Nancym
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Latest Celiac Disease News & Research:
Everything posted by Nancym
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I'm so sorry. *hugs* I was with my Dad when he died, I'm glad I was although the images of his last day or two and his death are very, very difficult memories. I was in tears everyday for what seemed like a couple of months. It was when I wasn't busy and was driving alone in my car and those moments would replay in my mind. It has been almost 2 years...
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ARCHIVED Have You Guys Heard About The Pet Food?
Nancym replied to JerryK's topic in Coping with Celiac Disease
Dr. Lewey has an article up about the toxicity of wheat gluten in animals, this has been known since the early 1900's... Open Original Shared Link -
ARCHIVED 17 Years Of Misery
Nancym replied to cat40's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
This is one of those decisions you have to make for yourself. If you can studiously and scrupulously expell all gluten from your diet without having to have a piece of paper from a doctor... then go for it. It sounds like you're unlikely to see a doctor to get to the bottom of your issues anyway. And it takes a LOT of doctors visits and sometimes seeing... -
I was surprised to find out there's a condition where having symptoms like diarrhea with your period, so yes, hormones seem to have the ability to mess up the gut. I get this too. I'll be constipated before and have dairrhea with. Its so fun!
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ARCHIVED Fasting
Nancym replied to super-sally888's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
You might want to look up Intermittent Fasting. It's an interesting new topic. I did it for about 3 months. I think fasting can help with some things, I know a lot of people with my particular autoimmune disease use it to control flares. I think it starves out some of the bad critters (bacteria) that can live in the digestive tract. But other than that... -
Well, it sounds like celiac disease probably wasn't 100% of your problem. You might have some yet undiagnosed issues going on. Or it is possible there are other foods causing your symptoms. You might want to write down every single weird symptom you have, visual, intestinal, mental, etc and present that to your doctor. There are some diseases that have...
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ARCHIVED Pet Food Maker Announces Huge Recall
Nancym replied to larry mac's topic in Introduce Yourself / Share Stuff
Not very complete! I wanted to know WHY they are recalling that web site only listed what they're recalling. Fortunately for my kitteh, he hasn't been on commercial food for a long, long time. He was getting fat and diabetic and I whisked him over to an all meat diet. -
ARCHIVED So Jerry Is Very Frustrated....
Nancym replied to JerryK's topic in Coping with Celiac Disease
I did something similar to that. I decided I had to reinvent food for myself. But I figured out that Thai and vietnamese cuisine is very good and doesn't contain much wheat and 0 dairy. So I started learning how to cook their foods. I also knew that I'd mourn foods if I didn't replace old treats with new ones, so that was the first thing I attended to... -
ARCHIVED Please Help Me Choose Endoscopy Or No Endoscopy For My Son.
Nancym replied to momof6's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I think a firm diagnosis is the best of all worlds then neither parent nor child can ever rationalize them eating wheat as "it's just gluten sensitivity not celiac" -- which I think is what a lot of people end up doing. -
ARCHIVED What Fat Can I Use To Make Cookies
Nancym replied to hathor's topic in Food Intolerance & Leaky Gut
Or if the coconut oil doesn't work there's always ghee and lard. -
ARCHIVED So Jerry Is Very Frustrated....
Nancym replied to JerryK's topic in Coping with Celiac Disease
I live alone and don't have a wife (or SO) to make my meals. I work full time too, yet somehow I manage to find the time to make my meals. Although... I must admit I am skilled at doing it so it doesn't take a ton of time. I eat a diet that is far more limited than yours yet somehow I manage to have good variety and I don't spend huge amounts of time fussing... -
ARCHIVED So Jerry Is Very Frustrated....
Nancym replied to JerryK's topic in Coping with Celiac Disease
Actually... I'd like to point out that this is the attitude that YOU choose to adopt. You could take it seriously and stop saying things like "only gluten intolerance, not celiac". You choose to present it to your family as a trivial thing even though there are plenty out there that DO regard it as as serious of a disease as celiac even sometimes worse... -
ARCHIVED So Jerry Is Very Frustrated....
Nancym replied to JerryK's topic in Coping with Celiac Disease
Everyone is giving you very good advice. If it were me, I'd be ruthless with the rest of the family and say "We are a gluten-free household from here on out". If someone had a peanut allergy, you'd probably do that right? -
Keep in mind that most soy sauce contains soy AND gluten (wheat). So if he's been eating teriakyi beef, I doubt he's been gluten free.
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ARCHIVED Don't Understand This Biopsy Report
Nancym replied to nate78's topic in Coping with Celiac Disease
You might want to read what Scott Lewey writes about these buggers. Open Original Shared Link Flattened villi and not celiac? Not sure what that's about... -
ARCHIVED Overwhelmed With Gluten Free Food & Prices
Nancym replied to Disney323's topic in Parents, Friends and Loved Ones of Celiacs
The accounting and recordkeeping would be a nightmare, hopefully you have a lot of time available to set up a good accounting system and way to keep track of all your receipts. Just go to irs.gov and look for the rules, special forms and all. Oh, and it probably only is available if you spend more than 7.5% of your AGI on it, like other medical expenses... -
ARCHIVED Not Sure What To Do
Nancym replied to Swthrtpookie's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I think the equivalent of 4-6 slices of bread a day. -
ARCHIVED Casein Intolerance
Nancym replied to sfm's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I'm casein intolerant too. I'm not *as* fanatical about avoiding dairy as I am gluten, ocassionally I indulge. But I would urge you to try going without for awhile and seeing if it does anything positive for you. For me it cleared up some niggling problems like constipation and gas. For me it seemed much harder to give up than gluten but in the end... -
ARCHIVED Need Foods With Protein!
Nancym replied to CantEvenEatRice's topic in Parents, Friends and Loved Ones of Celiacs
You can buy rice protein and bake that into things, or make into a smoothie with fruit and perhaps coconut milk. -
ARCHIVED My Gluten Intolerance Status...
Nancym replied to JerryK's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I totally agree with Carole (what a great spelling of the name!). I've had (have actually) two nasty autoimmune diseases and a lot of years of misery. You've had a big battle with depression. I'm only 48! Sometimes you just gotta ask yourself... is it reasonable to let a food be more valuable than your health and happiness and mental stability? -
I get this if I overconsume carbs. I try to get my glycemic index low, meats, vegetables, nuts, some whole fruits (never juices) and avoid sugars and starches. If I have a sugary/starchy meal, I'll get a pounding rapid heart beat.
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I'm just curious where you get this notion from? Do you think gluten intolerance only affects (or doesn't) the villi in your intestines? I had severe IBS, neurological symptoms and several autoimmune diseases from my gluten intolerance. I'm sure it caused leaky gut which spawned all these autoimmune diseases and my memory/neurological problems. How does...
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ARCHIVED Cornstarch With Wheat In It
Nancym replied to floridanative's topic in Gluten-Free Restaurants
Maybe it is a mixture of wheat/corn starch? Who knows! But what if you brought your own cornstarch for them to use? -
ARCHIVED Weakly Positive Blood Test - What Should I Do?
Nancym replied to georgiagirl's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
It's up to you really. That's what this whole testing stuff is about, satisfying your need to know so you can keep yourself on the diet. Some people would probably go half-arsed if they didn't have a diagnosis (some do anyway). For me, trying the diet and having my issues resolve was enough to make me want to keep at it. -
Have you been evaluated for narcolepsy?