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Nancym

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Latest Celiac Disease News & Research:

Everything posted by Nancym

  1. Nancym
    You've been gluten-free though right? What're you going to do if you're negative? Ha! From my understanding having a baby hurts more than a tourniqette on the arm!
  2. Nancym
    Another way to look at it is that you now know what you have to do to feel healthy and keep your brain/bowels functioning well. That seems like a huge win to me versus going through life in pain and possibly causing yourself brain damage.
  3. Nancym
    Do you think your Mom would try the diet? I found my elderly parents just didn't have any interest in changing their diets, even if it would prolong their lives. But their mental faculties weren't what they once were too, it was probably too confusing for them.
  4. Nancym
    capsule probiotics didn't do anything for me but Kefir sure does! I make it from coconut milk. I think it is responsible for my turn-around. I was still pretty bad after a year of gluten-free, better than I was before gluten-free but still having issues.
  5. Nancym
    For me it was psychological, just mourning over giving up gluten and some favorite foods. Other people seem to have more physical responses. Holy cow, have you ever tried giving up a caffeine addiction? Now that's some powerful withdrawl symptoms (if you're a heavy coffee drinker).
  6. Nancym
    I don't know if you use dairy products at all but most celiacs are lactose intolerant until their villi heals. Some of us are also intolerant of casein (milk protein) and so we have to stay off it for life. Personally I find I do best on a Paleo style diet, one where we don't eat any grains at all. It might be tough being a vegetarian though... I don...
  7. Nancym
    Aw, sorry to hear that. I've had such a huge improvement in my mood, cognition, memory... it is as if I found the brain I had 20 years ago restored to my noggin.
  8. Nancym
    Open Original Shared Link This is good news for us Gluten-heads! Snippet
  9. Nancym
    You should definitely get tested for celiac disease because it might be what caused your T1 in the first place. Celiac goes hand in hand with autoimmune diseases. If you don't care about getting a "gold standard" diagnosis and all the hassles and false negatives that go along with it, you might want to consider Enterolab. But you should also realize...
  10. Nancym
    It can take years to get the villi damaged again once you've healed up. Well, it sounds like your mind is made up. Good luck! I think there's more than just gluten sensitivity that makes us sick. You've really got to go on an elimination diet and try to narrow it down more. You might need to give up Casein (dairy), corn, hard to say. I don't disagree...
  11. Nancym
    You can make pancakes out of just about anything: coconut flour, flax, rice bran... just about anything.
  12. Nancym
    Yeah, I was in a fast food restaurant once trying to explain to people who barely speak english that I couldn't eat wheat, they didn't know what wheat was, so another worker interpreted and they STILL didn't know what wheat was. *sigh* And they let people who don't even know what food is made out of vote and operate heavy machinery?
  13. Nancym

    ARCHIVED Low Carb Diet

    Nancym replied to Kaycee's topic in Related Issues & Disorders

    There's lots of flavors of low carb diets out there. But one thing they pretty much all have in common is that starchy grains/fruits/veggies are out during the weight loss phase. My typical meal is something like chicken sausages in the morning (or a muffin I make from coconut flour/rice bran -- very nice and low carb). I usually have a large, lucious...
  14. Nancym
    Check out the Neurological section of The Gluten File, link in my signature. There's also a doctor called "The Renegade Neurologist" on the internet who has blogged about Celiac and the brain. It isn't something you're likely to get a medical diagnosis for from 99.5% of the doctors out there, very, very, very few are even aware of this. And you can have...
  15. Nancym
    Ha, ha! 2 skeptics into believers! It is amazing how many minds this diet can change.
  16. Nancym
    We get most of our vitamin D from sunshine, so if you're not in the sun, you should probably supplement. They're finding the D they add to milk really isn't enough, and it is the wrong kind anyway. You want to take vit. D3, the oily sort. Here's a great web site about D: Open Original Shared Link
  17. Nancym
    Chef Ming chatted briefly about his ... I think it was son that has Celiac or nut allergy, well, he has mentioned both of those things on his show "Simply Ming". He's my favorite chef right now. Love his recipes!
  18. Nancym
    There's little interest in the medical field for looking into non-celiac gluten sensitivity, but I suspect when they finally do we'll see a tidal wave of stuff like this. This (Hadjivassiliou) guy is finding all sort of non-celiac gluten things going on in the brain. Pubmed (and the Gluten File) is full of stuff he has published.
  19. Nancym
    Did you ever read the links in The Gluten File regarding neurological (or specifically depression) effects of gluten? I keep posting the link for you. Open Original Shared Link
  20. Nancym
    Right, but all that testing was done well after you'd gone gluten-free. I guess it doesn't rule out the possibility that you can have anti-Ttg due to something else not yet discovered but I don't think it is insignificant or unimportant (Not that you said it was). You shouldn't be producing antibodies against your own body, whatever the cause.
  21. Nancym
    Oh yay! A topic near and dear to my heart. I'm still trying to figure out if Chinkiang Black Vinegar is gluten-free or not. I found someone with a gluten-free cooking blog that uses it, so maybe it is! Open Original Shared Link Anyone know?
  22. Nancym
    Because there are celiacs with some other gene that haven't been identified yet. Did you ever have a biopsy?
  23. Nancym
    I remember when you were trying to dodge all this just a few short weeks ago. Now you're out to cure the rest of the world same as us! Do you think your bro will stick with it?
  24. Nancym
    My understanding is Ttg is a normal human protein the body attacks mistakenly because it resembles gliadin. So you've got an autoimmune disease at this point. It is something that is common in celiacs. The protein coat on gliadin is similar to the one on Ttg, or something like that. So they're measuring antibodies (the attack dogs of the immune system...
  25. Nancym

    ARCHIVED Low Carb Diet

    Nancym replied to Kaycee's topic in Related Issues & Disorders

    You should probably find a low carb diet you like and read up on it. Following a diet willy nilly rarely works. Once you've got a good idea of what you're doing you can modify it to suit you. I've done Atkins but right now I'm doing Paleo, it works out better with my health issues of avoiding dairy and grains. I like the Dr's Eades who wrote Protein...
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