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Latest Celiac Disease News & Research:
Everything posted by tarnalberry
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ARCHIVED Quaker Rice Snacks Now Contain Wheat!
tarnalberry replied to darlindeb25's topic in Gluten-Free Foods, Products, Shopping & Medications
The new website lists that they've added wheat, but my experience is that it can take MONTHS for the new formulations to pop up in the stores. I'm still seeing Chex with barley malt in mind. Makes you wonder just how old the food we buy in a box is.... (As you note, however, that is why we ALWAYS read labels. ) -
ARCHIVED Gluten-free Pet Food -- Really Necessary?
tarnalberry replied to OliveBranch's topic in Coping with Celiac Disease
For cats, I would absolutely avoid gluten. Felines are obligate carnivores, and grain does not suit them for optimal health. (A few veggies are ok, but only about what you'd expect a wild cat to find in a kill's stomach.) For my dog, I feed him mostly grain free foods (we rotate foods at each meal - you'd get bored too if you at the same thing every... -
ARCHIVED Feeling Better But Am I Too Paranoid?
tarnalberry replied to jensey's topic in Coping with Celiac Disease
Yup - without gloves and a mask, in a bakery you're unlikely to eliminate gluten enough to really, fully give your body a chance to heal. Too much flour in the air, coming in to the mucus membranes of the nose (to be swept down the throat) or into the mucus membranes of the mouth (as you yawn, talk, etc.). -
ARCHIVED And The Misinformation Begins....
tarnalberry replied to Lawspike's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
When someone tells me that, I respond with "well, if you want to be sick, that's up to you. I don't like to feel as sh!$$y as I do after eating gluten, so... I don't!" -
ARCHIVED Confused - False Positive
tarnalberry replied to ccooper's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Most of us here "don't believe in" false positives. Why? Because your body is not going to produce an antibody to itself with no reason and without doing damage. It's kinda what autoimmune diseases are all about. Do you know WHICH test came back "positive"? I'm assuming, from your comment about testing total IgA, that it was the anti-gliadin IgA test... -
I haven't tried gluten-free oats yet. But, if you're sensitive to them, it's likely to elicit a very similar response as your normal gluten response, because it's the same chemistry going on in the gut. That said, my gluten reactions usually are NOT identical from one instance to the next. Similar, but not identical.
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ARCHIVED Celiac Misdiagnosed As Depression?
tarnalberry replied to Mi55-E's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
wait. in your list, you had DH. you mean you've been diagnosed with dermatitis herpetiformis? if so, then you are celiac; no additional testing needed. -
ARCHIVED Is My Doctor Full Of It?
tarnalberry replied to PacMan's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
your doctor is old school - where only a biopsy can diagnose celiac. she's also not thinking thoroughly about the issue. (otherwise, what happens if the genes just turned on - as some studies suggest that bacteria can do - and the autoimmune reaction is only very recent? does she expect a whole lot of damage in the gut for something recent? if so, why... -
It is tough. But if you have a psychologist you're already seeing, you might be able to talk to him/her about it. You certainly have to make sure to not come off obsessed, but rather well-informed and conscientious. When you see the doc, don't say "oh my god you guys never believe me but I have this, this, this, this other thing, that, that other thing...
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ARCHIVED How Long Should A Gluten Challenge Be?
tarnalberry replied to Defkid's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Tests are unlikely to be accurate with that little gluten. -
ARCHIVED Scientific American Article - Aug 2009 Issue
tarnalberry replied to CeliacMom2008's topic in Publications & Publicity
guys, haven't you read the stuff he's put out about the zonulin drug? he specifically states that it is NOT a substitute for a gluten free diet. it's an adjunct to help with contamination. I think we're seeing forest fires instead of the campfire in front of us... (yes, that is the point of the analogy - one can become the other, but the latter can be... -
ARCHIVED Can We Trust Internet Site For Gluten Free Foods
tarnalberry replied to Diva1's topic in Gluten-Free Foods, Products, Shopping & Medications
Trust, as in "it was on the website, so I'll just buy it"? No. Always read the labels. If you can find RECENT and RELIABLE* information, then it's a "this is worth reading the label" sort of trust. *reliable - this is a discretion/judgment that you just have to learn, both in general (especially on the internet, where it's harder and has more shades... -
hugs! I'm sorry. You're well on your way to getting your body back to top condition, so *good-luck vibes* for the next go around.
