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Latest Celiac Disease News & Research:
Everything posted by tarnalberry
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ARCHIVED Newly Diagnosed With celiac disease
tarnalberry replied to Ogie Oglethorpe's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Welcome! Like the others said, it may take a while for you to feel better, and you have to be 100% gluten free, but you'll get there. It may take months (or longer for a few), but you will get there! -
I've had the ener-g bricks - after heating up the bread - with some of my more flavorful sandwhiches. They're not as bad as they look after heating, but, yeah, not real bread either.
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not necessarily related to celiac at all. it sounds like reactive hypoglycemia, particularly depending, as johnsoniu said, on the speed with which the carbs were assimilated. for those of us who are hypoglycemic (not in the diabetic sense, but in the reactive sense), lots of high glycemic index carbs just isn't an option - balance at each meal is vital...
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ARCHIVED What Fat Can I Use To Make Cookies
tarnalberry replied to hathor's topic in Food Intolerance & Leaky Gut
Sometimes, oil will work sufficiently - the main thing is that the amount of water is oil is far less (none) than in butter, which is why the recipes don't come out. You can look up how much water is in butter, and do the math to find out how much oil/water you'd need to sub for how much butter was called for, but it can depend on the recipe. (I use canola... -
ARCHIVED Natural Flavors?
tarnalberry replied to JennyC's topic in Gluten-Free Foods, Products, Shopping & Medications
Wheat has to be listed, if that was used in the derivation of the "natural flavor", but you're right - it can be hit or miss. I try to make intelligent choices (natural flavors when it's referring to a fruit, for instance, are likely to be fine) and try calling the company to see if they do know, but there is no magic rule other than trying to get a feel... -
ARCHIVED Whole Foods Market Labels
tarnalberry replied to pugluver31902's topic in Gluten-Free Foods, Products, Shopping & Medications
I wouldn't give up on the store just yet - you only had contact with one individual from it who behaved very badly. I would report your experience to the manager (and corporate, if you feel like going that route as well), however, so they can take steps to ensure it does not happen again. -
ARCHIVED Please Help Me Choose Endoscopy Or No Endoscopy For My Son.
tarnalberry replied to momof6's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Given that everything else has been negative or inconclusive, I think that continuing to look is better than doing nothing, and this sounds like the next step, unpleasant though it may be. Good luck! -
Some doctors want to have the biopsy done, as it is 'classically' part of the 'gold standard' for diagnosis. Not all want, or need it, to give a diagnosis, but it varies by doctor; there is no truely standard rule. I would not expect anything else to give those test results, and if a dietary change produces positive results, I think you'd have all the confirmation...
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who puts butter on steamed veggies??!?!?!?!!? grrr. (the grrr being for those of us who are dairy intolerant.)
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One thing that can help is for you to not restrict other people's choices. That does require you to go somewhere and not eat anything if you can't be confident that you can find something gluten free, and early in the diet, or in your eating out experience, you may find that you're not prepared for that - and that's ok. But as far as socializing goes, I...
