LauraTX

Thank you guys for the suggestions, even if they weren't for me   I just went the total whole foods approach since I was sick of reading SOY on every ******* label. Good to know there are some allergen free things.

 

Is the Tinkyada in the pink bag?  Sounds familiar.....

It is in all kinds of pastel/clear bag, different colors for each type of pasta.  But yes, that distinctive look is hard to miss.  Their lasagna noodles (best out there imo) are in a blue/lighter blue box of the same kind of design.  The plus side of them being whole grain and a little better for you is nice, too.

Sometimes people are just going to be miffed at any request put on them.  Their temporary burden of having to show up and eat for free and not have to prepare anything.... that is nothing compared to what you face every day.  I only allow a select few people to have gluten at my house.  Basically my husband, my mother, and my sister.  All three understand the whole shebang, and also are able to eat in a clean manner.  Family Thanksgiving, etc, is at my house many years, and last year I did it completely gluten-free because I cannot fathom letting the more piggy-behaved people running around with crumbly gluten items in my house.  When I extended the invite, I simply just told everyone that due to my food allergies, please don't bring any food items with you, I will provide it all.  I ended up having a few people give me money towards the meal since they didn't want to bring food, and I found up nearly breaking even on the increased cost.  

Overall, as said above, it is your house and your rules, and they can't even be fairly put into the "Rule" category when it is what you have to do to protect yourself.  I think a small amount of resistance is natural, and to make it easier, telling people just to bring no food item and to let you take care of it is probably the easiest route.  But in the end, if someone is a true friend, they will come around.  Of course some people seem to stay in social groups/families and you can't get rid of them... for those people, if they don't like it, they don't have to come.

If you choose to use an app or one of the books like the Cecelias Marketplace gluten-free shopping guide  (Open Original Shared Link looks like a sale right now), remember that they should be used as starting places only.  They can be helpful when you don't know where to start.  However, products and ingredients change at the drop of a hat, so you always have to read every label, every time.  

I have thought of a few products for you to check out that are gluten and soy free.  First one is King Arthur Flour's gluten-free line. Open Original Shared Link I really feel they are amongst the best gluten-free flour/mix products out there, and the when I contacted them in October 2013, they told me their whole gluten-free line is also free of the top 8 allergens, including dairy.  You may want to write them to double check nothing has changed, they have wonderful customer service and answer quickly, and will even give you baking tips and help.  They have a lot of good, well researched recipes to use with their mixes and flour blend, as well.

Another line that many people here like that is also soy free is Chebe.  (Open Original Shared Link)  Their pizza crust is wonderful, Karen keyed me in to making it without the cheese in the dough... also their cheese bread is one of my guilty pleasures.  It is all made with a form of tapioca called manioc, and is actually based off the traditional brazilian bread.  They have recipes for all kinds of stuff to do with their mixes as well.

Other things in my pantry I see that have no soy.... Tinkyada pasta (In my opinion, the BEST gluten-free pasta) which is made with just brown rice.  Annies gluten-free white cheddar mac n cheese I see no soy on the ingredient list, so that may be worth researching.   Bush's beans, all of their stuff is gluten-free, good place to ask about soy as I see nothing on my can of pinto beans (Open Original Shared Link)

hey I added a topic on this forum. I put it on another that better represents it. how do I delete or remove a post

If you have something like that or something else you see that needs attention, you can click the big red "Report" button on the bottom right of the post to tell the moderators, who can take care of it.  I took care of that other post for you.

While there are some others on here that have to do soy free, and I hear it is a big pain, many of the members here are only going to be able to help you with the gluten side.  Soy has been discussed a bit in the other food intolerances forum, so if you click on that and then use the search box at the top right, you may be able to pull up some helpful past posts.  Overall, both diets are going to have a big learning curve and combining them will add a degree of difficulty, but with both of them if you focus on foods that are not processed (meats, fruit,veggies, etc) and hone your skills on making your own stuff, it will be very helpful in the long run.  After time it will get smoother.

I have a friend with multiple food allergies who keeps an excel spreadsheet on items she requests info on.... that way she can record info and look it up later.  If you are savvy with that program, you could give it a shot, or just get a notebook and record your findings on individual products so you can build your own references.  When contacting companies, kindness goes a long way, and once you threaten a lawsuit it may make them shut out your request.  Honestly, if a company is not going to give out useful info, they are not worth buying from.  Try your best to focus on what you can have, and the pain of the loss will wane with time.

