LauraTX

Okay  I have a  different  approach... my  gluten hubby  eats  mostly gluten-free  but  if  he  wants wheat  bread it  goes out  on the  open porch  in  summer  or  else  in  the  outside  garage in the  winter  months.......that  is  where  the  wheat  breadmaker lives!!!!!  Now  the gluten-free  breadmaker  is  on  a  high  shelf where  no one  can get  it  except me  so  no mistake ......but  all the other ideas  are  wonderful.....by the  way  the  wheat  flour  is also  in  the  garage  fridge...... I  never  go  there!!!!

My Gluten eating hubby eats the gluten-free meals I prepare, but I don't disallow him to have gluten in the house, he just rarely does.  I always tell him "crumbs are the enemy!" So he has offered to eat in the garage before... haha.  

Thanks everyone- he really is a great guy :-). I guess both of us thought that it was a more self-contained thing if you used a machine. Didn't know there'd be flour out. And sadly, we're in an apartment, so no garage.

We'll have to come up with a different gift.

If he really wants fresh baked gluten bread (and you are cool with non-gluten-free bread in your kitchen) , and you don't want to deal with flour poofing everywhere, you may have some luck with frozen dough.  I've seen some nice gourmet looking dough balls, so those you may be able to just toss in a dedicated gluten pan and bake.  Still get the fresh baked taste but less mess.

Although a lot of people get joint pain with celiac, hip swelling seems a little extreme to be just caused by untreated celiac disease.  I looked back at your previous posts, have you ever been screened for an autoimmune disease?  In general, if you go gluten free and it makes you feel better go ahead and do so, but there seems to be something else going on.  If I were you I would get a copy of all tests that have been done so far(so no costly repeats) and go to a new doctor. 

That is a pretty interesting read, thanks for posting.  I am allergic to sulfa drugs, and brie cheese and white wine will cause my throat to swell.  And I love brie, I eat like the whole thing.  Which was the problem, can only handle it in small amounts. I have only drunk a lot of white wine on one occasion, I am not a big drinker.  So haven't tested that one much.  In fact, since I have been diagnosed celiac and gluten-free, I have only on one occasion had like a half glass of wine.  Haha.

When I first went gluten-free with my celiac diagnosis over a year ago now, I went through that phase of trying everything, finding out what brands I prefer, etc.  So I ordered a few things from the giant A, got some gluten-free subscription boxes, and went all over to the stores in my area (I live on the outskirts of a big metro area).  After a few months of doing that, I was like... I need to centralize things.  I have two grocery stores near me, one I shop at regularly, and one on occasion, so I try to get all my products from them.  My usual store had an odd selection, and I actually talked to the grocery manager and told him what products I wanted them to carry, as there were a few select things they didn't have, and now they have them!  So, I find it is more economical to try and get what you can locally and at one place.  I also try to eat more things that are naturally gluten-free instead of gluten-free substitutes because muffins and cookies aren't good for the size of my behind.

Now, if your local store does not carry gluten-free stuff, or if you are feeding like 4+ people gluten-free meals, ordering in bulk online may be easier.   I cancelled my subscription boxes because all they send you is processed stuff, and a bunch of health nut type stuff that happens to be gluten-free that I would never buy normally.  I think I had three orders from the Big A, one of them was bobs red mill pizza crust mix, and I could tell they either did not handle or store the product properly because the yeast packet was completely dead.  This was in a cold weather season so not the time it was on my porch.  They refunded it but it disappointed me and made me wonder how they store things.  

Also, places like bobs red mill and king arthur flour have their own online stores, and KAF has good sales and shipping promotions periodically.  So the one plus to online shopping is easier price comparison.  The glutenfreemall.com has similar or lower prices than my local grocer so if I ever want to order in large quantities again, like before the next holiday season, I will probably use them.

I have one question.......why would you take it upon yourself to stop taking thyroid hormone all on your own when you have thyroid disease?  I am very big on trusting instinct myself but if you had true thyroid disease, you never would be able to function without them, especially if your dose was as high as 200mcg. Such a high dosage could be explained by a lack of absorbing the meds but I have both diseases and if I stopped taking my replacement hormone because my instincts told me to do so, I would be non-functional within a week. I am sorry but your post makes no sense.

