Rusla

Happy Birthday Tavi.

Now the scariest age for me was 30, so far. However, I know that they made a mistake on my birth certificate because my mind is 25 except for the senility part and well my body is the give away, this morning it feels ninety. Of course winter weather makes it hurt and creak more. My saving grace is most think I am maybe 40 not that over half a century look.

Here is what I do when I need to find out what the non chemical ingredients are, I have the pharmacist open their books and search what all the ingredients medicinal and non medicinal are in the meds. They are so used to me that now they automatically check when they get a prescription.

Well to put two positive spins on it I also had a great gluten free Thanksgiving. I brought the gluten-free pumpkin pies. My brother made summer squash soup with vegetables in it, the stuffing for the turkey was wild and basamanti rice with onions and mushrooms in it and it was much lighter and tastier than even bread stuffing. It was excellent.

  lonewolf said:

Oh, we posted at the same time and I didn't see this. Now that I'm done laughing, I'm scared for my little guy. We used to live by about 100 acres of woods, but they've all been bulldozed down and new houses put in over the past 18 months. We have rats, rabbits, skunks, raccoons, squirrels and coyotes all displaced and over-running our long-standing neighborhood with large yards and lots of trees. First, the raccoons ate our chickens, then rats got into everyone's houses, then we started smelling skunks quite often. Now we keep seeing coyotes right on our street. First about a 20 pound pup several times, then a small adult, and then last night I saw a huge male.

We have a 5 foot high fence and I thought Buddy would be safe. I guess we'll keep him inside unless we are out with him. I know the coyotes have been in our yard, but I hadn't thought about them jumping the fence - we don't always close the gates.

What you may want to do is build a dog run with a house and a door on the front of the run out of chain link for when you put him out there. If you have a door with a latch and a way to put a lock on it then you could put him out there when it is nice and lock it so no one lets him out and no coyote will push up the latch and open it. They will not just go after your puppy but also when he gets older. My mother's German Shepherd when they were out walking in the morning was attacked by coyotes and had to have stitches. That wa done by a single coyote.

The problem is humans are greedy and have taken away the habitat of the animals, we can move but their place of living is theirs for life.

I often use corn starch.

I find the length of time differs from person to person. It also seems relevant in how severly it affects you. For me it takes a minimal amount to cause me to have DH and be terribly ill. I have been totally gluten-free

for almost a year. I miss eating turkey sandwiches but the pain and dh is not worth having any gluten. Unofrtunately I have been glute-ed by accident.

Yes it can take awhile. Sometimes illness, such as mononucleosis or something else, surgery, stress, or a traumatic event could throw it into full gear. Mine started after my bout with Mono at age 19. Needless to say after a very stressful and traumatic event it got worse. Some people it shows up when they are kids and some when they are adults.

It has taken them more than 30 years to finally diagnose mine and it is because I forced them to do a skin biopsy.

Nicole, pernicious anemia doesn't mean shots for life. I recomend you go to a health food store and get sublingual b-12. I didn't want to shots for the rest of my life and regular B-12 I could not absorb (gee I wonder why), but the doctors at that time were too stunned to check for Celiac. So, I was told by someone to go get sublingual B-12. All you do is hold it under your tongue and it dissolves and they taste good also. It will go directly into your blood stream.

I am bad about taking pills of any type including those. I do know when my

B-12 level is low my body tells me and then I take them again, the sublinguals not the shots.

I was two points away from being paralyed with the pernicious anemia. I couldn't even remember who I was or my phone number before we discovered it. I could hardly make it up three stairs and I was like this for over a year. One doctor kept telling me all I had was the flu. I even had to sit in the hospital for one day every week for a month to get iron infusions which take over 8 hours each time.

Well Jen, you aren't crazy welcome to the board. Now you do know that with these gluten tests you need to be eating gluten everyday up to the test. Even then you could come back with a false negative.

Sometimes an illness, stress or traumatic event can trigger this disease. Also remember when going gluten-free that this has to also be any skin creams, makeup and hair products.

Snickers, Mars, and M&M's are made by the same company they always disclose everything on the package including if it is made in a facility that makes gluten products. They are safe, I have eaten them.

