Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

knitty kitty

Moderators
 View Profile  See their activity

  • Posts

    3,473

  • Joined

  • Last visited

  • Days Won

    167

 Content Type 

Profiles

Forums

Events

Blogs

Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by knitty kitty

  1. knitty kitty
    Welcome to the forum, @Ecann74! @trents is right. You don't have to check every box to Bingo for Celiac Disease. The high IgA, IgG and positive genes are sufficient for a Celiac diagnosis. In fact, this study found that negative Endomysial antibodies might be related to long lasting untreated coeliac disease. Endomysial antibody‐negative c...
  2. knitty kitty
    @Jjk1992, Welcome to the forum! Having a slightly positive test result warrants more investigation. Like @trents said, a slightly positive result can be a reflection of decreased gluten consumption prior to the test. It's like being told you're a little pregnant. Was your Total IgA taken? If you have low Total IgA, your tTg IgA can...
  3. knitty kitty
    Hello, @Gilly M, I'm so sorry you are having such a difficult time. My doctors told me my symptoms were extreme anxiety, but high dose Thiamine actually relieved the anxiety. In my book, anxiety is the body's way of saying something is wrong. We're Thiamine Contingent. If we don't get sufficient Thiamine, our mitochondria and cells cannot function...
  4. knitty kitty
    You're very welcome, @Daisy23. Have you had a genetic test for Celiac Disease done? Since Celiac and dermatitis herpetiformis are genetic, you may want to consider having your daughter (children) checked, too. Keep us posted on your progress!
  5. knitty kitty
    @Daisy23, Yes! Sounds very familiar! Sounds like Dermatitis Herpetiformis, a skin manifestation of Celiac Disease. A biopsy next to, but not on top of, a blister should be taken. With special staining, Celiac Disease antigluten antibodies can be seen. A biopsy positive for Dermatitis Herpetiformis is a diagnosis of Celiac Disease. Unfortunately...
  6. knitty kitty
    @Rhapsody, Welcome to the forum! Geographic tongue has been linked to deficiencies in Pyridoxine Vitamin B6, Folate B9, and Cobalamine B12, as well as deficiencies in zinc, iron, and Vitamin D. Both types of Diabetes have been linked to low Thiamine Vitamin B1 levels. Celiac Disease causes malabsorption of essential nutrients like the...
  7. knitty kitty
    Do you include dairy products in your diet? Do you include gluten free breads and processed products?
  8. knitty kitty
    @Daisy23, welcome to the forum! Yes, white bread is fine for the gluten challenge. A slice of bread can have between 2.5 to 5 grams of gluten. You may want to share the following information with your doctors and ask for testing sooner. According to recent research, updates to the gluten challenge are being implemented. Recommended...
  9. knitty kitty
    @James47, Yes! Yeah you! 😸 Celiac can be a bumpy journey and we all need to encourage each other along. @Wheatwacked can tell you this story about Celiac, alcohol and thiamine. Perhaps he will join us. I'm a big fan of taking high dose Thiamine because of the benefits. Here's some interesting articles... Thiamine an...
  10. knitty kitty
    You need a B Complex because Thiamine interacts with every other B vitamin to ensure proper functioning within cells. Thiamine needs magnesium to make life sustaining enzymes. Calcium balances with magnesium. Do consider adding Vitamin D which regulates the immune system, lowering inflammation. Good job!
  11. knitty kitty
    I'm a microbiologist who understands how vitamins work intracellularly. Which three supplements are you now taking?
  12. knitty kitty
    Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Vitamin and Mineral Deficiencies Are Highly Prevalent in Newly Diagnosed Celiac Disease Patients https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3820055/
  13. knitty kitty
    Seriously, I've experienced migraines and those strange dreams. The only things that made them better was supplementing with these B vitamins, especially Thiamine, and magnesium. No amount of meditation or relaxation techniques worked until I fixed the underlying subclinical vitamin deficiencies that occur in Celiac Disease. If we don't absorb sufficient...
  14. knitty kitty
    @Leann horne, Flax contain Lectins. Flax are seeds from flax plants. Tapioca is made from cassava, also high in Lectins. Cassava and tapioca also contain thiaminase, an enzyme that destroys Thiamine Vitamin B1 making it unusable to the body. Are you boosting your intestines' ability to absorb essential nutrients? Supplementing the essential...
  15. knitty kitty
    Hi, @Gilly M, When I started supplementing after being deficient, there were definitely some strangeness going on as my body started working properly with an increased amount of vitamins available. No, not a paradoxical reaction. Simply the body starting to work properly. How long after taking the thiamine and b complex did symptoms start? Which...
  16. knitty kitty
    Hello, @NoGlutensToday, I believe those new ingredients are gluten free. I can't use petroleum based products like that lotion and petroleum jelly. My skin feels like it has a coating on it and can't breathe. And my pores clog up. This makes my dermatitis herpetiformis more aggravated. I use Tallow Balm by Vintage Traditions. (Not an...
  17. knitty kitty
    How's it going, @Gilly M?
  18. knitty kitty
    @ShortsGirl, My heart goes out to you. My family was in denial, too. Celiac Disease is genetic, and, unless you're adopted, at least one of your parents has the celiac disease genes, too. Gastrointestinal celiac disease symptoms are often ignored, brushed aside, or blamed on stress. But there are other health problems connected to celiac disease...
  19. knitty kitty
    @ffordbush, Try cutting out dairy and see if your antibodies go down. Some people react to dairy as though it were gluten because casein (the protein in dairy) resembles gluten (the protein in wbr). Mucosal reactivity to cow's milk protein in coeliac disease https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1810502/
  20. knitty kitty
    @Gilly M, I knew someone who would have oxalate dumping in stools, UTIs, then ended up in hospital for painful kidney stones. It's a serious medical condition that following a low oxalate diet can help. However, some diets that are medically necessary for some people become health fads. Some health fad diets give a bad name to legitimate medically...
  21. knitty kitty
    @HWB, Long term infection with H. Pylori causes chronic constipation!!! Long term H. Pylori infection can cause cancer and all sorts of gastrointestinal problems. Boost your vitamin intake, especially Vitamin D and the B vitamins, and... Take the antibiotics to eradicate H. Pylori! References: Successful Helicobacter pylori...
  22. knitty kitty
    @ffordbush, Are you consuming dairy? Has your dairy intake changed before or after having Covid?
  23. knitty kitty
    @Gilly M, What does your doctor say about the dumping? What does your doctor recommend doing about the dumping? Do you have kidney stones? High oxalates in urine? Deficiencies in Thiamine B1, Pyridoxine B6 and Riboflavin B2 are connected to oxalate formation. References: The association of dietary intake of riboflavin and thiamine...
  24. knitty kitty
    @Gilly M, I take Magnesium Lysinate Glycinate. (Doctor's Best High Absorption Magnesium no more than 300 mg a day). Yes, alcohol and emotional stress are things that will deplete Thiamine suddenly and quickly. Your symptoms, anxiety, insomnia, panic attacks, are the same things I experienced when I was thiamine deficient. It gets worse...
  25. knitty kitty
    @James47, I found the Autoimmune Protocol Diet, a type of Paleo Diet, extremely helpful in getting inflammation reduced and healing started. It was designed by a doctor who is Celiac, Dr. Sarah Ballantyne. (Her book, The Paleo Approach, is very helpful. Not an advertisement, simply what helped me.) The AIP diet cuts out all processed foods, grains...
×
×
  • Create New...