Sometimes if you are on thyroid meds long enough, you can feel weird and ask for a blood draw and probably be right about it, but there is a reason all those thyroid meds are not over the counter... you need a doctor and associated lab tests to use the medication properly.  I was thinking what you wrote here, but I didn't feel like being the first person to open that can of worms.  But if you are going to be non-compliant on any medication, therapy, anything your doctor tells you to do, at least let them know.  Otherwise you are dealing them a bad hand when it comes to your care.  Sounds like OP did tell them at some point.  Still not a good idea overall.

If they have a list of things that are gluten-free, and that is not on the list, unless it is a brand new product that they haven't had a chance to put on there yet, probably means it is not gluten-free.

There have been a lot of discussions on thyroid meds on here, so you can also use the search function and read through those, will probably be helpful.

I scoped out their website and didn't find any info.  If you aren't sure, they seem like a smaller company and you should have pretty good success emailing them.

Are you sure the burrito was gluten free.  She makes a few varieties including organic and gluten free.  All sold in the same area.

 

Colleen 

I was about to say the same thing.  One time I bought a handful of their gluten-free burritos (which are awesome by the way) and almost bought a regular burrito that had gotten stuck in there.  Also the stockers at my store like to shove the gluten version in the gluten-free spot when they aren't paying attention, especially with brands that have a gluten-free/non-gluten-free version that look similar this could definitely cause a mixup.

I looked up the tigers milk bars online and was only able to find very outdated information that said only some of their flavors are gluten-free.  I would write the company to check in on that.  If they are made on the same line as bars containing gluten, there could be a CC possibility.

And then, like you said, it could also be just from eating food that is not your norm.  Hope you are able to bounce back soon.  I am unable to advise on how to bounce back, I get atypical reactions.

Last time I checked all their drinks are gluten-free, but if you order a shake in a plain flavor (not one with cookies in it) ask them to clean the stirry thing.   

Found this very easily with a google search, and also by going to their website.  Open Original Shared Link

It puts all the slush drinks into the blended drinks category which says they may be CC'd.  Probably by whatever they mix it with.  I would order it and just say "I have an allergy, can you use a clean plastic spoon to mix it?"  And that should be fine. Creamslushes are blended like a milkshake so I wouldn't order those if they are busy, and ask them to clean the stirry thingy.

Hi Jay,

 

You can look for corn tortillas or rice wraps a an alternative to gluten-free breads.  They are generally much cheaper and gluten-free.  Just check the labels or search online for the product name and gluten free.  Often the gluten-free goods are kept frozen in the stores.  In the USA Chex makes some gluten-free cereals.

White corn tortillas make really good soft tacos without the "corny" taste.  And of course, they are pennies on the dollar to the gluten-free tortillas.

Welcome to the forum, tiff!  

How many people do you have to feed at each meal?  One of my favorite meals when I am busy for the day but want something to eat when I get home, that you may be able to put on when you go to sleep in the AM after work is crock pot beans.  I base it off this recipe:  Open Original Shared Link  and you can basically use any beans and any meat (or no meat and just add a little oil to develop flavor), I like to do ham and black eyed peas.  You just throw it in there and then make rice real quick before you serve it (if you want rice).

Other quick stuff that I like to make are nachos and/or tacos.  I make my own taco seasoning, https://www.celiac.com/forums/topic/105450-homemade-taco-seasoning-recipes-w-big-batch-xmas-gifting-instructions/?hl=%2Btaco+%2Bseasoning  I have the recipe and a few other extras I posted there.  Make a big jar of it if you use it often enough, its cheaper and better than packets from the store.  Continuing on the mexican theme, quesadillas are really easy, too, and kids can really help out with those.  A great use for leftover chicken, or you can make chicken ahead of time and freeze it and microwave when you want to put it on the quesadillas.  I pop open a can of Bushs beans and season it a little and serve with that.

I have other illnesses that sometimes make me unable to get up and cook much, so one thing I do is make my own freezer meals.  Enchiladas(recipe in the post I linked above), pastas with sauce and meat, topped with cheese(any combination works really), Beans freeze well, Beef Stew, lasagna, and chicken broccoli rice casserole are things I have made and froze.  You can find foil pans 3/$1 at dollar stores and I assemble, freeze uncovered, then cover with foil and plastic wrap so it doesn't get all mashed up.  You can either put it straight in the oven from the freezer or thaw the day before.  

One of my most common meals I make is just a grilled meat and veggies. I have a george foreman grill but you can also sautee or broil stuff.  Either chicken breasts or pork chops with salt and pepper, cook them up really quick, and open a can or cook a steamer bag of veggies, and maybe some rice or potatoes on the side.  Mashed potatoes are really easy to make homemade and I like to make mashed sweet potatoes, too.

