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cristiana

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Everything posted by cristiana

  1. cristiana
    Hi @knitty kitty Thank you, Kitty, and lovely to hear from you as well as trents on this one, I do appreciate your knowledgeable replies. Haemoglobin A1C and HBA1c have both come back as normal, so I think I am OK there - although I'll freely admit that I love sweet things and if they ever design a test which shows consumption of carbs over time...
  2. cristiana
    Hi Trents Good to hear from you and thanks for your prompt response. As far as I know I don't have any other autoimmune diseases but this elevated MCHC which has been in the background for some years now makes me wonder if I have something that has hitherto gone under the radar. I do wonder about B12 anemia. When I was diagnosed with coeliac...
  3. cristiana
    Hello All I've just received some puzzling blood results. My blood results have always been a bit odd since my coeliac diagnosis - a few things out of range, but the only thing my consultant has ever wondered about is whether I am developing a condition called Polycythemia, as my hemaglobin can be a little high at times. He did mention last time I...
  4. cristiana
    Thank you for the update @Rejoicephd it is good to know that you may have some answers. Keep up the good work with your diet, and do let us know if you do get a firm diagnosis. I took so long to feel better and for my TTG levels to normalise, but got there in the end, so also bear in mind it does take longer for some of us.
  5. cristiana
    Hi there @MCAyr I have a small umbilical hernia which came about during my second pregnancy. I can just about see it, and feel it, when I stand or sit, but it is far less noticeable when I lie down. I always know when I am putting on weight because I can get pain and burning near the site, funnily enough not on the hernia itself but either side! ...
  6. cristiana
    I was thinking similar thoughts. Names/brands would be very helpful.
  7. cristiana
    Well, this is interesting. I am based in the UK and it just so happens that I've been eating a lot more oats recently, gluten-free of course, and I'm beginning to feel quite nauseous, I have an unsettled stomach and quite a few aches and pains. In three weeks I have my coeliac review - if my TTG levels are higher than last year, maybe that will be why...
  8. cristiana
    Great advice from @trents. A couple of other tips. Firstly, always try to have a good stock of gluten-free alternatives in the house so you aren't tempted to give in when there is nothing else available. Secondly, as you will have noticed, gluten-free bread does taste quite different from regular bread. But I think it was my GP who said...
  9. cristiana
    The early days are often tricky for the newly diagnosed. There were times I thought I'd never feel better, but it just takes some people longer than others. Hang on in there, and keep posting with any questions as they occur or if you need any encouragement.
  10. cristiana
    Great to have another UK person on the forum! Re: blood tests, it sounds as if you are being well monitored but if you have any further concerns about blood tests or anything else, do not hesitate to start a new thread. Cristiana
  11. cristiana
    Hello Suze and welcome to the forum. Can you tell us which country you are posting from? The reason I ask is that in some countries, it is quite a good idea to be tested for coeliac disease because if it turns out you are a coeliac, you will be given additional support by the government. For example if you live in the UK, the NHS offers support...
  12. cristiana
    Since I've been a member of this forum, I've seen some people write that they have not been able to tolerate corn, and others nightshades - tomatoes, potatoes, eggplant, and peppers (including bell peppers, chili peppers, and paprika). However, intolerances can be short term, just while you are healing. So bear this in mind if you start dropping...
  13. cristiana
    I think going back to your GI isn't a bad idea - my visits to the GI did not stop following my diagnosis as I had annoying issues on and off for some time. Thankfully he is a fantastic GI, with a great sense of humour, so it wasn't a chore to see him again although I'd rather not have had to, obviously! But I needed my mind to be put at rest as my symptoms...
  14. cristiana
    I struggled for a long time. My TTG levels took an age to come down. I even gave pure gluten free oats a miss, it took 8 years before I could tolerate them. Removing dairy temporarily from my diet was hugely helpful. Check your utensils and the oven you use are scrupulously clean, and don't open roast or bake food uncovered in an oven shared with gluten...
  15. cristiana
    Luke warm bath (deep) with a handful of Epsom salts, and bath for about 20 minutes. Be careful getting out of the bathtub, the magnesium (Epsom salts) can make you feel a bit woozy. I've suffered from costochondritis, might be what you have? I find rest very helpful, and avoid any foods that bloat you as this can put added pressure on the ribcage.
  16. cristiana
    Flapjack is as British as Fish & Chips! Oats, butter, sugar, golden syrup... yum. I have just returned from Fowey in Cornwall having discovered they have a branch of this amazing, award winning flapjack shop in the town. I would thoroughly recommend that all coeliacs visiting Cornwall and Devon, who can tolerate pure oats, to drop in and buy one buy...
  17. cristiana
    @MelissaClinPsyD See above.🙂
  18. cristiana
    My chest pain has been caused by costochondritis, as well as times when iron supplements has given me such bad bloating it has put pressure on my back and chest, and reflux can do the same. Also, along the lines of Wheatwacked's suggestion above, is it possible you had an injury to your chest/ribs way back that is being set off by either some sort of...
  19. cristiana
    Thanks for sharing that film, @trents. I am not sure how I missed that film as I see it is a few years old, but it is very good. I think you should be fine if you take your own packed lunch and eat it from your own lunchbox etc. Might be worth doing a lunchtime recce to see how cramped the room is before making a decision - for all you know, there...
  20. cristiana
    We've definitely all had such thoughts. But as Scott says, it does get easier with time. I'm not sure where you are posting from but in England where I live, over the last ten years or so most things I missed at first now have gluten free substitutes. I still miss Twix bars, and chocolate Penguins (a type of biscuit) but I'm hoping sooner or later someone...
  21. cristiana
    Agreed, and I can't remember exactly and haven't got time to check, but I think my blood didn't normalise for eight years! For years I read this forum thinking why can't I get my numbers down - everyone else manages to. But my gastroenterologist didn't seem to worry about it, which makes me think he either thought I wasn't complying to the diet, or he'd...
  22. cristiana
    Hello there @maylynn I'm a slow healer from the UK. I sympathise. Despite three endoscopies which showed nothing wrong, I frequently suffered from a very sore stomach, bloating, feeling queasy. For some time I was taking the wrong iron supplement (Floradix instead of Floravital - the former has gluten in it, but the latter none). But...
  23. cristiana
    Very interesting, @Idnam. When I was experiencing this problem at its worse, I found high carb meals like lots of rice or too many cookies were a trigger.
  24. cristiana
    Really interesting, Kitty, thank you.
  25. cristiana
    Hi @Redlima My anxiety hit before diagnosis, and in fact it was anxiety which led me to see a doctor who put me on the road of various blood tests which revealed iron deficiency, raised globulin levels and borderline B12. At first my GP suspected a type of cancer, and didn't really know what else to make of it until about six months down the road when...
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