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Latest Celiac Disease News & Research:
Everything posted by tarnalberry
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ARCHIVED Peanut Butter.... Any One.... Skippy..
tarnalberry replied to zachsmom's topic in Gluten-Free Foods, Products, Shopping & Medications
ditto that thought - I've not yet seen any peanut butter (or other nut butter) with wheat in it. not saying there isn't one in all the world, just that it's not a high probability. (still, ALWAYS read the ingredients.) -
ARCHIVED Burning Issue: Fruity Pebbles And Cocoa Pebbles
tarnalberry replied to surfgolden's topic in Gluten-Free Foods, Products, Shopping & Medications
You know your husbands/friends/coworkers spend too much time on MMORPG's when start reading the title to this post, and think it's a OT post about "Burning Crusades". Save me from the insanity! (The gamers, or those with gamers in the family, will get this. The rest of you thank your lucky stars it makes no sense.) -
ARCHIVED Can It Really Be This Simple?
tarnalberry replied to JerryK's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
yay! I'm glad you believe too! -
ARCHIVED Questions From Hubby
tarnalberry replied to hapy4dolphins's topic in Coping with Celiac Disease
Yes, it is the oat flour. Not only that, but it's made by Quaker, who has always noted that they have a high risk of contamination on their lines. -
welcome to the board! I'm glad to hear the diet is helping your symptoms!
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ARCHIVED Disarnno (liquor)
tarnalberry replied to debmidge's topic in Gluten-Free Foods, Products, Shopping & Medications
Be on the lookout, Disaronno is a fairly good amaretto, and is less likely to be used in mixers than straight up (or less mixed) drinks. There are a lot of other amaretto's out there (which I also suspect are gluten free, but if you go by the "if I haven't seen it personally verified" rule...) -
ARCHIVED One More "your Favorite" Question-pancake Mix?
tarnalberry replied to FeedIndy's topic in Gluten-Free Foods, Products, Shopping & Medications
Back when I could have dairy, I did enjoy the Pamela's mix. Those were good. (They have buttermilk powder.) -
ARCHIVED Coughing When Eating...
tarnalberry replied to super-sally888's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
My cough was due to cough variant asthma, which was surprisingly difficult to diagnose. As it is a form of reactive airway disease, the food could aggrivate it, but I'd be more inclined to think GERD or refllux as well. -
There are a lot of things you can make out of the naturally gluten free fruits, vegetables, and grains that are available. Googling "gluten free vegan recipes" will find out some resources. Raw cookbooks may be a good help as well. There are others on the board who are vegan who may have good resources for you. Not being able to eat beans, however,...
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ARCHIVED Why Do My Batters Get So Thick?
tarnalberry replied to emcmaster's topic in Gluten-Free Recipes & Cooking Tips
Any pancake mix I've used - or my husband has used - has thickened considerably if it sits for more than five minutes or so. (Depends on the flours used.) The Namaste mix I use has a little gum in it, but I think the gum may be part of it, because the recipes I use that don't have any don't do that - some things absorb more liquid than others.) As... -
ARCHIVED Already Had Cancer
tarnalberry replied to pat e's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Not following the gluten free diet if you have celiac disease does increase your risk for intestinal cancers, nutritional deficiencies, neurologic complications, other autoimmune conditions, and other systemic complications. The diet can be quite complicated in this world, but once you get past the learning curve, you'll find that it's far from impossible... -
ARCHIVED Ttg, Ema, Aga, Iga, Igg
tarnalberry replied to Amica's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Many celiacs have IgA deficiency, and it's not always horridly serious. Without a total IgA test, your IgA value doesn't tell you anything, and is worth checking on. Your test results seem, at the least, inconclusive. If eating gluten-free makes you feel better, that's important confirmation. -
ARCHIVED Gluten And Dairy Free?
tarnalberry replied to chocolatelover's topic in Food Intolerance & Leaky Gut
Yes. Lactose (milk-sugar) intolerance *often* accompanies celiac disease in the first months of treatment, as the enzyme to break down lactose is produced at the tips of the villi that are damaged by the gluten intolerance. Some celiacs also have trouble with casein (milk-protein) as well, which will not go away after a few months as the intestines... -
ARCHIVED Which Pain Medications Are gluten-free, Sf, Df, Cf, Ef ?
