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Latest Celiac Disease News & Research:
Everything posted by tarnalberry
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ARCHIVED Topax For Migraines
tarnalberry replied to jesscarmel's topic in Related Issues & Disorders
that's true - the trade offs go both ways, and there could be side effects that are not worth it, that are worse than the symptoms that you're experiencing, even if they were to go away. if I thought the side effects I had the first month were to last throughout the time I took it, I would never have stayed on the medication - my hands and feet would feel... -
ARCHIVED Feeling Overwhelmed
tarnalberry replied to Silver's topic in Parents, Friends and Loved Ones of Celiacs
1) After a Iga and Igg blood test, and a referral to a pediatric GI, what can I anticipate? We can't be seen until the end of March, so answers are nowhere near enough. It really depends. There isn't a really really standard process here. Most likely, they'll want to do a biopsy. 2) Is the intestinal villus test the "gold standard" for diagnosing Celiac... -
ARCHIVED Too Much Testing?
tarnalberry replied to jramfischer's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
That route of testing sounds totally standard (less than many doctors would do, actually). And I agree, given the picture that's already been taken, it's *fabulous news* that you're going gluten free. Welcome to the board! -
ARCHIVED Second Opinion?!
tarnalberry replied to cajun celiac's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
The 'prison walls' are as big as you make them - remember that many people in the world never eat wheat. And you'll also forget what constant diahreah is like. What constant bloating or stomach pain is like. You'll forget all those negatives too. And you'll learn a bunch of new positives as well. -
ARCHIVED My Gi Doctor Said My Ulcerative Colitis Is Not At All Related To Gluten
tarnalberry replied to bumblebby's topic in Coping with Celiac Disease
While I can imagine one or two - absolutely, it seems the first culprit suspected should be food! -
ARCHIVED Update/ To Brother In A Heap
tarnalberry replied to winki4's topic in Parents, Friends and Loved Ones of Celiacs
I'm so sorry. My best wishes to him and your family. -
ARCHIVED Elizabeth Haselbeck Said She Has Celiac!
tarnalberry replied to TBOX's topic in Publications & Publicity
One thing it will absolutely help with: "brand recognition". Hopefully a few less people will look at their loved ones and say "Celiac Disease? I've never heard of it. You must be making that up. Now eat that roll." -
ARCHIVED I'm New! Any Help Greatly Appreciated
tarnalberry replied to BadTummy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Welcome! Your symtpoms could be celiac related, and do sound food related. The reason why a food log would be so helpful is that you say it "doesn't happen if you eat a salad" - what was on that all of those salads that didn't bother you; did it include croutons? And you say that it does happen if you eat anything else? Is that *REALLY* anything else?... -
ARCHIVED Frustrated By Friend Who's Dh Is Supposedly Celiac!vent!
tarnalberry replied to LyndaCanada's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
You hit the nail on the head - she needs to respect your decisions. She (well, more precisely, her husband) may choose different ones, but that doesn't mean you have to make the same decision he makes. If you want to respond to her disbelief in the medical studies about the long term effects of untreated celiac, you could go to pubmed, print the abstracts... -
ARCHIVED Fda Proposal Allows Gluten-free Label
tarnalberry replied to Moongirl's topic in Gluten-Free Foods, Products, Shopping & Medications
Very likely, I'd think. They have to worry about the perception of the "gluten-free" label by consumers who have no idea what that label means and what that means to their purchase rates. Not to mention the 'real estate' cost on the label. -
ARCHIVED Suffolk County Fair
tarnalberry replied to joel's topic in Introduce Yourself / Share Stuff
Sounds like a fun event! -
ARCHIVED Travelling To England And Scottland
tarnalberry replied to LRgirl's topic in Traveling with Celiac Disease
I would encourage you to call the airline and ask for their assistance in planning this one out - for both ends of the trip. There are so many little regulations that may be difficult to know about, aside from individual policy restrictions on a particular airline, that going to the source directly will probably yield the best results. -
ARCHIVED Send Comments To Fda On New Labeling Guidelines
tarnalberry replied to sunshinen's topic in Gluten-Free Foods, Products, Shopping & Medications
I prefer the fact that manufacturers can't imply that their brand of normally gluten free items are special because they are gluten free, as this sort of thing could mislead folks new to the diet, on the periphery of the diet, or who don't pay as close attention as those who take the time to stay informed. Not to mention false implications leading to false... -
ARCHIVED Healthy Hemp Tortillas
tarnalberry replied to tarnalberry's topic in Gluten-Free Foods, Products, Shopping & Medications
I got them at the PCC is Issaquah. -
ARCHIVED Can We Talk About Bandaids?
