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AmandaD

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Latest Celiac Disease News & Research:

Everything posted by AmandaD

  1. AmandaD
    I have three kids myself - and biopsy proven celiac. If it were my children - even though it's an expensive deductible, etc...I would have the biopsy done. So many people question celiac - especially when it's in children. They can be kind of crappy to parents until they understand that the child has the full, gold standard diagnosis and then you can actually...
  2. AmandaD
    I was diagnosed by biospy Sept. 5 and while things seem to be better, I still have setbacks on some days. And I know for a fact that at three months post-dx I was just STARTING to feel like things were change. Think - really it's only been a matter of weeks. AmandaD Sillyak - Did you have the ttg test and endoscopy to determine it was celiac?
  3. AmandaD
    DON'T BUY RICE DREAM. BARLEY IN IT...
  4. AmandaD
    I had this similar feeling, but it felt a bit liky my esophagus was swollen? Does that make sense?
  5. AmandaD
    If these are from a doctor's office, then you have celiac. Your ttg test is specific for the celiac antibody - anything higher than 10 is considered positive for celiac. Although, your doc should be talking to you about these results. You'll need the endoscopy next to determine the extent of the condition/villi flattening.
  6. AmandaD
    Good for you, floridanative - I'm glad you were diagnosed solidly sprue and that you pursued it. Funny how doctors are...
  7. AmandaD
    Glad to hear that -I'll be going in in about 2 months for my 6 month checkup. Can I ask how you've done overall - have all symptoms stopped completely for you? Or do you occasionally have gluten slip-ups?
  8. AmandaD
    My TTG antibody level at my doctor's office was only 10.5 and they found moderate damage when they did the endoscopy...weird?
  9. AmandaD

    ARCHIVED Question?

    AmandaD posted a topic in Coping with Celiac Disease

    Has anyone had a gluten reaction to painting walls in your house with paint? Is that something I need to be careful of? Also does anybody have a reaction if they eat a really high fat meal? Thanks again!
  10. AmandaD
    This is the Bailey's Irish Cream statement regarding gluten, this makes me assume it isn't gluten free...correct???: Gluten: Please be advised that the whiskey used in Baileys is manufactured by fermenting grain, which contains gluten. Due to the presence of gluten in the whiskey components before distillation we cannot absolutely guarantee that there...
  11. AmandaD
    Guys - Urgent ...I checked the Bailey's Irish Cream website and they said something about it not being safe for celiacs...where did you get info that Bailey's is safe???? Thanks! This is the Bailey's Irish Cream statement regarding gluten, this makes me assume it isn't gluten free...correct???: Gluten: Please be advised that the whiskey...
  12. AmandaD
    celiac3270 - These lists pertain to the U.S., correct? Not Canada or another country, right?
  13. AmandaD
    I use one large grated potato. It works wonderful and the flavor is absolutely terrific.
  14. AmandaD
    BETTY - Be careful of some types of Rice milk and Soy milk...for instance, Rice Dream is not gluten free - it is processed with barley. I had my first gluten reaction to it two weeks ago (i just grabbed it and thought since it was rice it was okay). AmandaD
  15. AmandaD
    Guys - I make sweet stuff from scratch now all the time - one of the best brownie recipes I've found is on this website - go to the recipes section - it's the chocolate traditional brownies, i think there's like cornstarch in them, eggs, etc. i add 1 tbsp. of potato flour to the recipe as well as a handful or two of nestle choc. chips and they just turn...
  16. AmandaD
    Thanks Patti - I live here in Wisconsin...my 5 year old just started Kind and my 3 year old just started pre-school (just this week, actually) - I swear I love them to bits but they're little germ mongers! I wish I could open up all the windows and air this place out - it's like a petri dish...
  17. AmandaD
    Hi guys - Last week I had my first gluten reaction to Rice Dream that I had been drinking (has barley in it). So, I gradually felt better all week and then BAM! my two daughters started vomiting in the middle of the night on Saturday and I woke up sick to my stomach too with wonderful D and feeling achy and sick. Anyone know if stomach flu causes problems...
  18. AmandaD
    I thought I should just write a quick thank you to all of you out there on this board. Over the past 4 months of utter confusion about the diet...and not exactly complete understanding from my family (who's actually very wonderful, but just a bit clueless - a friend said to me on the phone yesterday "Hey, it'll be great when you grow out of this and can eat...
  19. AmandaD
    Thank you jerseyangel
  20. AmandaD
    I'd like to make a recipe with BUTTERSCOTCH BAKING CHIPS. I just called Hershey's and they said their ingredients would state whether or not their chips had gluten in them. Does anyone know if I can use Butterscotch chips from Hershey's safely...I'm neurotic now Thank you.
  21. AmandaD
    You know, I think some green tea helps. ... it sort of constipates me Isn't this whole thing frustrating...I can't imagine having to eliminate lectins...it's so much work just to eat, isn't it??? AGGGGGHHH
  22. AmandaD
    Thank you all so much...right now I seem to be turning a corner so that's good. I'm actually writing down all of your advice - in between cleaning my kitchen ) ... You know what's weird, is that this reaction was a lot less strong compared to what I was having when I was first diagnosed. I think that's odd. I grabbed that damn rice milk because...
  23. AmandaD
    Do not worry. They put me under mild sedation but I honestly don't remember a thing or didn't feel a thing - they said it would make me have amnesia. It was the best 3 hour sleep I've ever had. I would totally do it again...amanda in wisconsin
  24. AmandaD
    Thanks everybody. Seriously, what a b$#%$! This Celiac stuff drives me nutso!!!!!!!!!!!!!!!!!!
  25. AmandaD
    Hi guys - I've been gluten free since Sept. 5 (my endoscopy) and have celiac. A couple of days ago I decided to try Rice Dream milk and have been drinking it - and the past two days have the same soft stools that I had when I first found out I had this frustrating celiac thing! I get online and read that Rice Dream is not gluten free...I can't believe I was...
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