Rusla

Welcome to the board and congratulations Slacker Mommy on the diagnosis. I started to cry when I read your post and I don't cry for anything except animals. I remember all too well what it felt like to be looked upon like a fabricating liar. It is a great vindication to be able to say, "see I am not nuts."

This is not a horrible life, it is not so tough as long as you are not poisoning yourself with gluten by trying to make two separate dinners for everyone.

However, there is no reason you can't have the meatballs, chicken, eggplant just find a way to do them gluten-free. Don't let this disease walk on you, you walk on it and you will feel better for it.

This loss is actually not much different than a death of something you loved, or like the dreams drug addicts have when they have quit drugs. You will get cravvings and you may even dream about the gluten but don't let dreams be your master.

My worst dream was that I was tied up and people were stuffing donuts and bread into my mouth. I woke up screaming and crying, scared the cats to death. It all gets better and not so hard.

Wow! Fast results. Happy to hear you are okay and you can resume you bump and grind tassle routine. Perhaps that is why they are so sore, remember they are not helicopter blades.

I wonder if anyone reported that woman for sticking a pole up her butt.

Iron shots are not painful, no different than any other vaccination in the upper arm.

As for low iron, I think I can successfully say that after a lifetime of low iron and the not discovering the cause until just over a year ago. As it was described to me that; with the damage that has been done some of us will always have to boost our iron levels, because we are missing what is needed in our stomachs to absorb it. That is why I do sublingual B-12 when I remember it.

The other thing is my B-12 was so low at that time I was 2 points away from being paralyzed. When a person is that low there is no going back and you do have to take B-12 forever. I decided to try an alternative route to shots to see if it would work.

Here is the deal. I know when myB-12 is dropping, I feel like I am wilting. I went through iron infusions and B-12 shots which I refuse to take for the rest of my life. I would say for the majority of us if not all of us normal swallowable B-12's don't work because of our problems absorbing. I take sublingual B-12's because they go right to the blood stream and they taste good.

Tis the reason why I make my own salsa.

I hope you have a really great Gluten-Free Birthday!!!!!

I wrote to Barb Walters and thanking her for the show on Celiac and to thank Rosie and the very brave Elisabeth for coming out and presenting it. I also said we would be so very happy if they were to do a whole or even half a show on it, and I did a ps that Autistic people cannot have gluten and there is a connection. As well as it's very debilitating effects and other diseases.

Think of all the things they do bigger shows on now when we had never heard of them many years ago.

Anorexia was rarely heard of until Karen Carpenter died from it. The same from Bulimia until Princess Di had it.

Autism never came up until Sylvestor Stallones son had it and then Rain Man was made.

If we had someone who is very prominent in society come out with it then it would help it get out there faster.

The old saying, "don't look a gift hose in the mouth," comes to mind. Meaning, we should be pleased it was mentioned on a tv show, look at all that we did to get this on Oprah without success. This is a great step and looking the gift horse in the mouth we could be bitten on the snout and no one could ever hear about it again.

We need to really encourage them and appreciate them by thanking them for at least putting the effort out there. Then eventually, maybe one day soon someone will do a big show, an accurate show, a show that really gets it out there full of non bashful Celiacs like some of us old dinosaurs.This should motivate all of us to go after them and thank them thus encouraging them and others to do shows. We should all write letters to the government encouaging them to re-establish it as a disability.

The producers of the show more than likely said "okay you have three minutes knock yourselves out and if we get a good response we may do a whole show on it."

Well right now on the View which is 11:00 in Alberta they are discussing Autism.

I had my gallbladder removed 35 years ago. It was a great thing having that and all it's nasty stones out as they callled me great pain. Gallbladders are not really useful for much. However, my body went into changing when I had mono which was two years before my gallbladder was removed. Until I went gluten-free it was the big "D" all the time. Now, it is just a urgent. Not "D" unless I am glutened but very urgent otherwise.

