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LauraTX

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Latest Celiac Disease News & Research:

Everything posted by LauraTX

  1. LauraTX
    With his potential immune issues that are being looked into, it could be that he does have a stomach bug and is getting hit very hard. Unfortunately in these circumstances there just isn't a good way to know. But it never hurts to be more cautious about germs and more strict about gluten.
  2. LauraTX
    For those reading, IVIG stands for intravenous immunoglobulins. It is what I receive for my immunodeficiency. There have been some trials done with IVIG for autoimmune issues, but in very general terms, in many cases it is found that very high doses are needed to help, and because a standard IVIG dose can run around 15 thousand dollars (varies by product...
  3. LauraTX
    I use these, they are the CVS brand and gluten-free Open Original Shared Link They go on sale buy one get one half off, plus coupons, etc.
  4. LauraTX
    Damage to the villi can absolutely cause a domino effect. The most notable and prevalent is lactose intolerance, because you need healthy villi to properly digest lactose. Other things can fall into that category too, especially if you were already prone to issues with certain foods in your previous state. Even more reason to be 100% strictly gluten-free...
  5. LauraTX
    Folic acid levels are something that change with time, and are not detected by a genetic test. (Unless it is a genetic condition they were screening for that can also cause low folic acid) But I assume your psychologist had you get some bloodwork done to check for vitamin deficiencies and they found a low folic level. A psychologist is not a medical doctor...
  6. LauraTX
    I also take Mylan levothyroxine, which is a generic. A lot of doctors will have patients take brand name to prevent them from moving from one generic to another. With levothyroxine, the doses are so tiny, that a slight difference between brands can cause blood levels to fluctuate. So when you take one generic brand, stick with it. If you change brands...
  7. LauraTX
    There are no scientifically valid tests (aside from the genetic test) that are accurate when one is not consuming gluten. Getting something like that is a top priority for Celiac researchers but they are not there yet. While I understand it is easy to assume something is not affordable, why don't you contact your lab of choice and ask about pricing before...
  8. LauraTX
    Welcome to the board! If you could give us some more information and fully type out what is on the lab report, including any letters or words that are before the IgG and IgA, and the reference ranges, that will help us help you a little better, since those letters make all the difference in interpreting the lab tests.
  9. LauraTX
    That is puzzling. I know a lot of us Celiacs eat ore idea, in fact I had some of their cube shaped hash browns last night. Could it be how you are preparing it, like with a high fat meal, with undercooking of potatoes or eggs, something like that? They do add an ingredient to their frozen potatoes to keep them from going brown which is called "DISODIUM...
  10. LauraTX
    If you can verify it is gluten-free then eat up! Things like that are just a heads up, since a lot of crab meats can have wheat in them. The same thing is thrown out there with things like soy sauce- they do make gluten-free soy sauce and that is fine to eat as well, as long as you verify. Awesome that you found gluten-free imitation crab meat... so can...
  11. LauraTX
    This is actually a very good recommendation. I second this.
  12. LauraTX
    Wheatless, while I understand your condition is real for you, you cannot apply your experience to everyone with Celiac disease. The link you post says there is anecdotal evidence.... anecdotal evidence is the lowest on the totem pole of the scale of reliable scientific information. Also, the most specific example they give is of someone who is a farmer...
  13. LauraTX
    Open Original Shared Link The University Of Chicago Celiac Center recommends a half slice of bread per day for 12 weeks before blood tests. So you can definitely cut down from those 4 slices.
  14. LauraTX
    I have split this into it's own post since it went off topic from the discussion from the original thread: https://www.celiac.com/forums/topic/111474-cooking-with-flour/
  15. LauraTX
    If you would like to continue this discussion, please start a new thread in the super-sensitive section. Please avoid arguing with and speaking down to other members, and in this case, the person you are conversing with is one of our most helpful members. The links you post all refer to extreme situations such as working directly with wheat, not the ones...
  16. LauraTX
    If you are that sensitive it is probably a good idea to not eat anything that wasn't prepared just for you, so I would stay away from a salad bar. People can be messy and cause major CC in those types or arrangements. Gluteny kisses can definitely get you. Also, if you are still having problems, you may want to have your whole kitchen gluten-free for a...
  17. LauraTX
    Given that the research was affiliated with cyrex labs, and the above linked article is poorly sourced and includes links to purchase the cyrex labs tests.... I would proceed with caution. Lots of people write very scientific-sounding things and post them on the internet. If you would like to restrict your diet further, then feel free. Otherwise, I recommend...
  18. LauraTX
    I feel the same way too! Glad to have you on here as well, and glad your pregnancy hormones are taking you onto the happy side of the hill, at least for now, lol!!
  19. LauraTX
    I mean, I am a germaphobe and would probably react more than the average person, but if it wasn't someone like my husband, I would TOTALLY flip out if someone got their spit in my mouth. LOL. So, ya know, I would mentally overreact for sure. I would probably make myself sick thinking about what pathogens that person had in their mouth that I was going to...
  20. LauraTX
    Ah yes, you are probably like my husband who has to bend down to wash his hair in the stand up shower, LOL. Lots of us who don't have faith in ourselves keeping our mouth shut while washing do use gluten-free shampoo and such for good measure. Well, I think you are doing the right thing by treating your condition as assumed Celiac disease and an actual...
  21. LauraTX
    Welcome to the forum! So, I read all of your posts, so you have Celiac disease and a wheat/soy allergy? That is definitely a lot to deal with. Having the actual wheat allergy on top of Celiac disease definitely complicates things. While there are some people with Celiac disease who feel they get ill from just walking past the bakery at the store (you...
  22. LauraTX
    Welcome to the forum! So were you diagnosed as Celiac and went gluten-free three months ago? If so, you are on the track to healing, but the healing may not be complete yet. That just takes lots of time and we have to hurry up and wait for it. The facts that your headaches have lessened definitely sounds like they were related to the untreated Celiac...
  23. LauraTX
    Welcome to the forum, Wheatless32! Do you have Celiac disease or just an Wheat allergy? People with only Celiac disease do not have a topical reaction to gluten, it has to get in their mouth to make them sick. Either way, having a wheat allergy is going to give you some separate, more severe issues than someone with just Celiac disease. A few things...
  24. LauraTX
    This is actually a pretty good article. Not what I expected from the headline.
  25. LauraTX
    Wednesday was a sick day so I pulled some pulled pork out of the freezer and made that with green beans and baby carrots on the side. So all I did was boil veggies and throw meat in the microwave. Pulled Pork in the crock pot: Just put a pork roast in the crock pot with some BBQ sauce and unsweetened applesauce, 8 hours later on low have beautiful...
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