You were thinking of Hydrolozied(sp?) Vegatable Protein HVP which is different than Hydogenated Vegtable Oil.

Well I went to my first raw uncooking class. The woman who taught it has be totally raw for 19 years and she went that way after they said she had lupus. Well she there are no signs or lupus or arthritis which she had then. She looks totally healthy and she doesn't eat beans or tofu. She uses lots of green leafy vegetables, nuts, seeds and avacados.

To keep foods in the raw category they warm them or dehydrate them in a dehydrator for things like soups etc. The mean was fantastic and we had all sorts of good stuff that was not cooked.

There were others there who were not totally raw and some who were they said they had more energy, needed less sleep and for one woman who went raw a few months ago and has lost 60 lbs.

What I like about raw is that everything still has a wonderful vibrant color, it tastes good, I have no labels I need to read and it is healthy. I may never be totally raw but I am willing to give it a fair shake. After all I went cold turkey from gluten because of feeling sick and the damage it does. I am more than willing to go raw for awhile. They say the more raw food you eat the better it is for you. You don't have to be totally raw it is a personal thing

but all who were there said it is not that hard and they feel good.

The woman giving the class her mother who is in her 80's was there and went raw about ten years ago and she is as fit as a fiddle. If anyone wants some recipes I can post them in recipes or you can PM me.

Or if you are on a Mac laptop just hit your space bar on the bottom.

You can have a happy healthy life without gluten. Yes, you can recover and mend but to not do damage to your body which can lead to death you need to never have gluten again.

This as the others have said is a genetic predisposition. So you are never cured.

For me a few unknowing crumbs makes me very, very ill.

You can also try Jicama (pronounced hick a ma). It is white like a potato and is great shreded in salads also.

Happy Birthday Evie!

Now I like you was told I had a wheat allergy 25 years ago at least. However, trying to force other doctors to look into things is futile. So like you I have a host of problems from this and the major one is losing more than ten teeth in less than five years. I just hope that people think back to you and many of us others when they don't think this disease can cause a lot of damage. May others benefit from what we all have lived through.

I don't know about in the US but in Canada their labeling always said;"made in a facility that produces gluten products."

  Carriefaith said:

I miss being able to go to any restaurant and eat with everyone else. I always try and recreate the foods I miss myself in a gluten-free and casein free way.

Excuse me for being off topic,but Carrie, your wedding gown is so gorgeous. You look positively enchanting in it, I didn't realize the big day had already gone by. Congratulations.

There are some days I crave a gluten pizza because I can smell it, or chinese dumplings. Then I think about how a few grains make me sick, my DH breaks out on my skin and I look like a leper. I think about all the pain and I say to myself, "no way." I walk away from it and always glad I did.

  IMResident said:

Wow, some people seem to be really overreacting. This is not dangerous medical advice. Going on gluten again is common in blood test positive celiacs for the gluten challange for 6 months or more without any adverse long term effects. I said she should TRY it for 2 weeks. No harm in that. Believe me this is NOT like insulin, and it's not going to kill her. I tried to help by giving medical facts.

By the way this is my last post on this forum. So, I'd like to wish Ursula and other people on this board continued recovery from their health problems.

Don't believe everything you read in a text book.

Oh and by the way it can kill you. People have died from this diseases, some have gotten colon and stomach cancer. Many have almost starved to death and this disease causes many problems some of which are life threatening. It is more than obvious that you don't have this problem or personally know people with this problem.

  tiredofdoctors!!! said:

I just found out that my daughter, Ashley, has been diagnosed with latent TB. She had to have a TB test at school, and the nurse told her that the reaction was the worst she had seen. They did a number of panels of bloodwork, and her "numbers" -- I don't know WHAT numbers -- were extremely high. A chest X-ray showed that it was normal, and they said that she doesn't have ACTIVE TB.

The doctor at school said that she thinks Ashley contracted it when she was volunteering for Big Brothers / Big Sisters. She said that those kids are frequently exposed to TB, but do not have regular immunizations or testing, so it's difficult to know.