Hi to everyone and thanks for your thoughts. Hey Bubs you reminded me of my grandmother, yeah she's spanish, at first I was just thinking of my first degree relatives. Could be a possibility that I got the genes from her. She's suffering now from colon cancer, probably she also had celiac disease which led to her complications now. It's hard to get a diagnosis of celiacs in the Philippines since this condition is not well known there.

Planning to see a fourth GI for endoscopy and biopsy. My GI now doesn't want to do the procedure even if I insisted, he said there is no point in doing it. Just for my satisfaction I'm doing this.

Well, it is and has been difficult for most of us in North America to get a diagnosis for Celiac Disease also. As most people originate in some form from European background we all have the potential to have the genes. I am the only diagnosed Celiac in my family. I am from Scandinavian and Italian background. I figure my aunt who has all the same problems I have right down to the teeth is Celiac but never diagnosed.

I guess the most we can hope for is that no one saw this cast or very few. You should write to them and thank them for setting us back 50 years.

The fact that Celiac disease was mentioned in itself may help people. People who are having problems may think "hmmm, maybe I should look into this." that alone could be a help. A few minute blurb and someone saying "it isn't pretty down there." is not the best by far. Because people may think it is only there that is not pretty. However, getting it out there so that people hear the name and get them thinking is good.

Unfortunately unil Brad Pitt, Johnny Depp or some other big name star has it or comes out with it we will take last place at the fair. This is because politicians, stars, and other diseases that are talked about all the time are higher in the pecking order than us. It is a small step but one we should be glad has been taken.

I would tell her that you do not choose to end up with a bag or cancer because of this disease. If her husband wishes to that is his decision. It is your decision to make not hers how you will eat, what you will eat and your choice not to contaminate yourself. Tell her to respect you and your health by trying not to contaminate you and you will do the same for them. Tell her thanks for her well-meaning advice but you have to do what is right for you.

I worry about cross contamination because it is equally as bad as full scale glutening. I never touch anything that is said to be made in a facility that produces wheat.

I think why we don't get a lot of air time on anything and this included when it was Celiac awareness week here is because we are not "big name" yet. Meaning if it was cancer, heart attacks or three-headed whatevers then we would get a great deal of exposure. I think that would render us more notice is making the fact that it can unfortunately cause other very serious illnesses. A little exposure is better than none.

I am sad that I never got to see it but as I work Fridays they pciked the wrong day.

Gosh Shirley, I thought you were at first going to talk about having a problem with a date. I have had problems with dates but usually they were not edible and had two legs.

I don't know when it is on, and I work all day so, I am going to miss it but I did write to Elisabeth. Seeing as how so many of us have written to her that if they do have it tomorrow maybe they will run it again sometime.

She sounds like the dermatologist that diagnosed me, after I forced him to do it.

Finally, I find a decent doctor who knows about Celiac disease. Everything is going swimmingly and I go see him last Thursday at his office and he doesn't say he is leaving. There are six other doctors in the clinic and he was the most popular. He did work a great deal out of the hospital but no office there.

Well I find out this week that he is no longer at the clinic and the other doctors will refuse to take his patients.

I am so lost and have no idea where I will find a doctor who doesn't pull the "oh you can't be celiac" or hasn't a clue to what I am talking about routine. I am so very sad and the list of doctors that are taking patients, forget it they have been on the taking patients list for years meaning they are probably lousy ones.

Wow! Thanks for the heads up

I didn't see it on the website for tomorrow but I bet that is when they will have it because I will be at work.

Lynda, the maltodextrin is fine, it is likely the smoke flavor as many times that is not gluten-free. Call Planters and find out.

Hi Dave and welcome to the board.

Finding decent sandwich bread is so much a problem that I have primarily given up on it. That is because some you have to take and put in the toaster oven or microwave for a few minutes to get it soft and then it is okay. However, stay away from the pure rice bread the only thing you get out of that is crumbs.

Well, I had originally lost 40 lbs but because of extreme stress in the last six months I have gained it all back. I have been eating tons of chocolate and coke, which I really need to stop doing.

Contrats AutumnE.