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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by knitty kitty
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@KierstenL, Your symptoms sound similar to mine when I started gluten free. Celiac Disease causes malabsorption. You're not absorbing sufficient nutrients, vitamins and minerals. Vitamin B1, thiamin, runs out first because it cannot be stored for longer than three weeks, and we need so much of it, especially when we're sick, emotionally...
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@Jacobx823, You may be having a reaction to the various nuts in Larabars like I did. Almonds are very hard to digest, as are most other nuts. Celiac Disease can lead to other food sensitivities. Lowering your intake of high histamine foods like nuts can help lower inflammatory responses. I get dates and have never been glutened by them...
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@suzy q, Welcome to the forum! I have had pain from crushed vertebrae, but I found that a combination of Thiamine (in the form called Benfotiamine, Vitamin B 1), Pyridoxine (Vitamin B 6), and Cobalamine (Vitamin B12) have analgesic effects. Doctors are not given much nutritional education, so they miss the importance of correcting malnutrition...
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@Jimmy2014, I looked up the ingredients in the iron formulation your son is taking. It contains carrageenan, derived from seaweed. I have had a problem with carrageenan in iron supplements and processed gluten free foods to enhance texture. Due to the high iodine content, carrageenan causes Dermatitis Herpetiformis outbreaks. Dermatitis Herpetiformis...
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Scott Adams' Story of His Diagnosis of Celiac Disease
knitty kitty commented on Scott Adams's article in Diagnosis, Testing & Treatment
@Judith Drexler, Pesto Bismol contains aspirin. Aspirin is an NSAID. NSAIDs cause continuing inflammation and villi damage. I was given the same advice. Pesto Bismol overtime just tore my digestive system up more. I found taking Tryptophan supplements much better. Tryptophan helps calm and repair the digestive tract. Benfotiamine promotes intestinal...- 173 comments
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Low libido without gluten
knitty kitty replied to Spherical Bird's topic in Related Issues & Disorders
The Autoimmune reaction to gluten includes the release of histamine by mast cells. High histamine level symptoms include brain fog, anxiety and depression. Panax ginseng lowers histamine by preventing mast cells from releasing histamine. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3659609/ Histamine can be found in foods, too. You might... -
Yes, unfortunately, the dairy protein casein can cause damage to the villi lining the intestines just like gluten. Mucosal reactivity to cow's milk protein in coeliac disease https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1810502/
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DR1-DQ5 neurological symptoms
knitty kitty replied to Murilo P's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
@Murilo P, All the vitamins and minerals have been important to recovery. Vitamin D is an important immune system regulator and can help lower inflammation. Vitamin D improves depression. Mine was severely deficient. Vitamins A, E, and K are the other fat soluble vitamins. (Vitamin E is mostly made from wheat, so be careful there.) People... -
DR1-DQ5 neurological symptoms
knitty kitty replied to Murilo P's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Undermethylation is due to deficiencies in Thiamine and Cobalamine B12, and Folate B 9. Dr. Lonsdale and Dr. Marrs' website explains it here. https://hormonesmatter.com/paradoxical-reactions-ttfd-methylation-connection/ Thiamine can't work properly if there's insufficient Cobalamine B12 and Folate B 9 for the methylation. The eight essential... -
@Nicole Maree, Here are a few articles to get you started... The Autoimmune Protocol Diet really made a big difference, I felt much better quickly following this diet... https://www.healthline.com/nutrition/aip-diet-autoimmune-protocol-diet#what-it-is And.... Nutritional Imbalances in Adult Celiac Patients Following a Gluten-Free...
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Anosmia - no sense of smell?
knitty kitty replied to HeidiParthena's topic in Related Issues & Disorders
Thiamine Mononitrate is not utilized very well by the body. Only about twenty percent of that big dose will actually get used. Thiamine Mononitrate is shelf-stable, meaning it won't breakdown while sitting in a bottle on a shelf. It also means that thiamine mononitrate is difficult for the body to break down and use, too. A better, more useable... -
Non Celiac Gluten Sensitivity
knitty kitty replied to drwyrick's topic in Related Issues & Disorders
There are eight essential B vitamins. They depend on each other to work properly. Thiamine interacts with each and every B vitamin. Thiamine and Pyridoxine B6 make life sustaining enzymes. Same for Thiamine and Riboflavin. Since the gluten free diet can be low or deficient in B vitamins, it's better to take some of all of them. I would like... -
@Nicole Maree, Dairy products can cause a reaction as though you've eaten gluten because casein (a protein in dairy) resembles gluten and the same autoimmune response happens. Do not eat dairy with meat. The digestive enzymes that digest meat also digest Lactase (the digestive enzyme that digests dairy). Thiamine insufficiency symptoms...