If you like different kinds of teas, check out Teavana.  They are now owned by starbucks, woohoo, but at their Teavana stores they have really good service and they have all kinds of teas.  Can be pricey but with moderation it isn't too bad.  ( All are gluten-free: Open Original Shared Link)

Honestly, sometimes I look at the food/menu options and wonder to myself if it is really worth the effort of going through the food prep conditions, the cooking methods, the ingredients etc.  Sometimes I just don't want to make the effort and it is far easier to just make or bring my own stuff.  That's the lazy side of me talking! 

That is how I am.  I will take a safe bet over anything else.   Much rather eat my gluten-free cereal/oatmeal instead of pick details first thing in the morning.  Of course, some times a treat is worth the effort, but even at restaurants, I will order things that need no modification, etc, just so everything is easier.

Perhaps the extra financial backing will get us some more delicious gluten-free stuff, especially kid friendly things.

I have been noticing how you have had some personal growth in the gluten hating area... especially how you have been handling out of the house scenarios.  Thanks for helping newbies!

Was this in Rapid City, South Dakota?  

My favorite perk: I get my own damn pizza and NO you absolutely CANNOT have a piece- because it cost $80.

 

I also like the bringing my own food but for some work things its kind of a pain slash i feel like i look like a weirdo. Like i really care. I am weird!

HAHA! I do that, too.  I will get stuff from my favorite gluten-free bakery and tell my husband that while I love him, he can go have a real donut for 59 cents so don't eat my $4 one!

Okay guys, let's please reign this in here.  Back to the original question.

Happyplace, Unless it has been totally shot down, I would open conversation with the school administration back up.  You may be able to ask for your child to be sat away from the peanut allergic child(ren) and while you won't blatantly send nut items there, not worry about shared facilities, etc.  Bottom line is you can't let your kiddo starve and have a non-balanced diet and there has to be a better solution that can be reached with more understanding of everyone's needs.

Welcome to the forum!

It is likely that all of the symptoms you are asking about could be from the untreated Celiac disease.  Be very strict with your gluten-free diet now, and it will take some time, probably at least 2-3 months, before you see improvement.  Full improvement can take a very long time, and it seems to be longer for people who went undiagnosed for a very long time or had very bad intestinal damage.  For example, my peripheral neuropathy went away around 6 months gluten free, and I didn't even know it was from Celiac.  I had gone through a lot of testing over it for the doctors to just shrug.  There are over 300 symptoms of Celiac disease, and they go way beyond GI tract issues.  The bloated belly may be one of the first things that you see improvement with once healing sets in.

Check out the newbie thread here: https://www.celiac.com/forums/topic/91878-newbie-info-101/  and another good source of info is the University of Chicago Celiac Disease Center (Open Original Shared Link) where they have some good current info and FAQ's.  The search function on here is very good, just make sure to check the date of the post since the forum has been around for a long time, so product ingredients and such can change over the years.  And feel free to ask any questions you may have.  Welcome to the Silly Yak Club!  I, too, was a carb addict before I was diagnosed... pretty much all I ate was gluten!  So I know firsthand how the learning curve can be... just start with the simple whole food stuff like meat/veggies and then slowly add on from there.  You also may want to avoid dairy and oats for the first three months... some people with Celiac can never handle either of those, but most are able to add them back into their diet.  If you want to add some carbs back in, you can start with whole grains like brown rice, quinoa, and something like sweet potatoes that have some extra nutrition.

I am sure more will chime in in the morning, I am off to bed, glad you have made it here to the forum, it is a very helpful place

So are the scrambled eggs at a continental breakfast often safe? I've always avoided them since I wasn't sure.

I would ask what they put in it.  But, of course, CC is a concern.  You could get down there just as breakfast opens up and there has been less time for things to get touched by many people.  Also, if you stay in the hotel for a long stay, you may be able to befriend the staff and ask them to make up a plate with your safe sausage/eggs and keep it in the back for you.  It is a stretch, but it may work out.

As for any waffle maker that is not for gluten-free foods only-no.  Maybe bring a hot plate and a cheap skillet along to make yourself pancakes safely.  

Welcome to the forum, Boncarlos2!

If you have the actual copy of the lab report, can you post exactly what it says?  I don't want to throw out a guess right now because some of the decimal points are not making sense.  I want to get you accurate info.

Hi Natureman,

Is what you are saying is that you were diagnosed with Celiac 9 months ago and have been gluten-free ever since?  Then you have all those unresolved issues that may go beyond celiac?  One thing you may want to do is start a food/symptom journal that you can show your new doctor.  

