Jump to content

tarnalberry

Advanced Members
 View Profile  See their activity

  • Posts

    8,591

  • Joined

  • Last visited

  • Days Won

    13

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by tarnalberry

  1. tarnalberry
    Definitely far from square one. You know that your body is reacting to gluten (via the blood tests). You know they didn't see any damage in your intestines, but you don't know how hard they looked, or how "destroyed" something had to be to count for damage. As everyone else said, try the diet. Six months would be fabulous, but promise yourself at least...
  2. tarnalberry
    You absolutely can get "late" side effects. it took about two years for me on OTC to discover that my body did not like synthetic hormones any more. I tried other types of HBC, but Mirena and NuvaRing were all a wash. I had to go off HBC and use FAM and condoms. (Though I later discovered I was testosterone deficient, so I still took some hormones Turns...
  3. tarnalberry
    Quantative Immunoglobulin IGA Low 44 Flagged Reference 70-400 This test tells you that you are IgA deficient. Occurs in about 10% of celiacs. Antigliadin IGA Normal 3.0 Reference 0.0-10.0 Because you are IgA deficient, this test is useless. Results don't mean anything. Antigliadin IGG Normal 5.6 Reference 0.0-10.0 This test comes...
  4. tarnalberry
    Three samples are generally not enough. What were her blood test results?
  5. tarnalberry
    my sleep study turned out to not have any specific findings, but based on what the analyst wrote in the report, and my symptoms, we decided to try me on RLS meds. my iron was taken at the time, and not thought to be an issue. I went off the malic acid and coQ10 only because I couldn't figure out if it was contraindicated in pregnancy or not. I've read...
  6. tarnalberry
    hummus (regular, sun-dried tomato, w/ fresh italian herbs, extra garlic, etc.) , black bean dip, guacamole, fresh salsa, raw ranch dip (made w/ cashews, no dairy). those are the ones I usually make.
  7. tarnalberry
    cramping - similar to menstrual cramping - is quite common in early pregnancy. what you describe seems a little excessive, so I am glad that you are keeping up with your doctor. you might even consider finding an OB who can help you investigate this issue. not everyone gets morning sickness, and sometimes it takes a little while longer for it to kick...
  8. tarnalberry
    Gluten free didn't really affect mine. Dairy free did!
  9. tarnalberry
    Good for you! This is awesome! Too many people decide not to go at all if they go alone. Don't get me wrong, it's still a lot of work, because you have to come home and "translate the lesson". My husband also was not thrilled about counseling. He went once on his own (per the psychologist's request) and once with me. After that, he said "I'd REALLY...
  10. tarnalberry
    Love the picture that goes with this one: Open Original Shared Link I have generally read, though somewhat varying numbers, somewhere between 12 and 48 hours, depending on the individual, the food, and the general amount of fiber in the diet (more fiber = shorter transit time). Longer is possible, but I understand that to be the *most* common.
  11. tarnalberry
    I can get it at my local Safeway, in WA. I don't rinse the pasta if I'm putting a sauce on it right away, because I like the extra starch to help thicken the sauce. If I'm making a pasta salad out if it, I will rinse it, or the extra starch will make it stick too much together after it's gone into the fridge.
  12. tarnalberry
    Given what you describe, I would probably say that oats will always be out for you. It's not a matter of healing, for this sort of thing, because you are actually having a celiac reaction to the oats. The protein in oats is similar enough that some people's immune systems "generalize" their response to that oats are "close enough in appearance" to cause...
  13. tarnalberry
    hot tea (mint, ginger, green); lots of water; lots of sleep I treat it similarly (but not quite the same) to being sick - my body sees it as an immune system fight anyway.
  14. tarnalberry
    Not everyone is like this. My inlaws are awesome about it - in their home or mine. (I make my father in law eat his shredded wheat on a tray that is dedicated solely to him, even though they only visit twice a year.) My friends are pretty good about it - at the least understanding, and when they feel they can do it, try cooking for me. My husband may...
  15. tarnalberry
    Thanks guys. Let's just say that it came from rather a lot of experience with my husband and I working through our own issues. Celiac wasn't a problem for us, but the vulvar vestibulitis I have, and more than a little computer game playing on his part. Fortunately, we had a lot of working through my own issues to help teach us how to communicate, and...
  16. tarnalberry
    Absolutely eat before you go, so you don't feel pressured to eat anything you're unsure of but have a little room to partake. And bring food with you in your car if you need some for the trip back. Asking questions is great, but there are so many overlooked things that, honestly, I don't eat something that a good friend who understand the "hidden ingredients...
  17. tarnalberry
    One thing that is *very* important to me is to prevent from getting really nauseated. So, I start the morning with a little bit of juice, since I can't fathom eating as soon as I get up. (I mean within the first 10 minutes of getting up or so.) No later than 30 minutes later, I have a small, but "real" breakfast. It CANNOT be "toast" or a piece of fruit...
  18. tarnalberry
    While we certainly don't know the whole story, what you write describes a very selfish husband. The man could make his own breakfast if you needed more sleep! My first suggestion would be to stand up for yourself and speak to him. But in order to do that, you need to undersatnd for yourself what it is you are asking for. Do you want him to take over...
  19. tarnalberry
    Have you had a sleep study? Sleep issues may often be concomittant with fibro, and I personally think it's a chicken and egg problem. Also, if it's of any help, both of the fibro meds I took I was on very low dose (10mg for mirapex, when the standard dosage is 25mg to 50mg and 20mg cymbalta, when the standard dosage is much more - these are RLS and fibro...
  20. tarnalberry
    I feel you - I had about two months of the same thing going on. Yup, food prep is a nauseating idea. Yup, most foods are a nauseating idea. Whatever you think you might be able to eat (not that you want, but you might be able to eat), have it. And realize that your body, in an effort to get as wide a range of nutrients as possible, may well not want to...
  21. tarnalberry
    It was only my ferritin that was low. I take the same thing - ferrous sulfate. I had been taking SlowFe, but switched to a liquid during my first trimester when pills did not sit terribly well in my stomach. Prior to that, I tolerated it completely fine. (It's worth noting, that I had previously been on regular B-supplementation (not just B-12, but...
  22. tarnalberry
    Any book is going to be out of date the moment it's printed, so even if you use one to steer you in a direction, ALWAYS read labels before purchasing or using.
  23. tarnalberry
    You can do gluten free vegetarian, but it's true that to keep the diet well balanced, you need to not rely just on grain. Whole veggies (which you can still fry in gluten free flours, if you want), gluten free grains (corn, rice, amaranth, quinoa, teff, buckwheat, millet, sorghum), legumes, nuts and seeds, dairy and eggs if you're lacto-ovo, and fruits can...
  24. tarnalberry
    Honestly, I think it's a mistake to try to "replace" the stuff you miss. You're right - wheat tastes like wheat, and no combination of rice, potato, tapioca, teff, millet, quinoa, amaranth, sorgum, flax, nut, etc. flour will taste like wheat. If you EXPECT to make wheat bread out of non wheat ingredients, you're going to be disappointed. I would encourage...
  25. tarnalberry
    Yes. I developed fibromyalgia and restless leg *AFTER* being gluten free (for four years) and casein free (for three years). For me, at least part of the problem was low iron - just borderline low, but still low. I suspect the same stress that instigated the celiac was leading me to not absorb enough and need too much iron. Until my pregnancy, I took...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.