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DR1-DQ5 neurological symptoms
knitty kitty replied to Murilo P's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I think your wife would do much better if her nutritional deficiencies were addressed. Celiac Disease causes malabsorption of nutrients due to the damage and inflammation done to the digestive tract. The additional demands of pregnancy on the mother can cause nutritional deficiencies that can mimic behavioral disorders like schizophrenia. Bulimia... -
Anosmia - no sense of smell?
knitty kitty replied to HeidiParthena's topic in Related Issues & Disorders
There's several B vitamins which if deficient can cause neuropathy. B12 deficiency can cause neuropathy as can deficiencies in Thiamine B1, Niacin B 3, Pyridoxine B6, and Folate B 9. Yes, excessive Pyridoxine B6 can cause neuropathy if there's an excessive amount from supplementing, but not from dietary sources. Zinc is also important to the... -
Nutritional deficiencies on Gluten free diet References
knitty kitty commented on knitty kitty's blog entry in Thiamine Thiamine Thiamine
Doctors are required to take twenty hours of nutritional education while in medical schools for seven years. Mostly vitamin deficiency diseases are thought to be in the past or in starving countries. So doctors do not recognize vitamin deficiency disease symptoms in the early stages. Celiac Disease causes vitamin deficiencies because the lining of the... -
Celiac Disease and My Brain and Muscles
knitty kitty replied to ling27's topic in Coping with Celiac Disease
@ling27, Yes, I'm talking about taking a vitamin supplement with all eight essential B vitamins. You can take a B Complex in addition to your B12. B12 needs other B vitamins to function properly. Cobalamine B12 needs Folate B 9, Riboflavin B2 and Pyridoxine B 6. Thiamine B1 is needed as well as the rest. If you take just B12 and are... -
Celiac Disease and My Brain and Muscles
knitty kitty replied to ling27's topic in Coping with Celiac Disease
One symptom of Thiamine deficiency is edema in the feet, ankles and legs. Thiamine is Vitamin B1. There are eight essential B vitamins that Celiac people have difficulty absorbing sufficient amounts of due to Celiac damage in the small intestine. The B vitamins cannot be stored for long. Thiamine runs out first, in as little as three days. Has... -
Celiac Disease and My Brain and Muscles
knitty kitty replied to ling27's topic in Coping with Celiac Disease
Welcome to the forum, @ling27, I understand what you're going through. Lots of doctors are not as knowledgeable about Celiac Disease and the need for vitamin supplementation. I've posted some of my experiences in my blog. Let's compare notes. I'm limited on my computer use due to eye problems, too. You're not alone. -
@CDW, You're in good company. I have to avoid gluten free processed foods because Sulfites are used as whitening agents. I've a hypersensitivity to Sulfites, which can develop in Celiac Disease. Sulfites make my dermatitis herpetiformis flare up badly. I've found some studies that you may find interesting and helpful. Serological marker...
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Where to get enough fibre when you can't tolerate ....
knitty kitty replied to EllieP's topic in Super Sensitive People
@EllieP, Have you tried Basmati Rice? It's the type of rice that's well tolerated, least likely to provoke a reaction, easily digested. I can't tolerate rice or grains, especially corn, but I found I can have basmati rice. It should be near the other types of rice....short grain rice, brown rice and black rice. -
@Rose77, If you're a bacteria, the dose wouldn't have to be as much. Scientific, peer reviewed studies have shown that gut dysbiosis is a trigger for disease development. Glyphosate, pathways to modern diseases II: Celiac sprue and gluten intolerance https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3945755/ Glyphosate exposure induces...
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