Lastly, one other thing that is super fast and easy to make is chicken stir fry.  Just cut up chicken, brown it in a skillet, and cook a steamer bag of veggies, serve with rice and gluten-free soy sauce.  San-j who makes gluten-free soy sauce also sells some things like gluten-free terikyaki sauce and usually a bottle of that lasts for a few meals so it is worth it to buy.  

Hope all my ideas help!

Oh no, I hate that!  Now I am starting to re-think the hundreds of recipes I have saved as web bookmarks.  I wish I could help you!     Hopefully someone on here will have it saved!  Also, if you know who ran that blog and maybe if there is still a way to contact them, you could have some luck doing that.

Welcome to the forum, lovely!  (I re-read that and I imagine it in a British accent... lol)

I like the way you think, avoiding CC.  

The Lettuce and Cheese that they grab with their hands, I will not eat off the line.  They go through a ton, though, and always have some ready to refill the line in the back.  So if they are not busy, I will ask them to go get me some from a fresh container, and they are always understanding.  

As soon as I saw this post, last night for dinner, we had grilled burgers and I used waffle fries for my bun.  I thought this was a brilliant idea and it tasted great too.  I just got some frozen waffle fries and cut the burger in half and ate it as 2 mini burgers, with cheese, bacon and ranch dressing - it was delicious!  Thanks for the suggestion!

Oooooohhhh mini burgers!!! Genius!  

When I bought my mandoline slicer recently (doesn't do waffle fries though, dangit!) my husband made me pinky swear I would always use the included food guard before letting me get it off the shelf.  I am very accident prone and I think me having that scares him, lol.

If your daughter was newly diagnosed I would say that this will get better, but after a long time, it probably won't.  I want to start quoting dear abby here when I heard you talk about being invited and then told to bring your own food.  Not nice.   The good thing in this situation is with your daughter being 16, she is probably smart enough now to know what to eat/not eat, and can prep her own food.  Maybe you can talk her into buying gluten-free bread and an unopened pack of lunchmeat and keeping those in the freezer, so when your daughter goes over there she can at least make herself a sandwich.  If you want to stretch it, you can buy a cheap toaster and a few implements and put it in a box labeled "-Name-'s Gluten Free Stuff" and keeping that stashed in their house somewhere.  But you can do a lot of things with foil, even put some foil down on the oven rack and bread on top, and toast the bread/bagel that way.  

If all of that is too much of a stretch, I will sometimes tell people to just go to the gluten-free section at the store and buy me any frozen dinner that says gluten free prominently on it.  So maybe she can keep a few of those in the freezer for when you guys come over and once again, your daughter can take charge and make it for herself instead of putting it in their hands.

Of course, I can't tell what your MIL is thinking but it would be worth a nice sit-down conversation with her.  She also may see the fact that you are complying with all her requests to bring food with you as you being okay with it all.  Even the least gluten-free food knowledgeable person can go pick up a loaf of gluten-free bread or a gluten-free frozen dinner at the store, so just let her know that her dismissive actions are hurting her granddaughters feelings.

I think they did a pretty good job on that commercial but most people who see it will probably ignore it.  Have you heard those radio commercials for Ankylosing Spondylitis?  Used to play a lot in my area last year.  It is so random and specific... all I can think is if your back pain is THAT bad you probably already know it is messed up, don't you?  LOL.  Of course, celiac disease isn't like that, it can be a tricky thing, so I am all for awareness of the disease other than "I have a friend of a friend with something called celiac disease and she has to eat weird food."

Also, with people who have been told they are at risk for celiac, like ALL of my relatives who won't go get themselves tested for at least the gene (Someone gave that thing to me!), may finally take that step to go get themselves checked out.  

... is the BEST darn thing I have put in my mouth since my celiac diagnosis! 

I was at Kroger in the Fort Worth, TX area today and decided to splurge on a gourmet looking gluten-free pizza to cook when I got home.  It is called Russos, and has the CSA logo on the back.  Open Original Shared Link is the website but you may have to email them to see where you can buy it.  But I HIGHLY recommend picking one of these up if you see them.     If I hadn't already picked apart the label before buying it, I would have dug it out of the trash to make sure it was actually gluten-free.  The meat one "mulberry" they call it, would be a decent meal for two people with a salad on the side.  And SO SO SO SO GOOD!  Don't look at the fat/nutrition facts, just eat it because we deserve pizza that doesn't take like crap... haha.