At this point, they are putting Ash on medication -- I believe she said INH (???) for 9 months. She will have to have a chest x-ray once per month during that time to make sure that it has not become active. She said that the doctor indicated that increased stress levels, illness, and I can't remember the others can induce the TB to become active.

My books are all in boxes and piled 5-high. If anyone knows ANYTHING about this, I would appreciate any information you can give me.

Also, if you are the praying type, I would appreciate those, too.

Thank you,

Lynne

Lynne,

I presume she has had the Manitou test. She does not have TB but it means she has been exposed to TB if she shows levels on it. It can go away as my mother many long years ago showed levels on the Manitou test and her mother died from TB. But that was way back when they had no way to treat TB. My mother no longer shows TB levels. Sometimes it does leave and sometimes it just stays dormant. But for her to show levels she had to have been near a person with active TB.

Just she has to be careful for awhile. It is not as bad as it used to be. At one time if you showed latent TB levels you could not leave the country. Just keep an eye on it for awhile.

I don't know if I could ever go totally raw but I have no problems with raw fruit or vegetables unless I eat too much. Smoothies don't bother me even if I drink them all day. Actually the woman I talked to told me it took her ten years to go totally raw and it usually isn't something most people can do right off the bat. I will give it a short. I figure as I am nine months gluten-free why not give it a shot.

  IMResident said:

Ursula, it sounds like the gluten free diet is causing a lot of conflict with your family, and you mentioned that you are back to where you started from with regards to seeing improvement after going gluten free. Here's what I would do in your situation: I would first evaluate how you feel now and how you felt a year ago before you started the diet, including your relationship with your husband/kids/relatives. If your overall situation and relationship with others around you is worse now than I would get off the diet since it sounds like it's causing more problems than solving , just forget about the glutening symptoms and see how you feel after about 2 weeks.

If you feel worse than get back on diet, but if you feel the same just forget about the whole thing.

It sounds like the real cause of your exahustion is the constant bickering and fights with your family. If this goes on all the time it would make anybody completely stressed out. Getting off the diet would eliminate a great deal of tension with your family, but not all. I would start marriage counselllig with a therapist to ease the tension between you and you husband.

So you are actually telling Ursula to go out and deliberately do more extensive health damage to her body because her family is a pack of self-centred, inconsiderate boobs. Why would someone ever come up with what you just did when her health is at stake. Her husband and kids show her no consideration. If they won't listen on Celiac then what makes you think that marrow- head of a husband of hers will go to counseling. You NEVER tell someone to do harm to their health.

As for bratty daughter who just moved home, Ursula, tell her she now has to pay up or get her ingrate butt out the door. Tell her to move in with her freaking boyfriend.

I feel like going down there and slapping your family for you. Your husband is a control freak and has turned your youngest into the same kind monsters.

Lots of fruit, fresh BC grown fruit and organic vegetables, rice pasta, occasionaly fresh halibut fish steaks, shrimp, scallops, organic corn fed free range chicken. That is primarily my list. Oh and chocolate addiction which I need to curb.

Well for the record I never eat beef, rarely eat pork, chicken and seafood. I would never eat any of them raw. As for dehydrators ,I have one but the heat cannot be controlled on it and it takes so long to do jerky and fruit that some of it goes rancid, it is one of the old round ones. They have new dehydrators out that you can control the heat and time, I have been looking into those ones as they seem to be very good.

As I am a big fan of smooties, having fruit smoothies is my favorite. I often throw tofu into my smoothies so there is considerable protein in tofu.

Welcome to the board, you will find a wealth of information on here. When I first found out I was Celiac I was already on the board that was because there were strong suspicions that I had the disease. However, at first it seems like there is nothing that can be eaten and that is true in a lot of restaurants. But at home pasta can be replaced by rice noodle pastas and many other things can also. The flours we can use have to be refridgerated or they beomce rancid. Betty Hagman has some great cookbooks out and watch all shampoo's and skin creams. Many things have gluten in them. Things like soy sauce and hydrolyzied vegetable proteins. I cannot stress this enough, read all labels. Beware of anything made in a facility that has wheat or gluten products made there. We have tons of recipes on here and someone will always help.