tarnalberry replied to marciab's topic in Gluten-Free Foods, Products, Shopping & Medications
No, regular pharmacies cannot compound medications, and I don't know that hospitals can (probably varies by hospital. IV meds are likely to be safe, but liquids I would expect to contain corn syrup... Compounded meds are more expensive and probably aren't covered as much by your insurance, but they can usually be made *exactly* to your specifications... -
ARCHIVED Gluten-free Honeymoon Suggestions
tarnalberry replied to blueeyedmanda's topic in Traveling with Celiac Disease
while I wasn't gluten-free at the time of my honeymoon, we did bed-and-breakfasts that had kitchens. worked great, and we could cook our own food. -
ARCHIVED Which Pain Medications Are gluten-free, Sf, Df, Cf, Ef ?
tarnalberry replied to marciab's topic in Gluten-Free Foods, Products, Shopping & Medications
You might be able to get something made up for you at a compounding pharmacy. -
ARCHIVED One More "your Favorite" Question-pancake Mix?
tarnalberry replied to FeedIndy's topic in Gluten-Free Foods, Products, Shopping & Medications
Namaste is my preference - made with almond milk. Even my "doesn't like gluten-free flours" husband enjoys the pancakes. -
ARCHIVED Help
tarnalberry replied to bknutson's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
If you tested positive, you have it. Period. It's not a game, and if you have the time, there's an awful lot of studies to read on pubmed.com (redirects to the site that archives journal studies). Not everyone has the same symptoms - even the diahreah. Many people do *not* throw up. Not everyone gets severely sick. There's a wide range of symptoms... -
ARCHIVED Why Do My Batters Get So Thick?
tarnalberry replied to emcmaster's topic in Gluten-Free Recipes & Cooking Tips
you do need to pour them fairly quickly... what kind of flours are you using? some of them can absorb a *lot* of liquid. humidity variation and other substitutions may make a difference. the guar gum probably isn't helping. you might try adding not just milk but other liquid as well - oil perhaps? and cinnamon! (ok, maybe that's just me ) -
ARCHIVED Bad Endoscopy Results :(
tarnalberry replied to Emme999's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Links to articles regarding cow's milk-sensitive enteropathy: Open Original Shared Link Open Original Shared Link One thing to note is that this is described as a 'temporary' enteropathy, and it appears that elimination for a while, followed by reintroduction, does not cause damage to reoccur. Now, I think we all know that there may need to be more... -
ARCHIVED Some Urgent Questions.. Please Help
tarnalberry replied to a topic in Coping with Celiac Disease
I don't know how much this is biological and how much this is psychological - either way, I've no doubt it's real. You get over it the same way you get over any craving - finding a way that works for you, and being patient. It may be strict avoidance. It may be replacing these items with gluten free ones you can have (Tinkyada or Glutino/Ener-G, in this... -
ARCHIVED Which gluten-free Moisturizers Do You Use On Your Face?
tarnalberry replied to Carriefaith's topic in Gluten-Free Foods, Products, Shopping & Medications
a good tip with the lip moisturizer is to use it before you need it - use it consistently for best results kind of thing. -
ARCHIVED Can It Really Be This Simple?
tarnalberry replied to JerryK's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
To be fair, it *has* been relatively well established that true depression *can* be a chronic condition brought on by a chemical imbalance in the brain. That's not to say it's true for everyone, or that it should be the first type assumed. (I think most psych's assume situational, then chronic, and you're right that they don't adequately address causal medical... -
ARCHIVED Which gluten-free Moisturizers Do You Use On Your Face?
tarnalberry replied to Carriefaith's topic in Gluten-Free Foods, Products, Shopping & Medications
depends on the pharmacy, it seems. I thought I had to get them at whole foods until I moved to seattle, and found that the bartell's across the street carried them. -
ARCHIVED Second Opinion?!
tarnalberry replied to cajun celiac's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
false positives are pretty much unheard of. it's worth getting the test results for yourself for a reference, but if you test positive, you have it. it's a steep learning curve, but once you get past that and figure out how to adapt your preferences and life, you'll find that it's not nearly as bad as it seems. it's a habit to break, and there's mourning...