Welcome!  I am a year into my celiac diagnosis and it gets better, trust me.  This is the place that helped me the most.  Anything you have questions about, feel free to post and ask, and the search function can get you quick answers on stuff.

I like to go by the motto: "When in doubt, throw it out."  Getting sick is no fun.

If you are on Nexium 40mg (most common adult dosage), there are other lesser doses (more commonly used in children) that your doctor can prescribe as a step down if they feel it is appropriate.  It also may be a situation where you are somewhere in between needing something as strong as Nexium and nothing at all, and your doctor may want you to step down to something like zantac.  I have dealt with severe GERD since I was 17, have been on almost every antacid out there at some point, and sometimes my one Nexium 40mg per day isn't enough and I have to take two per day.  This is after diet adjustments and all that.

Nexium is one of the few delayed release medicines where it is acceptable to open the capsule because the medicine comes in its own little time-release beads, and they actually sell them in little pouches of those for people who need them that way.  But, it is still best to talk to your doctor if you haven't when you quit a medicine or start tapering it down.  Things like nausea can be symptoms of excess stomach acid, and the "hungry but nauseated" feeling was something I got all the time before I was on the right medication, and it is what will make me need to take the two pills a day instead of one when I get spells like that or I will get acute severe stomach pains. But obviously you have more going on than that, so I would find another doctor, perhaps your primary care physician, and talk to them.  You just have to find a new happy medium, and you may be one of the people like me who just have out of control GERD and not much can change it.

So, I read an article linking to this original post:

Open Original Shared Link

And I thought, holy crap!  That looks delicious and (minus the gross food glue dunno whats in that)  gluten free.  Think of the possibilities... Like those baked cheesy bacon potato skin thingies used as a hamburger bun.  Mmmmm.  Or two twice baked potatoes used as a hamburger holding device.  

I think next time I go to Chik Fil A and they aren't busy, I am going to ask them to do something for me.  You know those addicting waffle fries and you sometimes get one that is the size of the carton... I am going to ask them to find me two of those in the bag of frozen ones, so I can make a chicken and french fry sandwich.  The manager and a few staff members at the one near me recognize me as "celiac girl".  Oh, I am totally putting that ranch dipping sauce on it.  Who cares what the mess is.  Does Chik Fil A sell bacon for their sandwiches?  It would make an excellent addition and hold in the sauce.

Now I really want to get a waffle fry cutter, go buy some giant round hamburger shaped potatoes, and make myself a waffle fry bun hamburger.

I have been really hungry today... can you guys tell?  Half my town including us had no power all day so I sat around reading stuff on my cell phone until it died.  I couldn't wait to come post this.

 I didn't know they had flavored ones!  I LOVE LOVE LOVE the regular snyders gluten-free pretzels.  So good.

I was BEGGED by my immunologist to do this study because I am already his personal patient and he is a study doctor.  But since I have so much other stuff going on, I just couldn't put in the time to do it amongst my other 4 doctors I see and retain my sanity. I would have liked to, but the study period came at a bad time for me.  Go to your first appointment and they will tell you all about it.  If you sign up for the study, do be mindful of any limits on information sharing they may have you sign off on.  I didn't read the entire informed consent as I didn't sign up, so I have no idea if there is something like there in it or not.

Honestly, if it is one specific person/household that needs some extra TLC, go to their house and cook gluten free food for them there.  Have them give you a recipe and write you a grocery list with the specific brand to buy, and then use the staples in their pantry/fridge.  

If there are a few people in the church who have to eat gluten-free and you want to make them feel included in meals and such, search out a gluten-free bakery near you and look into ordering from them.  It will probably cost more than a regular bakery, but it will be cheaper and safer than buying all kinds of stuff to make safe gluten-free stuff in your kitchen and possibly have it go to waste if the person is not comfortable eating it.  You can also get together with one of them and ask them if you can bake gluten-free together with them, but in their kitchen so it is definitely safe, and you bring ingredients or you both go to the store together.

But yes, many sensitive celiacs would not eat something made in an unknown manner for fear of a day in the bathroom, so don't feel insulted if you make something and they politely decline.  Best to ask them first, before going through the trouble.

Alternatives to gluten-free baked goods, if you have meetings and such that there is always food at, just grab some whole fresh fruit and have it there for anyone who needs to abstain from the baked goods, for any of the many health reasons.