Nancym
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Latest Celiac Disease News & Research:
Everything posted by Nancym
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Open Original Shared Link *snicker*
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ARCHIVED Ridiculously Bloated, "stopped Up", Etc
Nancym replied to DownWithGluten's topic in Coping with Celiac Disease
I'm pretty sure my constipation was caused by dairy products but when I was eating wheat it gave me diarrhea, so they kind of balanced out... but once I cut out the wheat, the constipation took over full time. I've cut out the diary too, and all other grains as well, and things are almost like clockwork. I give a lot of credit to drinking kefir made from... -
ARCHIVED Symptom: I Can't Talk
Nancym replied to wwebby's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Well, gluten does cause brain damage in many people. You might want to read up on that, perhaps it'll inspire you to stay gluten-free. It can be permanent too, so this isn't something you want to flirt with thinking you'll get better later on, you might not. The link in my siggy "The Gluten File" contains oodles of information about brain related issues... -
ARCHIVED Luke's Enterolab Results--help!
Nancym replied to Luvs to Scrap's topic in Parents, Friends and Loved Ones of Celiacs
When I gave up dairy I found it was just easier to try to give up all the "old" foods and not try to substitute for them. It just means finding new favorite foods that don't involve cheese, milk, etc. That was easier to do than live with the disappointment of new foods not tasting as well with weird substitutions. I think it was also easier in some regards... -
ARCHIVED My Gi Doctor Said My Ulcerative Colitis Is Not At All Related To Gluten
Nancym replied to bumblebby's topic in Coping with Celiac Disease
Well, we know what opinions are similar to, because everyone has one. Anyway, your doctor is entitled to his opinion but there are other gastroenterologists out there that know there is a connection. Congratulations on feeling better! -
Well, I definitely agree that's the sort of thinking we should adopt toward food, but I think it doesn't go far enough. I don't really think we're well adapted to many of our neolithic foods. It takes a long, long time to adapt to new foods and I think the few thousand years we've had of eating grains isn't long enough to expect that we've adapted. What...
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ARCHIVED Omg I Am Two Different People!
Nancym replied to JerryK's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Now you know why so many of us are so frustrated with medicine/health and all the issues surrounding gluten. Now imagine getting a negative diagnosis... but you KNOW how much better you feel off the stuff. Yet the medical establishment will put you in a padded cell if you insist you are gluten sensitive. -
ARCHIVED Nearly Convinced My Son Hasn't Got Celiac!
Nancym replied to Peta's topic in Parents, Friends and Loved Ones of Celiacs
Definitely get the biopsy done and even if it is negative, give the gluten-free diet a trial. Some of us have wonderful responses to the diet despite the test outcomes. -
ARCHIVED I Want To Send Dr. Fine Some Flowers
Nancym replied to AliceW's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Horray! That is terrific news! -
ARCHIVED What's That Lab That Does Fecal Testing?
Nancym replied to vampella's topic in Parents, Friends and Loved Ones of Celiacs
Well said, Happy! I'm in Category #1. -
ARCHIVED Getting A Diagnosis
Nancym replied to a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Even if your biopsy is negative try the diet. So many of us have and feel so much better for it. What've you got to lose? -
ARCHIVED I Have To Vent!
Nancym replied to ptkds's topic in Parents, Friends and Loved Ones of Celiacs
Brain food? Starchy, sugary junk food is called brain food these days? Holy cow. No wonder kids are getting fatty liver disease and Type 2 diabetes. -
ARCHIVED A Thank You For Nancy And Rachel
Nancym replied to Lisa's topic in Introduce Yourself / Share Stuff
Wow! That terrific. I've been taking lots of extra B vitamins too and my brain is feeling very perky. Not sure if it is the B vitamins or just more time on the gluten-free/CF diet. But I was having pin prick feelings, a weird vibration in my intestines and other weird neurological effects. Plus I read that folic acid helps alzhemiers patients... not... -
ARCHIVED I Have To Vent!
Nancym replied to ptkds's topic in Parents, Friends and Loved Ones of Celiacs
Why are teachers feeding kids junk food anyway? We didn't do this when I was in grade school. Some how I managed to get through college without teachers shoveling me full of junk food! -
ARCHIVED My Twin Brother
Nancym replied to JerryK's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I heard something really interesting last Saturday, I heard a doctor speak who treats autoimmune diseases and he was speaking about the one I had, they know it is something environmental that causes the disease, like a bacteria or virus because they breed rats with the gene who will get the disease. However they don't get the disease if they're placed in... -
ARCHIVED Childrens Iga Levels, Whats Normal?
Nancym replied to kenyonsmommy's topic in Parents, Friends and Loved Ones of Celiacs
My understanding is that DH might not show up in blood test results. You need to have a skin biopsy. -
ARCHIVED Ibs Or Really A Gluten Problem?
Nancym replied to CAS221's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
If you want an "official" diagnosis don't go off the gluten, in fact eat lots more of it until you're done testing. It can be very hard to get an official diagnosis if you've been gluten free. I don't give a whole lot of credence to an official diagnosis personally. I think there are tons of people running to the toilet who were given false negatives.... -
ARCHIVED Gene Information Wanted! Please!
Nancym replied to Peta's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Just an interesting side note, I think the reason two genes (some have more than two genes BTW and some only have 1 as was recently discovered) the same can be worse is those genes actually produce enzymes or proteins that the body reacts to. So if you could have double the protein production that your body is reacting to. At least, that was how it was... -
Just to throw this out there, almost all autoimmune diseases have fatigue and brain fog as symptoms. So if it isn't thyroid, get to a rhuematologist, there might be something else going on.
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Sara, how long have you been gluten-free? My brain fog cleared up over a few months but I think some of it was due to dairy products (casein), not just gluten. Your thyroid disease, if you have it, might go into remission if you're very, very good about staying away from the gluten (and the casein if that's an issue for you). Having a TSH over 1 doesn...
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ARCHIVED How Common Is This In Families? Should I Tested?
Nancym replied to wahoo's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
One thing to be aware of, and few doctors are, you can have a positive biopsy and a negative blood test. So if you're having symptoms, don't stop at just blood testing. Insist on a biopsy. And even if the biopsy is negative try the diet, but not until you're done with the testing. Meanwhile, eat lots of gluten so you don't have healing before the biopsy... -
Sometimes the pituitary gland can get out of whack and not properly signal the thyroid. Yeah, post the reference ranges, they're not something I have memorized.
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ARCHIVED Zonulin
Nancym replied to JerryK's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
What timing, interesting article from the guy that discovered Zonulin, Open Original Shared Link This is also why all these autoimmune diseases are related to gluten intolerance. Personally, I think anyone with an autoimmune disease should not eat gluten. -
ARCHIVED Zonulin
Nancym replied to JerryK's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Actually, there was an study posted recently where wheat causes that to happen in EVERYONE, but celiacs have a worse reaction. Google zonulin on pubmed, there's lots of fun reading.