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tarnalberry

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Everything posted by tarnalberry

  1. tarnalberry
    It's not widely accepted yet that you can have non-celiac gluten intolerance. You could - relatively fairly, since you haven't done testing - say "we have a presumed diagnosis of celiac disease." If she asks for details on the presumed, you can say "we don't have an endoscopy, but we have dietary challenge results that were positive. we, and the doctor...
  2. tarnalberry
    Honestly, it's so far out of the norm for many people, that yeah, it's surprisingly inconvenient. Not to mention it's not particularly trustworthy since you don't know about contamination, nor would you know "ingredient ingredients" if someone, for instance, put "broth, rice, ..." on a label. At any event like this, I assume there will be nothing I can...
  3. tarnalberry
    Lol... I do twitch a bit every time someone pronounces croissant with a "t". I use tummy all the time, but specifically for "the pregnant tummy/belly". It's not quite an abdomen (well, not after a while) and it's not a stomach. And it's not even just a uterus - it's a mass of rearranged and unusually sized things in the region between the breasts...
  4. tarnalberry
    I think we should also be quite clear - are we talking about the flavored varieties, or the plain corn or rice ones? I've had issues with the chocolate and cinnamon flavors. I can't say for sure that it was gluten, but it seemed similar. (My reactions are neither extremely intense nor extraordinarily unique from other things that can cause bloating/loose...
  5. tarnalberry
    as has been noted - it's true there isn't a US regulation yet (there are in other countries), but it's in the works. it's really slow, but I'd rather Glutino be able to say gluten free on their products, rather than wait until the FDA finishes whatever bureaucratic nightmare they have before there is a regulation. definitely still worth writing the company...
  6. tarnalberry
    At least one manufacturer (I forget who) added a wheat containing ingredient *BACK* to their cereal, partially because they didn't want to deal with people thinking it was gluten/wheat free on ingredients, but was actually made on shared lines that left many people sick. If you want to really minimize your risk of contamination, you have to avoid processed...
  7. tarnalberry
    it can also fail if your dog is quite smart, as - depending on the size of the dog - they can learn to jump *over* it. also, if there is something they *really* want to get at; they'll just deal with the shock they get on the collar and go "through" the fence. if it's at all possible, I would suggest a regular fence (we have chainlink, because the owner...
  8. tarnalberry
    these problems can also come up entirely independent of celiac disease, so going gluten free is certainly not going to mean you're now healthy and free of any medical problem for life.
  9. tarnalberry
    This shouldn't keep you from enjoying your meal. My Thanksgiving has always been gluten and dairy free (happens to be soy free as well), and very low fat (since my FIL is on the Ornish diet). (And we always have turkey... I've never used pork at Thanksgiving. ) We generally have bean soup, a green salad w/ fruit on top, turkey, turkey gravy, roasted...
  10. tarnalberry
    The idea that "they don't allow any ppm under that label" may simply refer to the likely guidelines on what gluten free means - which is tests gluten free to 20ppm. Get angry at "could possibly have 1ppm" gluten all you like, but it is NOT economically feasible to test for less than that. If you want to pay $30/box for cereal, and have a couple thousand...
  11. tarnalberry
    personally, I'm not a big fan of "fat free" everything. watch your portions, and eat the full fat version as it will fill you more - cheese and yogurt in particular. the fat free versions almost universally have more sugar (or artificial sweeteners) to make up for the difference in taste. of course, this doesn't work for everyone, but I found it very helpful...
  12. tarnalberry
    I've only seen this one recently (past four years or so), but it really annoys me when people say "that's a mute point". It is not a point unable to communicate. It is a MOOT point. As in "The adj. senses of "debatable" and "not worth considering" arose from moot case, earlier simply moot (n.) "discussion of a hypothetical law case" (1531), in law student...
  13. tarnalberry
    It's worth noting that if you're trying to keep your clothing clean, you try to avoid dirt. Same way here - if you're trying to avoid being unhealthy and sick, you try to avoid gluten. But does that mean that I send my husband to the grocery store because they stock wheat bread, instead of going myself? No. Maybe there's an infinitesimal risk of contamination...
  14. tarnalberry
    You're right - a celiac isn't going to be able to avoid every last molecule of gluten. And you're right - just about every molecule of gluten is going to cause a reaction in the intestines. BUT, my theory is this: if the damage caused by the infinitesimal 'contamination' we get is less than and slower than our body can heal it, the net effect is that we...
  15. tarnalberry
    "salad" can be healthy and filling, depending on how you make it. a handful of spinach (my hands are small, but my handfuls of spinach for a salad always impress my husband , a sliced chicken breast, or leftover salmon (or canned salmon), maybe some hardboiled egg, tomato, and dressing, and the salad gets filling. You could add garbanzo beans too. Of...
  16. tarnalberry
    Outside of the standard dedicated cutting boards, wooden spoons, toaster, condiments, nonstick pans, etc., I do not worry about shared dishes (cleaned, of course), stainless steel pans, washing, etc. I DO stay away from used non-stick pans at other people's houses, and am wary of cutting boards and cooking utensils. You'll find that we don't all do...
  17. tarnalberry
    What type of pain? Is it abdominal, back, vaginal, perineal? If you're tearing during sex due to dry skin, the gluten free diet won't help. Some people feel there is a relationship between diet and some sexual pain conditions, such as vulvodynia (and it's subtypes).
  18. tarnalberry
    Happy Birthday!
  19. tarnalberry
    lol - yup, I totally read that, and may own brain blip messed it up. it's almost like a game of telephone.
  20. tarnalberry
    I'm going to reiterate what Jestgar said - the majority of people who cannot tolerate soy, generally *can* tolerate small quantities of soy derivatives that do not (generally) contain soy protein. So, soy lecithin as an ingredient or small quantities of soy oil. Of course, you want to be aware of whether or not those levels are still too high for you, but...
  21. tarnalberry
    I have decided that I generally don't trust the places (too many various sauces). But, most of them will serve sushi, so I'd go for some simple sushi. If you're not too sure about raw fish, you can always just get a cucumber roll and avocado roll (the simple, one ingredient ones are best if you're not a sushi navigator, 'cause sometimes they'll put wacky...
  22. tarnalberry
    gottaski - congrats on seeing a bit of improvement from the mag/coq10! AWESOME! every little bit helps!
  23. tarnalberry
    That is interesting. I would be intrigued to see how this overlays with FMLA, which *does* offer some protection from periodic "disabilities". (I ended up having FMLA paperwork, and using it (for all of two days), due to the fibromyagia. There are limits, of course, and it requires doctor paperwork (which, honestly, my doctor was reluctant to give, as...
  24. tarnalberry
    I don't think that there is a universally acceptable level of avoidance or allowance. For instance, 1, 2, 3, 4, 8, 11, and 12 are all commonplace in our house. We don't have separate sponges, we share dishtowels (with clean hands and non-gluten surfaces), we don't segregate runs in the dishwasher. (And I don't know why Palmolive would be a problem... I...
  25. tarnalberry
    Yup - unless you know you can trust them, the house is gluten free while they're there. Period. My mother-in-law is great about things like not double dipping in condiments, keeping her and my father-in-law's bread to the bread board and a plate, and only getting non-whole-food stuff from the store that is a brand/variety I've approved. That is the only...
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