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Nancym

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Latest Celiac Disease News & Research:

Everything posted by Nancym

  1. Nancym
    I too had Graves disease and RAI, then almost 20 years later discovered my gluten senisitivty. www.celiac.com is a great resource. Print out the safe and forbidden list. It is very good.
  2. Nancym
    A local Thai restaurant here uses rice papers to make salad rolls. They'll have lettuce, mint, bean sprouts, chicken or tofu and a dipping sauce. Excellent stuff!
  3. Nancym
    Ghee is just clarified butter. I'm sensitive to milk proteins to so I just "cook" my butter (about 1 pound at a time) over low heat until it stops spluttering then I strain it through paper towels. What is left is just the fat portion of butter without the milk proteins. Yak butter! Heh!
  4. Nancym
    No. Collecting it and storing it and shipping made me feel squidgy for a couple of days.
  5. Nancym
    A lot of people have absolutely no clue what gluten is so if they seem clueless I tell them I have an allergy to certain grains.
  6. Nancym

    ARCHIVED Sjogren's Anybody?

    Nancym replied to a topic in Related Issues & Disorders

    Maybe I was lucky but I went in with a list of things that I felt were either not right or else things that had happened in the past. I said, "I have a suspicion I might have an autoimmune disease". My GP sent me to a rheumy who diagnosed me with ankylosing spondylitis and he said a lot of his patients have food intolerances and that AS is associated with...
  7. Nancym
    Thai food should be pretty good for us. They use fish sauce instead of soy sauce and it shouldn't have wheat in it. The wrappers/noodles and that sort of thing might be iffy, I don't know if some manufacturers use wheat in their rice products or not. I've decided I'm going to learn how to cook certain Thai dishes at home, because they're just awesome...
  8. Nancym
    I made something even better, if I must say so myself. I took some raw nuts and roasted them. Chopped them in a food processor until they were not-too-small chunks. Did the same with some dried fruit (dates, figs and blueberries). Then I mixed them together adding in coconut oil (or ghee, maybe I used both), honey and salt. I pressed the sticky mixture...
  9. Nancym
    Just had one last week. The prep is hideous. I had diarrhea for 24 hours. I think I had 2 hours of sleep that night. In fact, during the two hours I did manage to get, I soiled the bed. I would think at age 30 you probably don't need to have this done unless you've got some specific issues like blood or family history but ask your doctor if you're...
  10. Nancym

    ARCHIVED Entrolab

    Nancym replied to christa's topic in Coping with Celiac Disease

    If you're looking for confirmation from your regular MD or GI wrt Enterolab you might not get it. I think Dr. Fine's credentials are pretty sterling but his methods aren't recognized in the mainstream yet. However, his testing certainly backed up my findings from testing out a gluten-free/CF diet.
  11. Nancym
    Actually celiac disease can be triggered by something in the environment. That's why identical twins, one can have it and the other won't. They just don't know exactly what can trigger it or why.
  12. Nancym
    Wow, you're lucky your partner is receptive to changing his diet to restore his good nature. I think with a food intolerance it is as likely to be some partially digested peptide that slips into the blood stream that causes the mood funkiness. I doubt it is something you can control with supplements, unfortunately.
  13. Nancym
    Can you get outside in the sunshine every day for 20 minutes or so? That's probably the best way. Failing that try cod liver oil or vitamin D3.
  14. Nancym
    Bacteria can only live off certain things. Some eat starches, some eat sugars, some can eat fats or amino acids.
  15. Nancym
    Someone posted a link to a article on a Crohn's web site about SCD. But now I can't find it. Anyone have that handy still? Thanks! Nancy
  16. Nancym
    Cornbread, since you're into recipes for Paleo stuff, I have got a GREAT recommendation for you, maybe you already have it: It is called "The Garden of Eating". Just google that. If you order though, you might want to order it directly from the author's web site because it took 8 weeks for me to get it from Amazon. The recipes are incredible and very...
  17. Nancym
    I don't know that you would have to if you're just changing brands. I think it is if you're quitting them all together.
  18. Nancym
    Milk free and gluten free frozen entrees.
  19. Nancym
    Interesting Cornbread! I've also noted how similar SCD is to the paleo diets. But my one thing where I'd diverge on is that I think cooking foods is very healthy. It breaks down cell walls and lets us digest things that would otherwise pass right through us. Of course, some vitamins are destroyed by cooking, so I think having a mixture of cooked and uncooked...
  20. Nancym
    Check with your doctor, I know you're supposed to taper off AD, not just quite them cold turkey.
  21. Nancym
    Why does one twin get celiac and another not? Could there be a bacteria responsible. These papers take a look at that: Are Commensal Bacteria with a Taste for Gluten the Missing Link in the Pathogenesis of Celiac Disease? By Roy S. Jamron Role of the Innate Immune Response in Celiac Disease with Comments by Roy Jamron
  22. Nancym
    Actually, I think a diet of meat, fruits and vegetables is about ideal for the human race. We don't need to be eating grains at all. So many of us have trouble digesting them, I wonder if maybe we took a wrong turn a few thousand years ago by domesticating them. However, if you want to get some weight on her, how about upping her fats? I'd suggest adding...
  23. Nancym
    You could get a false negative from the biopsy. If it were me, and it was at one point, I'd not bother with the biopsy.
  24. Nancym
    It's hard to say how fast you'll react. I reacted within a couple of days.
  25. Nancym
    TJ's almonds should be fine. I think there's some paranoia with the SCD folks that manufacturer's aren't following labeling guidelines but they're confusing the European Codex rules with the FDA rules.
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