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ARCHIVED This Is Wonderful For Spouses
tarnalberry replied to Mtndog's topic in Parents, Friends and Loved Ones of Celiacs
Good letter, and I only wish it could also be generalized. I think that it would help if most people realize that this sort of thinking applies to *all* couples - regardless of health state. The assumptions that are the underlayment of our daily activities (and are usually based on how each of us feels, not thinking about the other person's perspective... -
ARCHIVED My Husband A.k.a. "turd For Brains"
tarnalberry replied to Canadian Karen's topic in Introduce Yourself / Share Stuff
Wow. Just... wow. How can someone even do that? My husband doesn't even make gluten-filled pancakes any more because the dust was too annoying to deal with. That really sucks. -
ARCHIVED How Do You Deal With Other People's Reaction
tarnalberry replied to ami27's topic in Coping with Celiac Disease
I like the "Well, if you know that hitting yourself in the head with a hammer hurts, do you really need your doctor to tell you to stop, or are you going to listen to your own brain?" approach. Snarky, but then again, apparently so is she. -
ARCHIVED Frustration With The Applebee's Lunch
tarnalberry replied to blueeyedmanda's topic in Gluten-Free Restaurants
Ok, I'll play... (Dons flame proof suit.) It is her birthday. And sometimes, it's alright for other people to get what they really want on special occasions. In situations like these, rather than begrudge your coworker their favorite, I'd say go along, socialize, and either brown-bag it when you get back, or bring your brown-bag with you. Sometimes... -
ARCHIVED Calling All Gas Stove Users...question
tarnalberry replied to blueeyedmanda's topic in Introduce Yourself / Share Stuff
The flame on the gas stove should be blue. (Gas fireplaces are designed to burn orange above the logs, though.) Incomplete combustion isn't a great sign at all, and could cause carbon monoxide buildup. It's interesting that you're getting this when loading things, though. That, and definitely time to get a carbon monoxide detector. -
ARCHIVED Lundberg Organic Risotto.
tarnalberry replied to MySuicidalTurtle's topic in Gluten-Free Foods, Products, Shopping & Medications
I also am a fan of making it from scratch, not a mix. You do need to get risotto rice (available in most places), though most short grain rice varieties have enough starch to get the creamy texture as well if made the same way (slow simmering, frequent stirring, adding liquid a little at a time). Doing this with a high starch content short grain brown rice... -
I use the regular muffin recipe out of a normal Betty Crocker cookbook, and sub out a mix of gluten-free flours that vary depending on my add-ins.
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ARCHIVED Celiac Disease Or Cystic Fibrosis?
tarnalberry replied to ptkds's topic in Parents, Friends and Loved Ones of Celiacs
That's me - to a T - for most of my life. It was at least partially asthma, and partially an immune system that takes it's time fighting back. (I didn't have a total IgA test, but I'd bet that it'd show me as deficient.) If it's coming back that quickly, she may be experiencing resistance to antibiotics, or need them in the first place. I would encourage... -
ARCHIVED Chicken And Rice Soup
tarnalberry replied to Juliebove's topic in Gluten-Free Foods, Products, Shopping & Medications
Making chicken rice soup is very easy, and you can make a large batch and freeze leftovers for another day(s). -
Gluten doesn't give everyone diahreah - it gives many people constipation. It can definitely be both, particularly now, as you heal.
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ARCHIVED Lundberg Bbq Rice Chips And Pamela's Cookies
tarnalberry replied to chick2ba's topic in Gluten-Free Foods, Products, Shopping & Medications
Are you sure it's not dairy? I believe both (some versions of Pamela's anyway) have dairy. -
it always annoys me that they can say "eliminate five things from your diet, and you're nutritionally unbalanced" - ONLY when it comes gluten and dairy.
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ARCHIVED Gluten In Corn Starch?
tarnalberry replied to jesscarmel's topic in Gluten-Free Foods, Products, Shopping & Medications
Gluten, technically, is a generic term, for the protein found in pretty much every single grain - wheat, barley, rye, corn, millet, rice, buckwheat, etc. Chemically speaking, it's a broad term. Medically, our community uses it to refer to only four of the gluten proteins - from wheat, barley, rye, and oats - out of all of them. (Hence, the term is overloaded... -
ARCHIVED I'm Panicking About Spending 2 Months In A Non-gluten-free Household
tarnalberry replied to mesmerize's topic in Coping with Celiac Disease
It could even have been the broth - some varieties have gluten. You'll need to check the labels on everything, yourself, and be on heightened lookout for contamination. Yeah, it's a pain checking every last ingredient for every last thing that goes in your mouth, but it's got to happen. -
ARCHIVED Good Example Of A Little Bit Of Knowlege Being Dangerous
tarnalberry replied to mamatide's topic in Publications & Publicity
the correction continues to support the use of spelt, and the idea that some celiacs can tolerate some levels of gluten. it's still a VERY misleading, and in some places just plain wrong, correction. HORRID!