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sorry I didn't see this sooner. Yes, omega-3 helps inflammation. That's actually why it's good for the heart; it reduces inflammation of the blood vessels. And bromelain is a combination of enzymes from pineapple. It can help break down proteins (why is why it's used as a digestive aid when taken with meals) or can act as an anti-inflammatory in the body...
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ARCHIVED Help Me With Chicken Broth
tarnalberry replied to Diva1's topic in Gluten-Free Foods, Products, Shopping & Medications
I totally believe you. I remember it *used* to have gluten (long story, of the "someone tried very hard to make a gluten-free meal for me, but didn't read the lables" variety (I did read them, before eating the food)), but this is a GREAT example of why old information is not good information and we always have to read the labels! (And this one going in... -
ARCHIVED Help Me With Chicken Broth
tarnalberry replied to Diva1's topic in Gluten-Free Foods, Products, Shopping & Medications
It's worth noting you still have to read the labels. At least a year ago, one of the Swanson's chicken broths (organic) contained gluten. That certainly may have changed, but it lurks! -
Calcium interferes with the absorption of iron, and should not be taken together. Talk to your doctor about *what* tests they ran for iron. Total Iron Count? Ferritin? One of the others. They don't all tell you the same story.
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ARCHIVED Scientific American Article - Aug 2009 Issue
tarnalberry replied to CeliacMom2008's topic in Publications & Publicity
Statistics disagree with you. The majority of celiacs are NOT strictly gluten free, and do *intentionally* cheat on the diet, according to random sample studies. We all know that it is very difficult to avoid every instance of contamination without making significant life-style changes, as well. Which does make the diet, when used in the population of... -
ARCHIVED I Could Really Use Some Opinions, Please?
tarnalberry replied to Alex33's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
If you can't go to the doctor (and you don't have to have insurance, you can even find a sliding scale clinic), then the only thing you can do with respect to testing food intolerances is to try eliminating the suspects. If you think you could be gluten intolerant (and your symptoms do indeed overlap), then you can try going *COMPLETELY* gluten free... -
A prenatal with 100% rda of folic acid (800 micrograms/day) should be just fine. Taking a bit of extra calcium, to make sure you're meeting the day's requirements (1200-1500mg/day). But I'd ask your doctor to run a blood test to check for vitamin/mineral deficiencies. If you're low in iron, you'll want to supplement. If you're normal on iron, you will...
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ARCHIVED Time For Exhaustion To Go Away
tarnalberry replied to Knoppie's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
B-12 and iron levels being low will certainly make you tired. Do try to find out if there's any iron supplement you can take, or consider getting one shipped from overseas. You can also start cooking with a cast iron pan in order to get more iron (particularly if cooking acidic foods). Whether levels will stay up or not depends on why the levels were... -
A CMP only tests certain parts of the body involved in metabolism (that is NOT the same as digestion (e.g. celiac), or hormone release/update (e.g. thyroid). It's "complete" (well, moderately well rounded) METABOLIC panel, not "complete head to toe blood testing". This site will tell you what is included, in case having something for your mom would help...
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ARCHIVED Im A Mental Wreck, Please Help!
tarnalberry replied to bethlany88's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
if you have grass allergies (severely) and possible other allergies, go see an allergist. that could be the cause of the wheezing, but they may also be able to either give you an antihistamine that will help, or allergy shots (doesn't work for all allergies). allergies alone can make you feel totally spacy and crappy - it might not even be the gluten free... -
it could be a casein issue if it's a matter of a small intolerance. (basically, your body can handle a certain amount, but no more. so, muffins, if the recipe calls for a cup of milk for two dozen muffins, you're getting just over a tablespoon of milk in a whole muffin. that's not very much.) but it could be that you need the stronger dose of lactaid...