tarnalberry replied to olalisa's topic in Introduce Yourself / Share Stuff
many people are sensitive to the adhesives they use. different brands use slightly different adhesives, so do try different brands. (I always use the waterproof bandages myself, and am usually fine with them, but will react maybe 2% of the time.) -
ARCHIVED Cheese And Mayo And Salad Dressings That Taste Good
tarnalberry replied to Deanne's topic in Gluten-Free Foods, Products, Shopping & Medications
you can make a ranch dressing from raw cashews, blended in a cuisinart with water, cider vinegar, salt, dill, and italian herbs. quite tasty. as for a casein free cheese... never found one I'm happy with, but I always was a cheese snob. -
ARCHIVED Need Clarification
tarnalberry replied to sore joints's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Mainstream medical science just doesn't really know, unfortunately. There isn't even much recognition of non-celiac gluten sensitivity. My feeling is *yes*, that it just means that you're aware of the effects on your body before there's much damage to the intestines, but what any one doctor will say on the subject... -
"bush's Best"- Baked Beans - Safe
tarnalberry replied to KrisT's topic in Gluten-Free Foods, Products, Shopping & Medications
It may not be homemade, but they are good! -
ARCHIVED gluten-free But Still Getting Sick
tarnalberry replied to nephlim's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
After it happened, were you able to make any guesses about how you were contaminated? -
ARCHIVED Thank You, And Hello
tarnalberry replied to UR Groovy's topic in Introduce Yourself / Share Stuff
Welcome! It is daunting at first, but isn't it great to be feeling better! -
ARCHIVED Sushi?
tarnalberry replied to Sinenox's topic in Gluten-Free Foods, Products, Shopping & Medications
As has been mentioned, imitation crab meat is a common source of gluten in sushi restaurants. Additionally, did any of the rolls have a sauce in them? (Not the soy sauce on the side, but a sauce in with the meat/veggies.) If so, it likely had soy sauce or another sauce which contained wheat. Another option is that the wasabi contained wheat. This... -
That is an option, and how they determined the issue in the first place. But it's also why I suspect the number is actually higher than 10%. The results came from those who had intestinal damage after a few weeks on daily oats. We know from other studies, and our own experience, that it can take longer than a few weeks of gluten exposure, after having...
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ARCHIVED Oats!
tarnalberry replied to Rob.'s topic in Gluten-Free Foods, Products, Shopping & Medications
1) Pretty much all commercial oats, including McCanns, have been tested to be contaminated with wheat at levels above the 200ppm European CODEX standard. There are a few places, Open Original Shared Link that are set up, throughout the whole process, to provide uncontaminated oats. 2) Even pure, lab grown oats, with no wheat contamination, cause intestinal... -
ARCHIVED Pitfalls Of Self-diagnosis
tarnalberry replied to JerryK's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
The semantics thing amuses me. My opinion: Having Celiac disease is not a choice, lifestyle or otherwise. Being on the gluten free diet is a choice, and by the definition already posted, a lifestyle one. Have a disease/condition/ailement is not a choice, but treating it is. It might be dumb not to treat it ('hey doc, I'm profusely bleeding... -
ARCHIVED Transglutaminase Question.
tarnalberry replied to JerryK's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
*Theoretically* I would agree with you. The "true" indication of damage to the intestine is through the biopsy, but I have a feeling medical science will change it's mind on that one eventually.