Also, it looks like there is an active Celiac support group in OKC, you may want to contact them for further recommendations on doctors.  I know some people all over Oklahoma will travel to North Texas for Doctors sometimes, but unless you are able to do that easily, you may want to reach out to find a doctor closer to you.  If you want to travel to North Texas (Dallas area), I can recommend some people for you.  Go to these links:  Open Original Shared Link  and  Open Original Shared Link

Welcome to the forum!  Great to see you are getting immediate improvements.  I have a feeling you will see more things go away over time that you didn't realize were there to go away in the first place.  Just takes a good bit of time.  

Americas Test Kitchen: How Can It Be Gluten Free cookbook.  Best purchase I have ever made.  They go into the why behind things and research everything they do very well.  Lots of people on here have been recommending it to new gluten-free cooks as well.

Another tip I like to share is when I first got diagnosed, I went to my local library and checked out every book that I could... after doing requests from neighboring libraries, it was like 30 gluten-free cookbooks.  Most of them were not helpful, some of them mildly helpful, and others decent.  I think the helpfulness of a cookbook definitely depends on how your cooking style is, so if you want to take books for a test run without going broke, that may be helpful.

I don't mean this to be funny, but are you used to eating high fiber mexican food/beans?  Sometimes eating those alone will give anyone a hard time.

Here is a link to the rules for any future readers on this post:  https://www.celiac.com/gluten-free/index.php?app=forums&module=extras&section=boardrules

Please send me your excess baked goods!  

.....We will be in Hawaii in a couple of weeks and I just popped in here surprised to see the topic  "are McDonalds fries gluten free" still going two years later. 

It will never stop being argued.  LOL  Enjoy your McDonalds fries and your trip to Hawaii!!

I'm kind of new to this, didn't realize that just by touching gluten and then your food it could get contaminated! This is so hard!!

It definitely is hard.  But there are tricky ways around everything.  I think rule number 1 is to be super duper nice and appreciative towards the people.  That helps you win friends and makes them want to do stuff to help you out.  Making friends with people at the place is a win/win situation for all. (like when I walk into my chipotle and the people go "Gluten Girl!!!!" and change their gloves without asking..lol)  So it never hurts to try!  As time goes on, it becomes more natural of a thing to do when you have to do all this crazy stuff to protect yourself.  But in the long run the good health is worth it We are here for ya!

If you feel better on a gluten-free/DF diet, then it is a good idea to stay on it for the 2 month trial period until you see your doctor again.  Did you get the results of your bloodwork?

Hi, when you get cc'd in Subway is it from the Gluten free bread or the ingredients? I was thinking of getting subway salad boxes...how safe do you think that is?

Subway's CC is going to be a problem across the board on the food prep line.  They handle the bread with their hands, touch the meats and cheeses with those hands when they have to carefully pick off single slices from the stack... knives aren't washed between sandwiches, the sandwich prep line can get very messy during busy times.  Subway employees also aren't exactly known for their expertise and helpfulness, of course that doesn't mean they can't be careful if you get a good one.  If you want to try out subway, try going at a non busy time, being super sweet and nice, and get them to get all your ingredients from the fridge where they keep the next batch of cut sandwich toppings at.  (They go through a lot so will have sliced up stuff ready to go in bins generally).  Now, if you are able to find someone who is willing to do that plus the usual clean hands, etc, then you would probably be okay.  Definitely would vary by location.  Befriending someone like the manager may help.  But definitely be very cautious and use your intuition.  You also may want to double check the gluten content of the non-veggie toppings, in case a dressing or something is a no-go.

I'm not looking at flying any time soon, I prefer to drive and enjoy the scenery. But I am NOT the type to "throw food away" at security. They would have to stand there and wait while I eat every bit of it before walking through the stupid sensors. (And as far as buying food after passing through TSA, I don't trust places in the airport to begin with, plus regular food is ridiculous, I would probably have to sells soul to get a crumb of something that is gluten free.) Speaking eating every bit of food before going through security, I went to 6 flags last summer and they said I couldn't bring my still sealed bottle of soda in with me (that way they could charge $10 for a 20oz bottle), I stood there blocking the line up and guzzled down 6-20oz bottles of soda and handed the empty bottles to "security" before walking though....not the smartest choice to guzzle 6 bottle of soda and then spend the day in the heat, but they let me bring the other 6 in with me.

LOL!!!!!!!!!!!!!!

Honestly, I wouldn't buy a house based on the location of one restaurant.  If you are renting that may be different.  There is an asian restaurant in Seattle, WA that makes me want to move there within delivery range, haha.  But I would say to look more for overall Celiac friendliness in a community.  Like grocery stores, doctors, hospitals, and restaurants, preferably many.