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Latest Celiac Disease News & Research:
Everything posted by Fenrir
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Barley in gluten free cheerios?
Fenrir replied to Shalome's topic in Gluten-Free Foods, Products, Shopping & Medications
There may have been cases where this has happened in the past(before they started using the new separation methods and started labeling gluten-free) but then they also used malted barley in the Cheerios at that time,if I remember correctly. -
Barley in gluten free cheerios?
Fenrir replied to Shalome's topic in Gluten-Free Foods, Products, Shopping & Medications
I don't have any issues eating Cheerios. They do meet the guidelines for being labeled gluten-free which means they are under 20ppm. At that level most celiacs will not react to them, but some may. Simplest thing to do is just not eat them. And no, there's no barley in Cheerios. -
There is a correlation between celiac disease and gout: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5703914/ Celiacs seem to have higher uric acid levels than those that don't which may be part of the reason many celiacs have terrible joint issues/arthritis. Same with hypothyroid: https://www.amjmed.com/article/S0002-9343(17)30822-7/pdf ...
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Kitchen Sink CC?
Fenrir replied to CharlesBronson's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I agree with @docaz , highly unlikely to get cross contamination from washing dishes in the same sink. Keep in mind that no every reaction you have is from gluten. Many celiacs have issues with other foods that don't contain gluten or perhaps if it's gluten it is another source. Common problem foods for celiacs seem to be oats,corn and dairy. -
getting glutened on "gluten free" corn chips? Builds up??
Fenrir replied to zenith12's topic in Coping with Celiac Disease
I tend to still have problems with corn products at times. If I eat popcorn and then have corn tortillas I will have gastric problems but one or the other is OK. So it seems I can handle smaller amounts of corn but eating a bowl of pop corn or an ear of corn is about as much as I can do in a day without symptoms. -
Gluten Free Additives
Fenrir replied to Margaret Staples's topic in Gluten-Free Foods, Products, Shopping & Medications
Yeah, that looks like as good a list as you'll get. -
Luckily, I don't have an issue at all if I eat gluten-free bread.
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Gluten Free Additives
Fenrir replied to Margaret Staples's topic in Gluten-Free Foods, Products, Shopping & Medications
Try this: https://celiac.org/main/wp-content/uploads/2017/07/Combined-Gluten-Free-Diet-and-Food-Label-Reading-Guide.pdf However there are so many ingredients in things there's really no comprehensive list. If you are in the US they have to label things with gluten in them as "conains: wheat",. However if it is not labeled gluten-free... -
Gluten Free Additives
Fenrir replied to Margaret Staples's topic in Gluten-Free Foods, Products, Shopping & Medications
Yes, cornstarch is safe for celiacs. -
Gluten Free Additives
Fenrir replied to Margaret Staples's topic in Gluten-Free Foods, Products, Shopping & Medications
I believe those would all be safe for celiacs but if you eat foods with those in it and notice you react then you may have to reevaluate. -
Short Course of Steroids?
Fenrir replied to agentace's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I don't think steroids are generally used to treat Celiac Disease. Also, CRP which is typically used to test for inflammation is not specific to celiac disease and could be caused by something else. Many celiacs have negative inflammation blood tests and yet have extensive damage in their intestines. My inflammation markers were all negative in spite... -
That was after I was diagnosed and I never had that happen before I went gluten-free and I'm not diabetic. I thought I bought bread that was gluten-free but it wasn't. It looked a lot like the packaging of the gluten-free one I usually buy but it wasn't the same. I don't know what my blood sugar was at the time but I know I'm not diabetic, I got tested for...
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I've been fine eating at Qdoba if I ask them to change gloves and use clean utensils. I've worked with our local Applebees too. They will clean the grill, change gloves...ect for me. So, haven't had any issues there either. We have a couple of pizza places that have dedicated stations for gluten-free pizzas and haven't had an issue there either...
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Fruit and coeliacs
Fenrir replied to Jan Boothby's topic in Gluten-Free Foods, Products, Shopping & Medications
As @notme! says the GI tract can be sorta touchy in the beginning while you heal. If you continue to have issues eating fruit a year from now you may have a sensitivity to something in fruit but for now it's probably just your GI tract being kinda beat up. You may also have a similar reaction to lactose in dairy products for a while. -
Old topic but yeah, projectile vomiting and other strong gastric reactions are definitely part of celiac disease. Last time I got mega glutened was about two years ago. I ate two sandwiches (4 slices of bread). I vomited so hard blood vessels in my eyes broke and filled the whites of my eyes with blood. For about a month the whites were solid, bright...
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Leading pharma
Fenrir replied to Wifey's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
What sort of question do you have about it? -
Glutened?
Fenrir replied to will4318's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I would definitely think the most likely source of the problem is lactose. For about 6 months after I was diagnosed I couldn't tolerate lactose. Now, years later and healed, I can eat dairy no problem. -
Is it Important to ONLY eat Certified gluten free?
Fenrir replied to Zenith's topic in Related Issues & Disorders
Yes, for adults, many times a stressful event or surgery will be when you start noticing. I started having issues after I had my gallbladder out and my Mom died after a long illness. -
Certain gluten-free breads cause vomiting
Fenrir replied to Joanie C's topic in Related Issues & Disorders
In the brands listed above I would doubt it has to do with gluten content so the next thing to look at is what else is in gluten-free bread you could be allergic too. -
Is it Important to ONLY eat Certified gluten free?
Fenrir replied to Zenith's topic in Related Issues & Disorders
I've never had a reaction to anything labelled gluten-free. While some may react to amounts less than 20ppm , many items labeled gluten-free have much less than 20ppm. IMO, most celiacs shouldn't react to foods labeled gluten-free unless they are dishonest in their labeling. -
Celiacs seem to live normal lifespans. Celiacs have a higher risk of GI cancer and non-Hodgkin lymphoma but the overall rate of cancer among Celiacs is pretty similar to non-celiacs. A strict gluten-free diet lowers the risk. So if he goes gluten-free he's at no higher risk for cancer than anyone else of similar age, lifestyle...ect.
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Understanding test results
Fenrir replied to Lostkat's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
If you are IgA deficient the Deminated tests are much better but chances are you probably would be negative on those too if your biopsy was negative. Either way, if you feel better gluten-free then keep doing it. -
Possible celiac disease
Fenrir replied to Lori Cave's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Those are not really "weak" positive. In celiac disease tests you are not weak positive. You are positive or negative, there's no "weak". If the anti-body tests like that are positive at all it's 98% that it's celiac disease. More than likely it's Celiac Disease. Unfortunately, it can take a long time to heal up after going gluten-free. The symptoms...