Oh my God!! That is re-freaking-diculous. I just posted my reply before I saw this. Are you seriously going to be this rude to someone who is just saying that this product might be a problem. Obviously this is not directed at you because you don't react to topical product (and again, congratulations - still jealous too). So if this topic doesn't pertain...

You absolutely can get glutened by topical products, for the reasons that raisin stated. If this wasn't possible, why would we have to worry about cross contamination at all? It's basically the same thing happening. Gluten on your hands, either from touching a piece of gluten bread, or not realizing you ran your hands through your hair before you used...