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beth01

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by beth01

  1. beth01
    I'm sorry you're still feeling nauseous. It's frustrating when you're not feeling well and can't pin it down to what is making you feel so awful. I'm kind of in the same boat, I've been feeling sick for the last three months, thought it was my pills making me sick, switched them and felt good for about a week, but now I feel like crap again. Can't figure...
  2. beth01
    Yeah, I would go for making your own. I have been looking at a lot of recipes since I have soy, dairy and eggs to deal with along with gluten. There are a lot of recipes for bars and most look pretty forgiving if you want to alter the recipe, especially since most of them are just roughage held together by some sort of sticky substance.
  3. beth01
    I think most of that are celiac will tell you that we had streaks of good and bad. I have had stomach problems my whole life, but could go months and months without any symptoms and then out of the blue, total pain. Some people get sick every single time they get gluten, some don't. It varies from person to person.
  4. beth01
    It takes some time for your stomach to heal enough that you actually retain your nutrients. I have lost an unbelievable amount of weight, over 150 pounds, without diet or exercise changes. About 45 of that was after going gluten free. I was never overweight until my mid 20's and then no matter what I couldn't control my weight and then two years ago I...
  5. beth01
    Hugs to you Nicole, arthritis is a b%$@#. I have it pretty bad in my spine and my hips and knees have been getting progressively worse the last few years. I hope they get it all figured out for you and can get you on something so you're not in so much pain! Colleen, I think we all need gene therapy to go along with the parts department, something to...
  6. beth01
    Thanks you guys. Day 2 and I'm feeling good so far. It was so nice here yesterday, the kids and I walked into town and back, about two miles, something I couldn't have done a week ago. It felt really good. Hopefully I can keep it up, I have a lot of muscle mass to try and get back after all the weight I have lost. My insurance won't pay for anymore physical...
  7. beth01
    After searching and searching for a possible source of cc and not finding anything, I switched back to my original thyroid medication about a week ago. I woke up this morning feeling GREAT! Crossing my fingers hoping it isn't a fluke. I really wish they would quit putting allergens in medications, or at least do more extensive testing on each lot to...
  8. beth01
    Have you had your antibody levels redrawn to see if you are getting cross contamination from somewhere? Do you have a shared kitchen?
  9. beth01
    Celiacs are enigmas, we are like snowflakes, no two alike. My daughter and I are both celiac, both have had issues since birth but just diagnosed a little over a year ago, but our symptoms didn't get worse until I separated from my husband 4 years ago, a very stressful time. My son has had the same issues as my daughter and a few more on top of them, vitiligo...
  10. beth01
    I agree with the others, stay off the internet. A month before my celiac diagnosis I could have sworn I had MS and Early onset Alzheimer's. I had a mediastinal mass that was wrapped around my aorta in 2010 and gave myself cancer before the mass was even removed, which was totally benign as were the other enlarged lymph nodes found in my chest. Our bodies...
  11. beth01
    Kraft shredded mozzarella and cheddar have 0 lactose per serving. I use them on my pizza, but still have to be careful on the amount I use and still take Lactaid and a anti-gas when I eat it. I'm a little over a year gluten free and too much dairy still bothers me. Ice cream I make myself with Almond milk or the Lactaid milk. I know nothing of casein allergies...
  12. beth01
    Hugs to you Bart, I'm in the same boat right now. It's driving me crazy trying to figure out just WTF is going on. Is it my diet? - don't think so, everything I eat or could make it's way into my mouth has been checked, checked and then checked again. Thyroid? Levels are normal, went back to my old meds even though I've been reassured by the company that...
  13. beth01
    I say tell your Gastro Professor to do a little more recent research., ask how a couple day bout of gastritis can pretty much destroy the inside lining of your small intestine? Most " old school" doctors still have the antiquated beliefs that Celiac is a childhood disease. Many of us on here have medically proven otherwise. Did you have TPO Antibodies...
  14. beth01
    That really doesn't have to be it. If you aren't happy with the answers you are getting, get a different doctor. Just because you tested negative last year, doesn't mean you haven't started producing antibodies now. It's not a test that if you test negative, you are negative forever, those numbers can change. I hope you figure it out and get to feeling...
  15. beth01
    Best advise, call the manufacturer. Glutenfreedrugs.com hasn't been updated in over a year and manufacturers change ingredients or wholesalers all the time. I call on every prescription, every month. It's a pain in the ass, but up to date information. The last thing I want to do is take the word of a website that hasn't updated their info for over a year...
  16. beth01

    ARCHIVED Lost

    beth01 replied to beth01's topic in Coping with Celiac Disease

    l'm also soy free, dairy free, and egg light. I'm mostly whole foods besides that.
  17. beth01

    ARCHIVED Lost

    beth01 replied to beth01's topic in Coping with Celiac Disease

    The Synthroid is gluten free, according to the pharm company that makes it. They now put powdered sugar in as an ingredient, but it's gluten free lol
  18. beth01

    ARCHIVED Lost

    beth01 replied to beth01's topic in Coping with Celiac Disease

    The postural hypotension sounds interesting Nicole. My blood pressure usually plummets during these little "episodes". They had me rest, sit, lay down and tested my blood pressure after each, but my pressures were high to begin with after having an awful doctor visit that I drove over and hour and a half to for them to tell me there wasn't anything they...
  19. beth01
    I'm sorry, but the really is no "easy fix" for a glutening besides riding it out. Eat bland foods, drink lots of water, find some safe probiotics to take. Hope you feel better soon.
  20. beth01

    ARCHIVED Lost

    beth01 replied to beth01's topic in Coping with Celiac Disease

    I'm on Synthroid because the name brand wasn't doing anything for my thyroid levels, I have called on my pills and they told me it was gluten free. My pets have been gluten free for almost as long as I have been, besides the fish, but my boyfriend feeds them and is very meticulous about keeping things clean while he does it. He has been gluten free also...
  21. beth01
    I have had symptoms of celiac since birth, I was diagnosed a year ago at the age of 37. I have 3 autoimmune disorders, have lost two pregnancies, had two premature babies, arthritis, migraines, my hair fell out, thyroid issues, and the list goes on and on. My daughter was also diagnosed with celiac, it's genetic, so you have to think of that. Quit eating...
  22. beth01

    ARCHIVED Lost

    beth01 posted a topic in Coping with Celiac Disease

    I'm at a loss. I still haven't been feeling well and it's been over a year since my diagnosis. I have recently gotten new doctors, moved to a different hospital, so I had all my yearly labs drawn from a new doctor. My vitamin levels are all normal, barely, but normal. My antibody levels have flat out stalled since I had them drawn in August. They haven...
  23. beth01
    Some celiacs can't gain weight if they tried, some of them have pretty damaged stomachs that take sometimes years to heal. I was diagnosed over a year ago and have lost 40 pounds since, can't keep weight on to save my soul. I don't get a lot of stomach issues when I'm glutened, it's all mostly neurological for me, headaches, brain fog, moodiness/anxiety...
  24. beth01
    Do you have pets? Most pet foods are FULL of gluten and him being a two year old.... About his symptoms, sometimes being gluten free for a bit can make previous symptoms more pronounced after a glutening and some people do experience new symptoms that they hadn't had previously.
  25. beth01
    I would maybe ask if your doctor is willing to diagnose you as Celiac if your gluten free diet decreases your antibody levels? If you don't NEED a diagnosis, you can always just consider yourself a celiac if you see positive results. I know some like to have the diagnosis if they need it for school purposes, and some would like to have it incase of being...
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