Nancym
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Latest Celiac Disease News & Research:
Everything posted by Nancym
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ARCHIVED A Class Action Suit Against Mcds...
Nancym replied to Cheri A's topic in Gluten-Free Restaurants
We're sort of damned if they do, damned if they don't. They can do several things: 1) Tell us to go to heck. 2) Make a better effort to acheive full disclosure. 3) Continue the way they have been with half-disclosure. Personally, I'd rather either have #1 or #2 than what the status quo was, #3. At least you know where they stand and whether or not... -
ARCHIVED No, Please, Not Chocolate!
Nancym posted a topic in Gluten-Free Foods, Products, Shopping & Medications
I love bittersweet chocolate that has no dairy or wheat in it. Its usually the stuff that indicates the percentage of chocolate in the bar like 70% or more *drool*. But I seem to always react to it with an odd feeling in the tum and a bit of diarrhea the next day. Could my body play so fouly with me by denying me chocolate? Anyone else have an issue with... -
I had Graves too. Lets see... rapid heart beat, pounding heart, palpitations, itchy skin, hair-trigger temper, huge startle reflex, tremors in hands (eating soup was NOT fun!), sweating and diarrhea were my main symptoms. I hope you are ok! Don't let them rush you into RAI, shoot for letting it go into remission.
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I'm unclear on how they're getting cross-contaminated if they use a clean pair for each customer? Why would they be sticking the clean pair of tongs they got for you into pasta?
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ARCHIVED Questions About Enterolab
Nancym replied to momandgirls's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
There is your answer right there. -
ARCHIVED What Does A Typical Day Of Eating Look Like For You All?
Nancym replied to BeccaM's topic in Coping with Celiac Disease
Breakfast: 2 turkey sausages Lunch: Large mixed greens salad with greek olives, proscuitto and chicken, oil and vinegar Snack: Left over pork rib and probably a tangerine Dinner: Brussel sprouts with ghee, pork ribs Dessert: coconut milk ice cream and strawberries -
ARCHIVED FAAN response To Mcdonalds
Nancym replied to mmaccartney's topic in Gluten-Free Restaurants
What a fantastic response that was! Wow! That should send a danged strong message! -
ARCHIVED See's Candy
Nancym replied to katshow's topic in Gluten-Free Foods, Products, Shopping & Medications
Is anyone else concerned about the qualification of their gluten free statement with "direct ingredient". What does that mean? -
ARCHIVED Video Endoscopy Capsule
Nancym replied to 4tomorrow's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
LOL! I should say so! I figured maybe the open it up, yank the camera out and put it inside another capsule. This is the coolest technology! Reminds me of when they miniaturized guys and injected them into someone blood stream in some movie. -
Gyros should be ok if they don't do anything funky to it. It should just be lamb, onion, majoram, rosemary and garlic.
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ARCHIVED Video Endoscopy Capsule
Nancym replied to 4tomorrow's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I was sort of figuring that. But doesn't it take days for it to pass? Or does it get through in those 6 hours? And do they retrive it and reuse it? Oh dear... I really shouldn't think so hard. -
ARCHIVED Video Endoscopy Capsule
Nancym replied to 4tomorrow's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Just curious... how is the camera retrieved? Or is it? Why must I always be the one to ask the difficult questions?!?! -
ARCHIVED Did I Do My Antibody Test Wrong?
Nancym replied to misha's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Dr. Fine says the intestines can heal up pretty well even as soon as two days of going gluten free and it can take years to get them messed up again to the point of detecting the disease through blood tests or biopsy. And you really do have to be pretty sick to get a positive on the biopsy. I really think the current standard lab tests are very bad at detecting... -
ARCHIVED Video Endoscopy Capsule
Nancym replied to 4tomorrow's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I doubt it because they look at those biopsy slides with a microscope. Are you going to swallow a camera? How cool is that! -
ARCHIVED Hops In My Body Cream?
Nancym replied to ebrbetty's topic in Gluten-Free Foods, Products, Shopping & Medications
Nope. You're probably thinking of malt, which is another common ingredient in beer. -
ARCHIVED Hypermobile Joints - Ehlers Danlos
Nancym replied to ravenwoodglass's topic in Related Issues & Disorders
Wow! What timing. I just went to the Rhuemy on Friday and he diagnosed me with "hypermobility syndrome". I had already read up on Ehlers Danlos and asked if it could be that. He said "no". However... I think he ruled it out too soon. There's a lot of degress and variations in it. I have the easy bruising, the multiple underskin fatty tumours of it... -
I got diagnosed through Enterolab.com so I can't help with the GI recommendation. Although I am following up with a GI, I don't see him until next month. I'm pretty scared of eating out. I went to PF Chang's in UTC and I think I got a little gluten. The waitress mixed up a dipping sauce, using what she said was gluten free soy sauce, but she didn...
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ARCHIVED Hi Everyone, I Got Better, 20 Pages Of New Posts To Read
Nancym replied to Matilda's topic in Coping with Celiac Disease
I'm a simple food eater too. I'm 4 months gluten-free, 1 month CF and its taking a lot to get this all under control. I try to make everything myself and avoid any grains or dairy. It is working! Every time I try to eat out I usually end up sick no matter how careful I am. Simple is my solution! -
ARCHIVED Splenda
Nancym replied to lemonade's topic in Gluten-Free Foods, Products, Shopping & Medications
I think this is a pretty balanced analysis of the information available on Splenda: Open Original Shared Link -
ARCHIVED Casein In Chocolate?
Nancym replied to gointribal's topic in Gluten-Free Foods, Products, Shopping & Medications
Trader Joe's has quite a few very dark chocolates that don't contain any milk. Also Lindt has some bittersweet chocolate without milk (I believe). -
ARCHIVED Celiac Disease/gluten Sensitivity Vs. Lupus
Nancym replied to Chap's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I'm about to see a rheumatologist too, first time for me. I was just dx'd with gluten sensitivity and I autoimmune issues in my history. I've been on a diet that is similar to the Paleo diet and my symptoms have been really good for awhile. I have been suspecting Lupus for myself too. But... we shall see. -
I really think it is very like a drug. You're out of the initial detox phase, but it still calls to you. All I can say is I think it will call less and less as time goes by. I had given up all carby refined foods about 3-4 years ago, but I started back on them again (occassionally) before I figured out the gluten intolerance thing. Most of these 3-4 years...
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ARCHIVED Questions About Entrolab?
Nancym replied to Lollie's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Enterolab can detect the antibodies for quite awhile after being gluten free. I had been gluten-free for about 3 months. And, of course, the DNA test isn't dependent on eating anything. -
ARCHIVED Celiac Disease/gluten Sensitivity Vs. Lupus
Nancym replied to Chap's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Celiac is also linked to autoimmune diseases like Lupus. Sometimes getting off the foods you're intolerant to can make those diseases go into remission. You are lucky to have a good rheumy! -
You should get your Free T3 and Free T4 checked. They're not the same as T3 and T4, they're the amount of T3 and T4 that are unbound and available. Few doctors check them. I had a below range FT3 reading yet my TSH and totals were fine. I felt like pooh. As far as thyroid info, if you want to educate yourself there are some great sites out there...