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tarnalberry

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Latest Celiac Disease News & Research:

Everything posted by tarnalberry

  1. tarnalberry
    You need to have had gluten for at least three months, every day, for "reliable" blood tests. The doctor was working with incorrect (according to everything I've read, anyway) information - or inferred it from other things in an erroneous fashion.
  2. tarnalberry
    IMHO, you are being too sensitive, but not too controlling. You and your husband have a system that works for you both. That is NONE OF THEIR BUSINESS. They don't get anything in it but to accept it. Period. Well, I suppose they are allowed to offer their opinion, to which you should listen and think about it in its context (rather than crying), and...
  3. tarnalberry
    lol well... we drove up most of the way, and only hiked another 800ft or so above that.
  4. tarnalberry
    lol... our week+ of rain started two days ago, and the snow level dipped to 4000ft. I went for a hike in the snow (falling on us and large drifts on the ground) yesterday! Open Original Shared Link
  5. tarnalberry
    Even the research studies that have found brain chemistry issues in fibro patients have noted that anti-depressants (and it's a specific set of them, I forget which ones) only help a subset of patients who take them, and that they don't know why. Heck, if you read the prescribing info for the vast majority of pharmaceuticals, they don't actually know the...
  6. tarnalberry
    it is certainly possible to have an intolerance to rice, and there's no reason that the symptoms couldn't be similar. there's no practical way to know for 100% certainty (I'm being a scientist when I use the 100% certainty term there, btw), if there's contamination, but the odds are really quite very very small, particularly if you are doing what you can...
  7. tarnalberry
    I understand not wanting to take pharmaceuticals, but sometimes it can be the right thing. That's not to say that you're wrong for your decision - it's a very personal decision and a unique one for each and every drug (and drug family). Just that it's a hard decision. (I have taken muscle relaxants in the past, when I was experiencing horrid muscle...
  8. tarnalberry
    it doesn't work that way. benadryl is an antihistamine. basically, it blocks the receptors for histamine on our cells. (some allergy drugs partially prevent mast cells from breaking down and releasing histamine as well.) celiac disease, however, doesn't have anything to do with the histamine release process (outside of general inflammation elsewhere...
  9. tarnalberry
    The compliance rates for the diets are actually shockingly low, and insurance companies don't have a way of knowing if you suddenly change your habits and either stop or start following the diet. So, the overall picture is a huge risk for them, even if a compliant celiac is not. Also, employers are starting to not charge everyone the same based on health...
  10. tarnalberry
    depends on the plant it's processed in. it may be possible, but it's highly unlikely. you can try rinsing the rice first. you may find that you have issues with the bran, or a mild allergy to rice that allows you to have white rice (where the bran and germ have been removed) but not brown. if rinsing and switching brands (including calling companies to...
  11. tarnalberry
    I like AlpsSnacks and Nutiva Hemp Bars (available at Whole Foods).
  12. tarnalberry
    actually, it's much like porridge - particularly well cooked, instant oats. it just doesn't have the same texture at all. (makes a good hot breakfast cereal if you doctor it up, though.)
  13. tarnalberry
    I would urge you to see an allergist. GP's may not be sufficiently knowledgable on the subject to get to the cause quickly, and if you don't get a good one, they may just try to medicate or not admit to not knowing.
  14. tarnalberry
    it means that they don't test it, and might mean that they produce other things in the factory. chances are, you'll be just fine. the only things that have gluten that you have to worry about are wheat, barley, rye, and oats. apples don't contain any form of gluten at all.
  15. tarnalberry
    lactose and casein are two different things. lactose is one of the sugars in milk, and you need to produce (or supplement) an enzyme to break it down in your stomach, or it passes to the intestines where intestinal bacteria break it down producing cramping and diarrhea. casein is on of the proteins in milk, and your immune system may decide to take...
  16. tarnalberry
    from a gluten standpoint, I don't know that it'll hurt, but if you're already getting plenty of soluble fiber and good fats, I don't know that it'll help either. some people trying taking more magnesium than that (particularly if you're taking calcium as well), or looking for other food intolerances. (e.g. dairy makes me constipated.)
  17. tarnalberry
    fyi, charlie, ROCK (in all caps, in this context) stands for "Raising Our Celiac Kids" and is kinda like a syndicated support group for parents of celiac children. but rock backs are good too.
  18. tarnalberry
    those people still won't be able to *prove* that they have "no" gluten. the reason for a limit is so it can be tested again. the reason to require testing is purely legal - otherwise there's no way to prove when people are faking the rule out.
  19. tarnalberry
    btw, lactose is not a protein, it's a sugar - a disaccharide of galactose and glucose. the protein (casein and whey being the major ones) remains unchanged with the use of lactase. a person can be intolerant to either - though the mechanism of intolerance is different for each.
  20. tarnalberry
    millet is the closest thing I've found. it's another grain, non-gluten containing, and available in some health food stores.
  21. tarnalberry
    Eh... I was in the middle situation - they were breaking through, but that doesn't mean that it won't become impacted as they try to grow in all the way, because there wasn't room for it. It's so individualized, based on your mouth. They'll probably do all the teeth at once, and you can use some orajel in the meantime to reduce the pain.
  22. tarnalberry
    are you working with an allergist or a regular GP on this one? if you're not working with an allergist, you need to get one.
  23. tarnalberry
    Given that you can have non-milk dairy products without symptoms, it's more likely that you are not intolerant to the casein (protein) in milk, but rather missing sufficient enzyme to break down all of the lactose (sugar). Your symptoms fit this pattern as well. You may want to try taking Lactaid - either getting the milk or taking the pill supplement ...
  24. tarnalberry
    It may not be food. Hives can also be caused by environmental allergens. Have you been seeing an allergist or had a full allergy test (I mean a scratch test, not a food allergy blood test).
  25. tarnalberry
    The scores don't really matter, as far as we know at the moment. It may say something about how responsive your system is, but not necessarily anything about either symptom severity or damage severity (with may be unrelated to each other). Celiac disease is binary - like pregnancy - you either have it or you don't. Until you're totally gluten...
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