Jump to content

Jmg

Advanced Members
 View Profile  See their activity

  • Posts

    1,182

  • Joined

  • Last visited

  • Days Won

    33

 Content Type 

Profiles

Forums

Events

Blogs

Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Jmg

  1. Jmg
    Against my better judgement I'll reply To be honest I wish I could speak to you in person because there's a limit to how effective communication over a forum can be and from what I've read you are almost exactly where I was not so long ago. Let me say that I think you're clearly extremely bright and have amassed knowledge on this. I also think however...
  2. Jmg
    Doh!
  3. Jmg
    Then good luck and I hope you're soon on the way to feeling a whole lot better.
  4. Jmg
    Hi lo and welcome? You may be better off starting a new topic and including any further info you have. For example, a test result will usually come with range info, this shows what the normal range is and helps you work out what your score means. It should also say which marker is being tested...
  5. Jmg
    Bite the bullet. Tell the doctors about the reaction to going gluten free and take the telling off for starting the diet before testing complete. After the biopsy you will either get a positive diagnosis or a negative. If negative, you have to decide whether to pursue the gluten free diet anyway. I suspect you will as I did. Not everyone who has a problem...
  6. Jmg
    Ok, I don't want to play amateur psychologist and I fully respect your decision, so this will be my last contribution to the thread, but when you say this: it suggests that you don't have a good handle on what counselling actually is. Neither they nor indeed you can change the facts of celiac, but they may be able to help change the way that you look...
  7. Jmg
    I think <20ppm is the standard in Europe for labelling Gluten free. Recently the regs here were changed so that there are no separate allergy boxes on labels, but all allergens (or at least the main ones) must be highlighted on ingredients lists. EG: sugar, eggs, WHEAT flour, salt MILK, PEANUTS etc. etc. It works ok. It's not the first time I've...
  8. Jmg

    ARCHIVED Eye symptoms

    Jmg replied to cristiana's topic in Related Issues & Disorders

    This: is so spot on. I'm worried sometimes on here when I'm reading people that have got a negative celiac test and immediately they discount gluten, despite having symptoms that fit the profile very closely. I think one of the problems is that Gastroenterologists are supervising the diagnostic process and if Celiac is excluded then they feel...
  9. Jmg
    Just to add that Dr. Hadjivassiliou published this article: Open Original Shared Link that outlines how gluten sensitivity can cause neurological symptoms without detectable enteropathy in the gut. So as above, once celiac diagnosis is complete do please give the diet a try regardless. My experience is that once gastro's have excluded celiac they lose...
  10. Jmg
    Egs I think you should reconsider your attitude to seeing a counsellor. If for no other reason than that you're currently in the early stages of the grief process, although you may not see it as such. Just from reading your posts I can recognise a lot of the thought processes and attitudes I went through on discovering gluten was a problem and although it...
  11. Jmg

    ARCHIVED need imput

    Jmg replied to marycake123's topic in Related Issues & Disorders

    Hi Mily and welcome You've pre-empted my first suggestion, that gluten-free breads, cakes etc are often higher in calories than their gluten filled counterparts. Maybe as you're healing your body is able to take more of the calories than you did before and you need to adjust either the amount or the kind of things you eat? Have you come across the...
  12. Jmg

    ARCHIVED Eye symptoms

    Jmg replied to cristiana's topic in Related Issues & Disorders

    Like you say there are some celiacs who seem to be ok with being adventurous. Sometimes it seems foolhardy, like the guy I know who cheerfully drinks lager now because 'his stomach has healed' At other times I envy them for being more carefree.I think of it as a balancing act. I don't want to get so paranoid about it that I never eat out etc but I also have...
  13. Jmg

    ARCHIVED Eye symptoms

    Jmg replied to cristiana's topic in Related Issues & Disorders

    I think so, firstly no matter how careful others are it's never in their minds as much as it is for me. Plus gluten is so ubiquitous there's just so many ways it can get into things. When I have something now, like the eye thing I got again for first time in while recently I can't often pin it down to one thing. It could just be a wooden spoon used in cooking...
  14. Jmg
    Open Original Shared Link "Due to the fermentation process involved, the finished product only contains a trace amount of gluten which is well below the safe levels." Although that's just for 'malt vinegar not necessarily Sarsons. I avoid all forms in any case but then I tend to play it safe when there's any doubt whatsoever. For instance when...
  15. Jmg
    Dear Revenant's sister, I can't say whether your problems are related to gluten, but I was in a similar place to you for many years, would never have believed and probably laughed at anyone who suggested gluten was a cause, but one day, at a particularly low ebb, I decided to take a step towards finding an answer and discovered that it was just that...
  16. Jmg
    Lot's of us have had crappy experiences with doctors sadly. I had many years of different anti depressants shoved at me to get rid of me from the consulting room when a decent physician may have asked the right questions and helped find the real culprit. Be strong, you're the world's leading expert on your body and you need to stand up for your right to feel...
  17. Jmg
    It's true you won't find much gluten love here, I have to fight the temptation to see it's ill effects in everyone! Even so, the reality is celiac is not as easily pigeon holed as you may think: Not necessarily Not neccesarily My spider sense is tingling... See this thread: Almost definitely unless they specify...
  18. Jmg
    I can't add much to the good advice above LadyP other than to say that if you do go through celiac testing and it turns out negative, do seriously consider giving the gluten free diet a try regardless. I tested negative for celiac but I am majorly affected by gluten nonetheless, I also had eye twitches amongst many other symptoms. The good news is that...
  19. Jmg
    Actually this is a competition I'm happy to lose It's a great idea though, especially in the visual illustrating how far beyond the 'traditional' celiac symptoms gluten problems can strike. I don't think the wider public have any idea, certainly I never thought that things like my backache were anything but mechanical in origin for example. I like the...
  20. Jmg

    ARCHIVED Eye symptoms

    Jmg replied to cristiana's topic in Related Issues & Disorders

    I experience moments where my eyesight is obscured by grey patches. Sometimes it's just a small patch, at other times its like I'm in a grey tunnel with just a small part of my vision in one eye available. They don't last too long, maybe a couple of minutes. Once I excluded gluten they all but disappeared. I have experienced them rarely since and have put...
  21. Jmg
    Hi Pumpkin, Reading your initial post my first reaction was 'how do you know you're not celiac?' Forgive me if I've missed it but have you actually been tested for it? You suffered from bloating and mood swings and noticed a reaction to the gluten free diet, all of which would suggest you need to definitively exclude celiac before considering NCGS? If...
  22. Jmg
    Next time someone comes on asking about gluten induced insomnia you know where to point them:)
  23. Jmg
    Interesting. Hadn't heard of the trigeminal nerve before. I got regular twitching, like a trapped nerve on my face. That stopped after going gluten-free. Another one of those things I never connected till later, I was falling apart but in a state of denial as it turned out! I now think opticians may not have the experience of this sort of stuff, certainly...
  24. Jmg
    Ok here: You have it right - the big mistake lots of us make is going gluten-free BEFORE the testing process. This makes it super difficult to get accurate results, leads to false negatives etc. So many cut out gluten, feel fantastic, go to doctors and then have to go on it again - which feels 10 times worse than it did originally. Gluten challenges...
  25. Jmg
    To be honest it makes a lot of sense to me. Your tests aren't conclusive of celiac but you have sufficient data from the symptoms, family history and tests for the doctor to suspect it. The only other data that could help now short of a biopsy would be long term affects of a gluten free diet so that's what the Dr has recommended. Maybe it would've been nicer...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.